36-Hour Day: A Family Guide to Caring for Persons with Alzheimer Disease, Related Dementing Illnesses, and Memory Loss in Later Life

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The 36-Hour Day has offered comfort and support to millions of people in North America and, in translations and adapted editions, throughout the rest of the world. For this third edition, the authors have retained the structure, scope, and purpose of the original book, while thoroughly updating chapters to reflect the latest medical research and the current delivery of care.

The book contains no figures.

Through two editions, this ...

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Baltimore + London 1999 Softcover 0801861497. Brand New; Marfree, fresh prtg 3 Ed; not marked-in, clearance or discard. Usually mails within 12 hours.; Johns Hopkins Press ... Health Bks.; 9.0 x 6.0 x 1.0 inches; 339 pages; From Library Jour: It has been estimated that five percent of older people suffer from severe intellectual impairment. So these two eloquent and readable guides will be much in demand as the number of families facing the challenge of caring for a relative with some form of dementing illness continues to grow. First published in 1981, The 36-Hour Day follows the format of the previous two editions but has been thoroughly updated to incorporate new information on the latest research, several drugs that hold promise, and genetic aspects of Alzheimer's. The heart of the guide remains unchanged, focusing on helping families cope with this progressive and irreversible disease. Besides tips on how to care for the demented during the various stages of the disease (for example, place a picture of a Read more Show Less

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The 36-Hour Day: A Family Guide to Caring for People Who Have Alzheimer Disease, Related Dementias, and Memory Loss

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Overview

The 36-Hour Day has offered comfort and support to millions of people in North America and, in translations and adapted editions, throughout the rest of the world. For this third edition, the authors have retained the structure, scope, and purpose of the original book, while thoroughly updating chapters to reflect the latest medical research and the current delivery of care.

The book contains no figures.

Through two editions, this best-selling book has remained the "bible" for families who are giving care to people with Alzheimer disease. The 36-Hour Day has offered comfort and support to millions of people in North America and, in translations and adapted editions, throughout the rest of the world. For this third edition, the authors have retained the structure, scope, and purpose of the original book, while thoroughly updating chapters to reflect the latest medical research and the current delivery of care. Topics that have been added or extensively revised include: Updated terminology and statistics; New material on the evaluation of persons with dementia; Updated changes in laws on driving; A new section on hospice care; New information on assisted living facilities and financing care; Information on other types of dementia; The latest findings on eating and nutrition; New medical research in areas such as drugs, genetics, and diagnostic tests. The revised appendices include: New bibliographic references; websites; Updated addresses of associations and state offices.

