×

Uh-oh, it looks like your Internet Explorer is out of date.

For a better shopping experience, please upgrade now.

Assessing Genetic Risks: Implications for Health and Social Policy
     

Assessing Genetic Risks: Implications for Health and Social Policy

by National Academy Press, Arno G. Motulsky (Editor), Jane E. Fullerton (Editor), Neil A. Holtzman (Editor), Lori B. Andrews (Editor)
 

Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic

Overview

Raising hopes for disease treatment and prevention, but also the specter of discrimination and "designer genes," genetic testing is potentially one of the most socially explosive developments of our time. This book presents a current assessment of this rapidly evolving field, offering principles for actions and research and recommendations on key issues in genetic testing and screening.

Advantages of early genetic knowledge are balanced with issues associated with such knowledge: availability of treatment, privacy and discrimination, personal decisionmaking, public health objectives, cost, and more. Among the important issues covered:

  • Quality control in genetic testing.
  • Appropriate roles for public agencies, private health practitioners, and laboratories.
  • Value-neutral education and counseling for persons considering testing.
  • Use of test results in insurance, employment, and other settings.

Editorial Reviews

Doody's Review Service
Reviewer: Teresa A. Hadro, MS (Children's Memorial Hospital)
Description: This book offers recommendations regarding genetic testing, counseling, education and training, and the establishment and maintenance of laboratories. It also contains a broad discussion of the social, legal, and ethical implications of genetic testing and proposes an agenda for research and policy setting.
Purpose: This book will be most useful as a reference text for individuals wishing to explore the multiple and complex issues surrounding genetic testing and as a starting point for persons given the task of formulating public policy in areas involving genetics.
Audience: It is targeted at health care professionals and public policymakers interested in genetic testing. Potential readers should be warned that this book presumes a familiarity with basic human genetics and at least a nodding acquaintance with developments in genetics arising from the Human Genome Project.
Features: The book is divided into nine appropriately titled chapters that will aid both types of users in achieving their goals. The second chapter of the book attempts to explain some genetic concepts, but it is not a genetics primer and there are no illustrations.
Assessment: The recommendations presented in this book have a terseness, and the style of their presentation has an urgency that may make them appear more authoritative than they are. Not all who concern themselves with genetics and public policy agree with the opinions expressed in this book. A July 1994 statement from the Joint Committee on Professional Practice of the American College of Medical Genetics points out that the recommendations in this book seek to resolve problems in genetic testing perceived by its authors and that the solutions are somewhat utopian and inconsistent, in varying degrees, with practical realities or well-established practices. This book makes a significant, but not definitive, contribution to the formulation of public policy regarding genetic testing. It should be part of library collections on this topic, but it is unlikely to be useful as other than a reference text.
3 Stars from Doody
Teresa A. Hadro
This book offers recommendations regarding genetic testing, counseling, education and training, and the establishment and maintenance of laboratories. It also contains a broad discussion of the social, legal, and ethical implications of genetic testing and proposes an agenda for research and policy setting. This book will be most useful as a reference text for individuals wishing to explore the multiple and complex issues surrounding genetic testing and as a starting point for persons given the task of formulating public policy in areas involving genetics. It is targeted at health care professionals and public policymakers interested in genetic testing. Potential readers should be warned that this book presumes a familiarity with basic human genetics and at least a nodding acquaintance with developments in genetics arising from the Human Genome Project. The book is divided into nine appropriately titled chapters that will aid both types of users in achieving their goals. The second chapter of the book attempts to explain some genetic concepts, but it is not a genetics primer and there are no illustrations. The recommendations presented in this book have a terseness, and the style of their presentation has an urgency that may make them appear more authoritative than they are. Not all who concern themselves with genetics and public policy agree with the opinions expressed in this book. A July 1994 statement from the Joint Committee on Professional Practice of the American College of Medical Genetics points out that the recommendations in this book seek to resolve problems in genetic testing perceived by its authors and that the solutions are somewhat utopian and inconsistent, in varyingdegrees, with practical realities or well-established practices. This book makes a significant, but not definitive, contribution to the formulation of public policy regarding genetic testing. It should be part of library collections on this topic, but it is unlikely to be useful as other than a reference text.
Booknews
Presents principles for research and policy recommendations on key issues in genetic testing and screening, addressing topics such as quality control in genetic testing, insurance discrimination, financing, confidentiality, and appropriate roles for public agencies, private health practitioners, and research centers. Annotation c. Book News, Inc., Portland, OR (booknews.com)

Product Details

ISBN-13:
9780309047982
Publisher:
National Academies Press
Publication date:
03/01/1994
Pages:
352
Product dimensions:
6.00(w) x 9.00(h) x 1.14(d)

Customer Reviews

Average Review:

Post to your social network

     

Most Helpful Customer Reviews

See all customer reviews