| Preface | 19 |
A. | You Are Not Alone | 19 |
B. | How to Use This Book | 22 |
C. | Write Us | 23 |
1. | The Pros and Cons of Being a Caregiver | 25 |
A. | Do You Want This Job? | 25 |
B. | Making the Eldercare Decision | 26 |
C. | If Eldercare Is Not for You | 27 |
D. | If You Decide to Care for Your Parent | 28 |
E. | Handling That First Crisis | 30 |
F. | The Effects on Your Family, Time, and Health | 31 |
G. | What If You Fail? | 33 |
2. | Knowing When Your Parents Need Help | 36 |
A. | What's Normal? | 36 |
B. | Loss of Loved Ones, Friends, and Advisors | 38 |
| Loss of Self | 39 |
| Loss of Independence and Control | 40 |
C. | Decline Is a Fact of Life | 43 |
D. | Why Parents Refuse Help | 44 |
| Difficult Parents | 47 |
E. | What Are the Warning Signs? | 49 |
| Memory Loss/Dementia | 49 |
| Diminished Hearing | 50 |
| Diminished Sight | 52 |
| Falls | 53 |
| Incontinence | 54 |
| Self-Neglect | 55 |
| Drug or Alcohol Abuse | 56 |
3. | Intervention: When? What? How? | 58 |
A. | Trusting Your Instincts | 59 |
B. | Planning Ahead | 60 |
C. | When Not to Intervene | 63 |
D. | Getting a Professional Assessment | 65 |
| Private Assessments | 66 |
| Public Assessments | 68 |
E. | Talking to Your Parents | 70 |
F. | Talking to Your Family | 72 |
G. | Choosing the Right Intervention | 74 |
| Preventive Intervention | 76 |
| Partial Intervention | 78 |
| Total Intervention | 80 |
| Crisis Intervention | 81 |
| Legal/Financial Intervention | 82 |
H. | Taking the Car Away | 82 |
| Providing Substitute Transportation | 84 |
4. | Caregiving Realities | 87 |
A. | Do You Have Realistic Expectations? | 87 |
B. | Understanding Your Responsibilities | 90 |
C. | Learning to Be an Advocate | 91 |
D. | Hands-on Care | 94 |
E. | Supervising Others | 96 |
F. | Financial Management | 99 |
G. | Recruiting Friends and Family | 102 |
H. | Using the Skills You Already Have | 102 |
I. | Where to Get the Training You Need | 103 |
5. | Long-Distance Caregiving | 108 |
A. | Why You Need a Long-Distance Support System | 108 |
B. | Creating Your Long-Distance Support Network | 112 |
| Geriatric Care Managers | 116 |
| Elder Law Attorneys | 117 |
| Other Attorneys | 118 |
| Physicians | 118 |
| Friends and Neighbors | 118 |
C. | Preparing for Your Visit | 119 |
| During Your Visit | 122 |
| After Your Visit | 123 |
6. | Finding and Using Help and Services | 129 |
A. | What's the Right Support System for You? | 129 |
B. | Identifying Your Needs | 131 |
| Adult Day-Care Programs | 135 |
| Social-Model Day-Care Programs | 137 |
| Medical-Model Day-Care Programs | 138 |
| Medical Support | 140 |
| Family Support | 142 |
| Community Support | 143 |
| Parent Support | 144 |
| Significant Other Support | 146 |
C. | Respite | 148 |
7. | Handling Burnout | 155 |
A. | How Do You Know If You're Burned Out? | 155 |
B. | Getting Help | 157 |
C. | Reaping the Benefits of Respite | 161 |
D. | Managing Your Time | 164 |
E. | Restoring Your Quality of Life | 166 |
F. | Taking Care of Yourself | 169 |
G. | Setting Limits | 171 |
8. | Managing Medical Issues | 175 |
A. | Learning to Be an Advocate in the Doctor's Office | 175 |
B. | Choosing a Doctor | 177 |
| Board-Certified Physicians | 177 |
| Geriatricians | 178 |
| Specialists | 178 |
C. | Preparing for the Visit | 179 |
| Gathering Medical and Insurance Information | 180 |
| Bringing Medications and Prescriptions | 181 |
D. | Asking the Right Questions and Getting the Answers | 183 |
E. | After the Visit | 185 |
| Complying with Physicians' Orders | 185 |
| Getting a Second Opinion | 188 |
| Returning for New Treatment Options | 189 |
F. | Understanding Patients' Rights and Responsibilities | 191 |
9. | Overseeing Medications | 197 |
A. | Administering Medications | 197 |
| Keeping Track of Medications | 199 |
B. | Developing a Relationship with the Pharmacist | 200 |
C. | Pain Management | 202 |
D. | Misuse of Medications | 204 |
E. | Abuse and Dependency | 206 |
F. | Over-the-Counter and Alternative Medications | 209 |
10. | Managing Benefits and Insurance | 213 |
A. | Why It's Worth the Effort | 213 |
B. | What to Do When a Claim Is Denied | 217 |
C. | Medicare | 218 |
| How It Works: Parts A, B, and C | 219 |
| Health Maintenance Organization (HMO) | 222 |
| Point of Service (POS) | 223 |
| Preferred Provider Organization (PPO) | 223 |
| Medigap (Private Insurance) | 223 |
D. | Medicaid | 224 |
