Adults with Down Syndrome / Edition 1

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People with Down syndrome are living longer, fuller lives than ever before —and now for the first time ever, there's a comprehensive, reader-friendly book on the social, clinical, legal, and personal issues they'll navigate in adulthood. Internationally recognized authority Siegfried Pueschel blends contributions from respected experts with first-person essays by adults with Down syndrome themselves. Together, they answer readers'; critical questions about what adults experience and how to support their goals, dreams, choices, and overall well-being. Readers will get research-supported information and practical advice on

  • addressing medical and mental health issues
  • fostering social relationships
  • using person-centered supports to help young adults succeed in college
  • helping people with Down syndrome develop self-esteem and healthy sexuality
  • promoting community employment through methods such as vocational education, transition planning, and supported employment
  • ensuring that adults have choices and control over their living arrangements
  • considering alternatives to guardianship as individuals reach adulthood
  • encouraging healthy living through participation in recreational events

Ideal for sharing with families of individuals with Down syndrome, this book is also an invaluable reference for a wide range of professionals, including educators, clinicians, direct support professionals, transition specialists, and employment specialists. Informative and insightful, this landmark volume will help families and professionals support adults with Down syndrome as they build healthy, satisfying, and independent lives.

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Editorial Reviews

Professor Emerita of Communicative Disorders, University of Wisconsin-Madison, and poet - Robin S. Chapman
"A terrific, engaging, book, by and about adults with Down syndrome. . . will help families, professionals, and adults with Down syndrome themselves create supportive communities and celebratory lives."
Psychologist and author of Special Children, Challenged Parents. - Robert Naseef
"This powerful book stands alone, helping the reader reach for the possibilities and live the realities."
Director of Student Services, Charter College of Education, California State University Los Angeles; author of Believe i - Mary A. Falvey
"A delightful and insightful look at the lives of adults with Down syndrome . . . I highly recommend this book."
Chief Academic Officer, Children's National Medical Center; Professor and Chair, Department of Pediatrics and Associate - Mark L. Batshaw
"Will appeal to both young adults with Down syndrome who read the successful stories of peers and to professionals who will gain knowledge and insight from the experts."
Emmy-Award winning writer for Sesame Street, parent of adult with Down syndrome, disability advocate - Emily Perl Kingsley
"At last ... a comprehensive and reader-friendly book about the new generation of adults with Down syndrome who have benefitted from home rearing, enhanced medical care and inclusive education."
Down Syndrome Program, Children's Hospital Boston - Allen C. Crocker
"This book is a delightful collection. There are sixteen personal tales by inspired citizens. Plus a dozen lessons that present the modern paradigm for adult life. It is a cultural victory."
Intellectual and Developmental Disabilities
"Addresses important issues in the lives of adults with Down syndrome…the essays are rare and moving life accounts that help tear down long-held stereotypes."
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Product Details

  • ISBN-13: 9781557668110
  • Publisher: Brookes, Paul H. Publishing Company
  • Publication date: 6/1/2006
  • Edition description: New Edition
  • Edition number: 1
  • Pages: 288
  • Product dimensions: 6.00 (w) x 9.00 (h) x 0.66 (d)

Meet the Author

Siegfried M. Pueschel, M.D., Ph.D., J.D., M.P.H., studied medicine in Germany and graduated from the Medical Academy of Düsseldorf in 1960. He then pursued his postgraduate studies at The Children's Hospital in Boston, Massachusetts, and the Montreal Children's Hospital in Quebec, Canada. In 1967, he earned a Master of Public Health degree from the Harvard School of Public Health in Boston, Massachusetts; in 1985, he was awarded a doctoral degree in developmental psychology from the University of Rhode Island in Kingston; and in 1996, he was granted a Doctor of Juris degree from the Southern New England School of Law in North Dartmouth, Massachusetts. From 1967 to 1975, Dr. Pueschel worked at the Developmental Evaluation Clinic of The Children's Hospital in Boston. There he became director of the first Down Syndrome Program and provided leadership to the PKU and Inborn Errors of Metabolism Program. In 1975, Dr. Pueschel was appointed director of the Child Development Center at Rhode Island Hospital in Providence. He continued to pursue his interests in clinical activities, research, and teaching in the fields of developmental disabilities, biochemical genetics, and chromosome abnormalities. Dr. Pueschel is certified by the American Board of Pediatrics and is a Diplomate of the American Board of Medical Genetics. His academic appointments include Lecturer in Pediatrics, Harvard Medical School, and Professor of Pediatrics, Brown University in Providence, Rhode Island.
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Table of Contents

1 Stars 1
2 My adult life up to now 5
3 Optimal health care and medical concerns 9
4 Life experiences 47
5 My life as a special tomato 51
6 Are psychiatric disorders of concern in adults with Down syndrome? 55
7 Positive behavior support process for adults with Down syndrome and challenging behavior 69
8 Self before sex : perspectives on support, self-esteem, and sexuality 105
9 Having a life 127
10 Person-centered and collaborative supports for college success 131
11 College years and future job 143
12 Work and vocational training for individuals with Down syndrome 145
13 The future is ours 165
14 Aiming high 169
15 Supporting adults to live in the community : beyond the continuum 173
16 Independent 183
17 Recreation through Special Olympics : sports, fitness, and well-being 187
18 Imagine the possibilities 197
19 Contribution and community life : fostering social relationships, community participation, and full inclusion 201
20 My life so far 225
21 Life is good 227
22 My story 229
23 Guardianship and its alternatives 235
24 Advocacy and adults with down syndrome 259
25 My life 277
26 My life on the "UP"-side of my Down syndrome disABILITY 279
27 My wonderful life 283
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