×

Uh-oh, it looks like your Internet Explorer is out of date.

For a better shopping experience, please upgrade now.

Privileged Presence: Personal Stories of Connections in Health Care
  • Alternative view 1 of Privileged Presence: Personal Stories of Connections in Health Care
  • Alternative view 2 of Privileged Presence: Personal Stories of Connections in Health Care
     

Privileged Presence: Personal Stories of Connections in Health Care

by Bev Johnson
 

See All Formats & Editions

ISBN-10: 0923521968

ISBN-13: 9780923521967

Pub. Date: 08/28/2006

Publisher: Bull Publishing Company

Winner of:
2015 Book of the Year Award, American Journal of Nursing

Privileged Presence is a collection of more than 50 stories that capture both the medical and emotional aspects of the health care experience through tales from those who have been there, and offers powerful messages about the essential ingredients of “good

Overview

Winner of:
2015 Book of the Year Award, American Journal of Nursing

Privileged Presence is a collection of more than 50 stories that capture both the medical and emotional aspects of the health care experience through tales from those who have been there, and offers powerful messages about the essential ingredients of “good” health care: respect, compassion, collaboration, open and honest communication, family involvement, and flexibility and responsiveness to individuals and their needs. This updated second edition uses real-world experiences recounted by patients and their families, nurses, doctors, and other health care professionals to illustrate what works and what doesn’t and what increases or diminishes people’s sense of confidence and well-being.

Product Details

ISBN-13:
9780923521967
Publisher:
Bull Publishing Company
Publication date:
08/28/2006
Edition description:
Older Edition
Pages:
224
Product dimensions:
6.00(w) x 9.00(h) x 0.65(d)

Table of Contents

Dedication viii

Acknowledgments ix

Foreword xi

Introduction 1

What Is Privileged Presence? 3

Why This Book? 4

What Matters in Health Care? 6

Why Stories? 7

Why These Stories? 9

Who Is This Book for? 10

As Unique as Snowflakes: Responding to Individuals 13

I Am Not a Patella 15

Aunt Mary 18

Respect for Dignity 20

Friends in Low Places 21

Who Will Walk the Dog? 25

Unriddling the Riddle 26

The Walk of Honor 29

Security Equals Safety with Sensitivity 32

When Life Is Threatened: The Importance of Support 39

Death-Life 41

Flying Blind in a Frightening World 46

Living the Opposites 54

The Journey of the Green Elephant 60

I Needed a Guide 72

Rise & Shine 75

A Profoundly Isolating Experience 78

His Name Means "Rise above the Storm" 88

Natural Allies: Partnerships in Care 97

We Are Not Visitors in Her Life 99

Something's Wrong-Please Listen to Me! 101

That's What We're Here For 110

When the Brain Is Broken 112

It Takes a Team 120

Investing in Information 128

It Just Comes Naturally 129

Awash in Disappointment 134

Choosing a Doctor 142

Mama Carmela 144

More than Words: Feeling Heard and Being Valued 151

A Triple Win 153

Surgical Suspense on Sundays 155

The Healing Effect of Listening 158

Tattoo It on Our Hearts 160

An Enormous Burden Is Lifted 164

Where's the Headache? 168

I'm the Full-Time Tenant of This Body 169

The Value of Asking Questions 174

I Didn't Feel Heard 178

Being Together: The Power of Family 183

I Want My Children with Me 185

Smiles Tell the Story 191

Olivia's Story 192

It Was as Hard as It Gets: The Impact of a Global Crisis on Family-Centered Care 195

If Anyone Asks, You're Twelve-Year-Old Twins! 203

It's Not about Time: Small Moments and Lasting Memories 207

Everyday Gifts 209

When Loss Is Suppressed or Acknowledged 211

Simple Sentences 214

Making the Unbearable Bearable 216

She Sang Him His Life 230

The Magic of Music 231

Thanks for the Good Scats 233

Within a Single Day 234

Our Last Father's Day 236

Hope for the Future: Passion for the Possible 241

Learning from Tragedy 243

The Capacity to Do Good 247

Finding Meaning in Chaos 252

It Doesn't Take Much 257

The White Coat 261

When the World Turns Upside Down: A Doctor Experiences Being a Patient 267

The Other Side of the Bed 273

Behind a Locked Door 278

Creating a Culture 283

Reflections 291

Different Stories, Similar Echoes 293

To Fix, Help, or Serve 296

When One Is Overwhelmed 297

The Intensity of Memories 298

Moving On 299

Building the Momentum for Change 301

Leading the Way: Key Organizations Committed to Developing Meaningful Partnerships with Patients and Families and Improving the Experience of Care 303

Institute for Patient- and Family-Centered Care 303

The Schwartz Center for Compassionate Healthcare 305

Canadian Foundation for Healthcare Improvement 307

National Partnership for Women & Families 307

Other Organizations Contributing to the Momentum for Change 309

Useful Tools for Promoting Change 319

Patient- and Family-Centered Care: Definition and Core Concepts 319

A Call for a More Compassionate HealthcareSystem 321

Partners in Care-Conversation Starters: A Tool to Facilitate Discussion 325

Key Questions to Ask 327

Better Together: Partnering with Families Organizational Self-Assessment Survey 329

How to Conduct a "Walk-About" from the Patient and Family Perspective 332

Educating Health Care Professionals 336

Sharing Personal and Professional Stories 339

Selected Bibliographies 341

Furthering the Process of Change 342

Stories and Storytelling 347

Index 353

About the Authors 363

Customer Reviews

Average Review:

Post to your social network

     

Most Helpful Customer Reviews

See all customer reviews