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My Story: A Photographic Essay on Life with Multiple Sclerosis

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  • Posted June 10, 2009

    Interesting glimpse into the life of MS

    When researching My Story by Amelia Davis I found this quote:
    "...[offers] encouragement and inspiration for anyone coming to terms with what it means to be a person with [MS]." -- Consumer Connections, Winter 2004

    I think this is the perfect description of this book. My Story: A Photographic Essay on Life with Multiple Sclerosis uses photographs along with short essays giving us a glimpse into the lives of 32 people living with MS. Contributors share the story of their life and how Multiple Sclerosis has changed them as well as the things they discovered that stay the same no matter what life throws at you. Photographs by Amelia Davis accompany each essay showing us the faces behind MS.

    For every essay written by a person with Multiple Sclerosis in this book there is a companion essay written by their caregiver. Behind every person with a chronic illness be it MS or something else there is always someone and often a lot of someones caring for those people. If not physically then mentally and emotionally. not for a second can the plight of the individuals with the illness be downplayed, but those surrounding and supporting those people must not be forgotten, My Story does a wonderful job of including these people while at the same time not taking away from the individuals they are caring for.

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  • Posted March 29, 2009

    more from this reviewer

    Really Inspiring!

    I really did like this book. It is wonderfully done and I like how each chapter focuses on a different person & their loved ones. The pictures are fantastic and I really like the format of this book. I recommend it to young & old people alike.

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  • Anonymous

    Posted August 10, 2004

    Hope springs eternal.

    Photographer-philanthropist Amelia Davis¿s thirty-two photo-interviewees suffer from the lifelong Mxyzptlkish disabilities caused by the nervous system degenerative disease, multiple sclerosis. If one line could capture the attitude of these sometimes frightened but always courageously hope-driven people, 46-year-old Phil and his caregiver girl friend, Kristen¿s, framed reminder would fill the net: ¿We can not direct the wind, but we can adjust our sails¿. In Davis¿s book of essays and photos, you visit with these neighbors of yours (you have about 350,000 of them), read their poignant stories and those of their families and caregivers¿too brief vignettes inviting you into their adventurous and meaning-filled lives¿see the beauty and passion in their faces through Davis¿s celestial eye, and discover how they create unique and marvelous quilts from the scraps life has given them. Despite sometimes heart-wrenching disabilities, these people find every day a good day, though some days better than others. Amelia Davis¿s book brims with life-lessons for everyone us¿the promise that we can turn our stumbling blocks, however they manifest, into stepping-stones. Read it for heart-care.

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