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A Few Months to Live: Different Paths to Life's End / Edition 1

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Overview

A Few Months to Live describes what dying is like from the perspectives of nine terminally ill individuals and their caregivers. Documenting a unique study of end-of-life experiences that included detailed conversations in home care settings, the book focuses on how participants lived their daily lives, understood their illnesses, coped with symptoms-especially pain-and searched for meaning or spiritual growth in their final months of life. The accounts are presented largely in the participants' own words, illuminating both the medical and non-medical challenges that arose from the time each learned the "bad news" through their final days of life and memorial services.

Describing the nationwide crisis that surrounds end-of-life care, the authors contend that informal caregiving by relatives and close friends is an enormous and too-often invisible resource that deserves close and public attention. By incorporating not only the ill person's but also the family's perspective, they portray the nine participants in the contexts of their daily lives and relationships rather than simply as patients. Addressing such issues as palliative care, quality of life, financial hardship, grief and loss, and communications with medical personnel, the authors identify how families, professionals, and communities can respond to the challenges of terminal illness and the need to confront life's end.

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Editorial Reviews

Booknews
A study based on detailed conversations with nine terminally ill people and their caretakers, focusing on how participants lived their daily lives, understood their illnesses, coped with pain and other symptoms, and searched for meaning or spiritual growth in the last months of life. The authors believe that informal caregiving by relatives and close friends is an enormous and often invisible resource that deserves close public attention. They identify how families, professionals and communities can respond to challenges of terminal illness such as palliative care, quality of life, financial hardship, grief, and communications with medical personnel. Annotation c. Book News, Inc., Portland, OR (booknews.com)
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Product Details

  • ISBN-13: 9780878408412
  • Publisher: Georgetown University Press
  • Publication date: 4/28/2001
  • Edition description: New Edition
  • Edition number: 1
  • Pages: 384
  • Sales rank: 1,424,649
  • Product dimensions: 5.90 (w) x 8.90 (h) x 0.80 (d)

Meet the Author

Jana Staton is a researcher with the Missoula Demonstration Project, a community-wide effort in Missoula, Montana to study and transform end-of-life experience and care. She is author of Listening to Families.

Roger Shuy is Distinguished Research Professor of Linguistics Emeritus at Georgetown University. He is author of Bureaucratic Language of Government and Business.

Ira Byock, MD, is the cofounder of and principal investigator for the Missoula Demonstration Project and is a research professor in the department of philosophy at the University of Montana. He is author of Dying Well: Peace and Possibilities at the End of Life.

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Table of Contents

Acknowledgments
Preface
Introduction
1 Study Participants 1
2 Communicating about Death and Dying 23
3 Planning and Choices 57
4 Professional Care and Doctor-Patient Communication 89
5 Knowledge of Illness and Attitudes toward Pain and Death 111
6 Daily Life and Meaningful Activities 135
7 Family Caregiving Experience 173
8 Support and Lack of Support for Family Caregivers 215
9 Personal Growth, Meaning, and Spirituality 239
10 The Final Days of Life 271
11 Memorials at the End of Life 289
12 Some Directions for Understanding the End of Life 301
References 313
Contributors 317
App. A The Missoula Demonstration Project Baseline Research 319
App. B Research Methodology for Studying Participants' Perspectives on the End of Life 325
Index 343
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