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Editorial Reviews

Doody's Review Service
Reviewer: Ozlem Dubauskas, MD (Rush University Medical Center)
Description: This is a guidebook for everyone who deals with demented patients.
Purpose: The purpose is to enlighten the families of Alzheimer's patients as well as patients with other types of dementias, make them understand the patient and disease better, ease and improve their caregiving, inform them about expected consequences of the disease and suggest ways to manage the difficulties.
Audience: Audiences are family members and caregivers of demented patients and anyone who is in close contact with those patients. The book can also be helpful for primary care doctors, psychiatrists, psychiatry residents, nurses, social workers, and any clinician.
Features: The text covers basic information about dementia, particularly Alzheimer's type, most common problems related to those conditions, general principles and guidelines of caregiving, and new information on the financing and delivery of care. Additional information is provided about dementia research. The first two appendixes are designed to inform the reader about recent books, videos, web sides, addresses, and telephone numbers of U.S. and international organizations. The third appendix lists state offices of aging and nursing homes. The fourth appendix includes nursing home residents' rights. The language is very easy to read, and enables everyone to understand the information. There are no tables or illustrations.
Assessment: This is a very useful guide about dementia, its related difficulties and illnesses, available services for demented patients, and anticipated consequences of this disease. It is highly recommended to those who have family members with dementia or who are in close contact with those people.
New York Times
Excellent guidance and clear information.
William Reichel
A wealth of knowledge...the best available guide on the subject.
American Geriatrics Society
Albert A. Fisk
This is a book that physicians can confidently recomment to the families of their patients. It is also a book that physicians themselves can read to obtain practical advice that they can pass on to families.
Journal of the American Medical Association
Ozlem Uyar
This is a guidebook for everyone who deals with demented patients. The purpose is to enlighten the families of Alzheimer's patients as well as patients with other types of dementias, make them understand the patient and disease better, ease and improve their caregiving, inform them about expected consequences of the disease and suggest ways to manage the difficulties. Audiences are family members and caregivers of demented patients and anyone who is in close contact with those patients. The book can also be helpful for primary care doctors, psychiatrists, psychiatry residents, nurses, social workers, and any clinician. The text covers basic information about dementia, particularly Alzheimer's type, most common problems related to those conditions, general principles and guidelines of caregiving, and new information on the financing and delivery of care. Additional information is provided about dementia research. The first two appendixes are designed to inform the reader about recent books, videos, web sides, addresses, and telephone numbers of U.S. and international organizations. The third appendix lists state offices of aging and nursing homes. The fourth appendix includes nursing home residents' rights. The language is very easy to read, and enables everyone to understand the information. There are no tables or illustrations. This is a very useful guide about dementia, its related difficulties and illnesses, available services for demented patients, and anticipated consequences of this disease. It is highly recommended to those who have family members with dementia or who are in close contact with those people.
Library Journal
It has been estimated that five percent of older people suffer from severe intellectual impairment. So these two eloquent and readable guides will be much in demand as the number of families facing the challenge of caring for a relative with some form of dementing illness continues to grow. First published in 1981, The 36-Hour Day follows the format of the previous two editions but has been thoroughly updated to incorporate new information on the latest research, several drugs that hold promise, and genetic aspects of Alzheimer's. The heart of the guide remains unchanged, focusing on helping families cope with this progressive and irreversible disease. Besides tips on how to care for the demented during the various stages of the disease (for example, place a picture of a toilet on the bathroom door), the text discusses the different kinds of help available and how to seek it. Financial and legal issues are well covered, while sections on nursing homes and other alternative living arrangements provide advice and practical suggestions. Appendixes list recent books, videos, web sites, and U.S. and international organizations. The thrust of GentlecareR is a well-argued plea for a radical change in the way we care for Alzheimer's patients. In outlining her program, Jones states that this rethinking involves people, physical space, and individualized programs. Everyone in the physical plant, from maintenance worker to director, belongs to the care-giving team, as do family members and volunteers. Only when impaired persons can no longer perform for themselves a task like feeding themselves or dressing should it be done for them. Care should concentrate on what can be done, not what cannot. Because her emphasis is on the need for a comprehensive program of care and concentrates more on the institutional setting, Jones does not provide as many practical suggestions or the depth of advice for home care that Mace and Rabins do. Rather, her book describes how facilities can be designed and staffs trained to optimize the quality of life for patients. Both titles are highly recommended: Rabins and Mace for the practical help and advice, Jones for her eloquent presentation of a comprehensive program that treats patients with dignity.--Jodith Janes, Cleveland Clinic Fdn. Copyright 1999 Cahners Business Information.
Booknews
Providing support and factual information to equip families with the tools needed to effectively care for relatives with dementing disorders, this volume covers topics ranging from what dementia is to the various physical and psychological problems that its sufferers experience. Also covered are how it affects family members, financial and legal issues, and caretaking arrangements. Paper edition (unseen), $13.95. Annotation c. Book News, Inc., Portland, OR (booknews.com)

4 Stars! from Doody
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Product Details

  • ISBN-13: 9780801861499
  • Publisher: Johns Hopkins University Press
  • Publication date: 1/28/1999
  • Series: Johns Hopkins Press Health Bks.
  • Edition description: REV
  • Edition number: 3
  • Pages: 339
  • Product dimensions: 5.98 (w) x 9.10 (h) x 0.95 (d)

Meet the Author

Nancy L. Mace, M.A., now retired, was a consultant to, and a member of, the board of directors of the Alzheimer Association and an assistant in psychiatry as coordinator of the T. Rowe and Eleanor Price Teaching Service of the Department of Psychiatry and Behavioral Sciences at the Johns Hopkins University School of Medicine.

