Beyond Consent: Seeking Justice in Research / Edition 1

Beyond Consent: Seeking Justice in Research / Edition 1

by Jeffrey Kahn
     
 

Patients with cancer and AIDS now clamor for access to clinical trials. Federal policies governing research that once emphasized protecting subjects from dangerous research now promote access to clinical research. Have claims about justice and access to the benefits of research eclipsed concerns about consent and protection from risks? How can we make good and fair… See more details below

Overview

Patients with cancer and AIDS now clamor for access to clinical trials. Federal policies governing research that once emphasized protecting subjects from dangerous research now promote access to clinical research. Have claims about justice and access to the benefits of research eclipsed concerns about consent and protection from risks? How can we make good and fair decisions about the selection of subjects and other questions of justice in research?

Beyond Consent examines the concept of justice and its application to human subject research through the different lenses of important research populations: children, the vulnerable sick, captive populations, women, people of color, and subjects in international settings. To set the stage for this examination, an introductory chapter addresses the evolution of research policies. After a look at specific subject populations, the authors discuss the concept of justice for research with human subjects in the future and analyze justice throughout the research enterprise.

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Product Details

ISBN-13:
9780195113532
Publisher:
Oxford University Press, USA
Publication date:
08/28/1996
Edition description:
New Edition
Pages:
208
Product dimensions:
6.30(w) x 9.30(h) x 0.90(d)

Table of Contents

1. Changing Claims About Justice in Research: An Introduction and Overview, Jeffrey Kahn, Anna Mastroianni (both at the University of Minnesota), Jeremy Sugarman (Duke University)
2. The Evolving Story of Justice in Federal Research Policy, Charles R. McCarthy (Georgetown University)
3. Research on the Vulnerable Sick, Baruch Brody (Baylor College of Medicine)
4. Children as Research Subjects, Robert M. Nelson (Medical College of Wisconsin)
5. Gender and Research, Nancy Kass (Johns Hopkins University)
6. Race, Justice and Research, Patricia A. King (Georgetown University)
7. Convenient and Captive Populations, Jonathan D. Moreno (University of Virginia)
8. Justice in International Research, Ruth Macklin (Albert Einstein College of Medicine)
9. Theories of Justice in the Context of Research, Madison Powers (Georgetown University)
10. Implementing Justice in a Changing Research Environment, Jeffrey Kahn, Anna Mastroianni, Jeremy Sugarman

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