| How It Works | 224 |
| Applying for Benefits | 225 |
E. | Social Security | 226013 | How It Works | 227 |
| Special Situations | 228 |
| Survivor Benefits | 228 |
F. | Veteran's Administration | 229 |
| How It Works | 229 |
| Who Is Eligible | 230 |
11. | Dealing With Serious Illness | 233 |
A. | Insisting on an Accurate Diagnosis | 233 |
B. | Managing Major Illness | 237 |
| The Importance of a Second Opinion | 239 |
| Researching Treatment Options | 240 |
C. | Coping with Specific Conditions | 242 |
D. | Depression and Anxiety | 243 |
E. | Dementia | 246 |
F. | Agitated, Hostile, and Aggressive Behavior | 249 |
G. | Acquired Immune Deficiency Syndrome, or AIDS, in the Elderly | 252 |
12. | Coping with Alzheimer's Disease | 259 |
A. | Facts about the Disease | 259 |
B. | Testing and Diagnosis | 261 |
C. | Treatment Options | 262 |
D. | The Effects on Your Family | 263 |
E. | What to Expect as the Disease Progresses | 263 |
F. | Organizing to Handle Mild Memory Impairment | 265 |
G. | Primary Communication Tips and Coping Skills | 266 |
H. | Remember Your Body, Mind, and Spirit | 277 |
I. | Planning for the Future | 277 |
13. | When Hospitalization is Necessary | 282 |
A. | Facing Your Fears | 282 |
B. | Choosing the Right Hospital | 284 |
C. | Being Prepared | 289 |
D. | Emergency Admissions | 291 |
E. | Preplanned Admissions | 294 |
F. | What to Bring with Your Parent, What to Leave at Home | 296 |
G. | During Your Parent's Hospitalization | 297 |
H. | Planning for Discharge | 300 |
I. | Leaving the Hospital | 302 |
14. | Detecting and Dealing with Elder Abuse | 306 |
A. | The Realities of Elder Abuse | 306 |
| Finding Help in Your Community | 309 |
| Protective Services for Adults | 311 |
| Guardians | 312 |
B. | Physical Abuse | 314 |
C. | Familial Abuse | 316 |
D. | Financial Abuse | 318 |
E. | Homecare Abuse | 319 |
F. | Social Abuse of Drugs and Alcohol | 321 |
G. | Rebuilding Trust | 323 |
H. | Ageism | 325 |
15. | How to Hire a Homecare Worker | 328 |
A. | What Are Your Options | 328 |
| Family Caregivers | 330 |
| Paid Homecare Workers | 331 |
| Geriatric Care Managers | 333 |
B. | Evaluating Your Parent's Needs | 333 |
| Duties and Skill Levels | 334 |
| Expectations: Reality Check | 335 |
C. | Interviewing the Homecare Worker | 339 |
| Legal and Professional Certifications | 339 |
| Training and Experience | 341 |
D. | Supervising Homecare Workers | 343 |
| Your Responsibilities | 344 |
E. | Your Right to Complain and Replace the Worker | 347 |
16. | Making Decisions About Housing: When? What? How? | 352 |
A. | Evaluating the Need for Change | 352 |
| Safety and Quality-of-Life Issues | 354 |
| Guilt Issues | 356 |
B. | Adapting Your Parent's Home for Safety and Security | 357 |
| Assistive Devices and Helpful Equipment | 362 |
C. | Moving Your Parent into Your Home | 364 |
| Space and Territory | 366 |
| Adapting Your Home | 368 |
D. | Adult Homes | 369 |
E. | Assisted Living Facilities | 371 |
F. | Nursing Homes | 373 |
G. | Moving Your Parent | 373 |
| Who Does What? | 375 |
| Paring Down Your Parent's Belongings | 376 |
H. | Advocating after the Move | 377 |
I. | Visiting Your Parent | 378 |
17. | Evaluating the Move to a Nursing Home | 382 |
A. | Making a Difficult Decision | 382 |
B. | Choosing the Right Nursing Home | 385 |
C. | Location | 387 |
D. | Religious Preferences | 389 |
E. | Dietary Requirements | 389 |
F. | Specialized Care | 392 |
G. | Cleanliness | 393 |
H. | Activities for Residents | 394 |
I. | Who's Who in the Complaint Process | 395 |
J. | Medication/Pain Management | 396 |
K. | Patient Advocate and the Bill of Rights | 398 |
L. | Moving to a Nursing Home | 399 |
| Making the Room Comfortable | 402 |
| Clothing | 403 |
| Valuables and Personal Items | 408 |
18. | Dating, Sex, and Remarriage | 411 |
A. | Your Parent's New Relationship | 411 |
B. | Remarriage | 414 |
| Financial/Legal Issues | 417 |
C. | Dating, Love, and Intimacy | 422 |
| Sexuality and Sex | 423 |
| Safe Sex | 426 |
19. | Death and Dying | 429 |
A. | Facing Your Feelings and Fears | 429 |
B. | What Are Your Parent's Feelings and Fears? | 435 |
C. | Honoring Your Parent's Wishes | 439 |
D. | Funeral Arrangements | 441 |
E. | Grief and Mourning | 446 |
| Saying Good-bye | 449 |
F. | A New Beginning | 450 |
20. | Caregiver Organizations and Resources | 455 |
| Notes | 467 |
| Glossary | 471 |
| Index | 481 |