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Baby Madison is born during a blizzard in southwestern Minnesota on Christmas Day 2009. Everything seems perfect, until Madison has trouble breathing and turns blue only hours after she is discharged home from the hospital. As she is rushed to the ER, her emotional and incredible journey begins.
The doctors at St. Mary's Hospital in Rochester, Minnesota, suspect that Madison is suffering from a metabolic condition called CPS deficiency, which can be associated with severe neurological damage and even death. Now only time will tell how badly Madison has been affected by this rare and devastating disorder. While the medical world labors to find a treatment for Madison, her parents, Eric and Sonja, struggle to keep their hope and faith alive.
With the support and love of their family and friends, Eric and Sonja continue to fight for their beloved daughter, as Madison continues to show slow progress and much strength and love. Throughout Madison's unimaginable experience, she touches the lives of many and initiates many transformations within the medical community. By joining Eric and Sonja on Madison's Journey, you will discover the powerful message that Madison was sent to reveal.
Prologue 11
Our Christmas Miracle 13
Joy Becomes Fear 21
The NICU Days 35
Home Again 69
Our Home ICU 75
It Never Ends 81
The Stress Builds 89
A Short Stay 93
The PICU Days 95
The Ultimate Decision 107
Home at Last 115
The Final Arrangements 121
A Balloon Story 131
Remembering Madison 135
BRoss
Posted July 12, 2012
Madison's story, an intense journey of a lifetime. Madison's, lifetime here on earth, eloquently written in, A Balloon in the Snowstorm. Each page brings forth the dramatic day to day roller coaster ride, Eric and Sonja, went on in the struggle for survival of their beautiful daughter, Madison. I'm greatful for the privilege of having read and reread this true story. You will come away with greater empathy and understanding of being a parent of an angel gradually slipping away from your earthly grasp.
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Overview
Baby Madison is born during a blizzard in southwestern Minnesota on Christmas Day 2009. Everything seems perfect, until Madison has trouble breathing and turns blue only hours after she is discharged home from the hospital. As she is rushed to the ER, her emotional and incredible journey begins.
The doctors at St. Mary's Hospital in Rochester, Minnesota, suspect that Madison is suffering from a metabolic condition called CPS deficiency, which can be associated with severe ...