Peter V. Rabins, M.D., M.P.H., is a professor of psychiatry, with joint appointments in medicine, mental hygiene and health policy and management, director of the geriatric neuropsychiatry section, and director of the T. Rowe and Eleanor Price Teaching Service of the Department of Psychiatry and Behavioral Sciences at the Johns Hopkins University School of Medicine.

PROFESSIONAL ENDORSMENT: THE 36-HOUR DAY is endorsed by the Alzheimer Disease And Related Disorders Association Of America

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Table of Contents

Foreword
Preface
Acknowledgments
Preface to the First Edition
1 Dementia 1
2 Getting Medical Help for the Impaired Person 13
3 Characteristic Problems of Dementia 22
4 Problems in Independent Living 46
5 Problems Arising in Daily Care 60
6 Medical Problems 99
7 Problems of Behavior 119
8 Problems of Mood 148
9 Special Arrangements If You Become Ill 164
10 Getting Outside Help 168
11 You and the Impaired Person as Parts of a Family 186
12 How Caring for an Impaired Person Affects You 205
13 Caring for Yourself 226
14 For Children and Teenagers 239
15 Financial and Legal Issues 243
16 Nursing Homes and Other Living Arrangements 253
17 Brain Disorders and the Causes of Dementia 288
18 Research in Dementia 298
App. 1. Further Reading 313
App. 2. Organizations 317
App. 3. Locating Your State Office on Aging and State Nursing Home Ombudsperson 322
App. 4. Nursing Home Residents' Rights 328
Index 333
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Customer Reviews

Average Rating 4
( 77 )
Rating Distribution

5 Star

(44)

4 Star

(15)

3 Star

(7)

2 Star

(7)

1 Star

(4)

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See All Sort by: Showing 1 – 20 of 77 Customer Reviews
  • Anonymous

    Posted May 30, 2012

    Highly Recommend The 36 Hour Day for Dementia

    I would highly recommend buying this well written book for anyone that has a family member or close friend that has been diagnosed with Dementia. It is very informative and gives you the steps you need to take to help your loved one. I have learned through reading this book that understanding this disease will help you and your loved one get through this very emotional chapter of your/their life.

    5 out of 6 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted September 20, 2011

    Highly helpful to caregivers and family of brain impaired patients

    I am a caregiver to a loved one with AD and this book has provided valuable information in a clear and concise way. You may skip the parts
    that do not concern your specific situation and review the ones that directly address your specific questions. It is also a reference source that is very helpful when questions arise as the disease progresses.
    It should be read by family members so they better understand how this terrible disease affects the impaired brain of the patient and the well being of the caregiver.

    4 out of 4 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted January 4, 2008

    A reviewer

    A very comprehensive and helpful book a necessity reference book with information and sources

    4 out of 4 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted March 28, 2002

    Required Reading for Caregivers

    This is the most recommended book about Alzheimer's Disease. It is required reading for every caregiver. The first Alzheimer's Association chapter I contacted sent me a copy of it the first time I called them, and for that I will always be grateful. Not until I had read this book did I better understand Alzheimer's and what it was doing to my mother. Read every book you can find on Alzheimer's, but this is the book you'll want to read first.

    3 out of 3 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted June 28, 2012

    I HIGHLY RECOMMEND THIS INFORMATIVE READ

    I found this book helpful in answering my questions about my Dad's dementia.

    2 out of 3 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Posted February 11, 2012

    Highly recommended!

    This is a wonderful resource for a very difficult situation. It has helped me to better understand my mother's situation. I am thankful that a friend shared it with me after it was recommended by her relative's doctor.

    2 out of 2 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Posted November 4, 2011

    more from this reviewer

    Highly recommend

    This book has been, and continues to be of great help and comfort to me as I go through this process of being my husband's caregiver. It helps me to understand what he is going through and although it still hurts when he becomes angry and curses and calls me names, I am able to realize that it is not HIM, but the disease that is controlling his actions.

    Almost every page hits the mark in some way and looking to the future helps me to know what to expect.

    Most helpful and very well done.

    2 out of 2 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted November 4, 2010

    I Couldn't Agree More

    As a person that witnessed first hand what happens when someone you love is stricken with Alzheimer's, this book hit the nail on the head in addressing how much we take for granted when it comes to our memories and thought. This book is remarkable. I'd recommend that you also buy "When God Stopped Keeping Score." It is an intimate look at the power of God and forgiveness and one that everyone deserves to read. Buy it and find out why for yourself.

    2 out of 2 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted May 23, 2009

    "The 36-Hour Day"

    This book was a wonderful resource! I am an Nurse Educator for nursing assistants. We focus on care for the elderly with dementia and Alzheimer's. My mother had me pick her up a copy as well. I shared excerpts with my students and have added She could have used this when she was taking care of Grandma. However, she has it now for her husband.

    The book was informative and supportive. It is not a book to sit and read in one sitting. I often kept in a private area so I could read small bites at time and then process that information.

    I recommend this book to anyone who is experiencing the loss that comes with dementia or Alzheimer's. It will not change the final outcome for your loved-one, but it might help you to help them go through this tragic loss with more dignity and peace. It will also help you to understand that this is not the person you know, they cannot help their behavior. It will also help you to know that this is not the person you once knew and they cannot help what they do or do not do!

    2 out of 2 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted September 16, 2000

    What do we do now?

    That was my first reaction to the diagnosis. This book helped me figure out what to do next. If I could only afford one book on the topic of Alzheimer`s this would the one. This book covers all the topics we were concerned about as a family: what to expect, behaviors and how to handle them,where to turn for help, legal aspects, how do we cope without falling apart,how do we tell the rest of the family. I highly recommend this book for all families trying to find answers to their questions.

    2 out of 2 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted April 7, 2013

    This book is informative, thorough, and very helpful for this jo

    This book is informative, thorough, and very helpful for this journey with my mother's dementia. I highly recommend it.

    1 out of 1 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Posted December 1, 2012

    Highly recommend!

    This book is very helpful for those of us caring for an Alzheimer's parent or spouse, who ever you might be caring for!

    1 out of 1 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted November 20, 2012

    Recommended for new caregivers; a must

    Mace and Rabins have put together a detailed primer for first time caregivers and family members of those with dementias. It provides information for every aspect of how to cope with this devestating illness. It is written at a basic level with little of the medical jargon that would confuse. Experienced caregivers who have dealt with their loved one's dementia probably will find this material lacking in sufficient detail, however it provides nuggets that you may have overlooked.

    1 out of 1 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted November 20, 2012

    Must have for any caregiver

    There is so much information about dementia and the related deseases that it will greatly benefit anyone caring for someone. The information is both about the diseae and how to care for someone with it.

    1 out of 1 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Posted July 30, 2012

    Highly Recommended

    A must read for every family facing the task of caring for a loved one with dementia or Alzheimer. There are many books on this subject, but this by far was the best I have read in dealing with the day to stress of caregiving, explaining the disease and where to go for help in preparing your loved one and your self for the long road ahead.

    1 out of 1 people found this review helpful.

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  • Posted February 25, 2012

    not what we were hoping for

    My Mom was trying to find a book that could help her cope...this wasn't it.........

    1 out of 5 people found this review helpful.

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  • Posted February 20, 2010

    more from this reviewer

    36 Hour Day

    Very well written and informative book for anyone to read that is dealing with a loved one who has dementia. It amazing how much we take for granted in out ability to think, remember and reason. Would recommend this book to everyone.

    1 out of 1 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Posted January 27, 2010

    Wonderful Book

    My mom heard about this book and picked up a copy. It is a great book for those caring for an elderly person. It has taught my mom new techniques and well as helping her understand how my grandma feels inside. We highly recommend this to all families dealing with these diseases. Thank you for such a great book.

    1 out of 1 people found this review helpful.

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  • Posted July 13, 2009

    more from this reviewer

    just found out

    we just found out our mom has demitta and its bad i heard about 36 hour day and its helping me so i want to thank you very much

    1 out of 1 people found this review helpful.

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  • Anonymous

    Posted April 20, 2009

    Very Helpful

    This has been a real aid for our family; not technical at all and very easy to comprehend for the lay-folk

    1 out of 1 people found this review helpful.

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