The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son
  • Alternative view 1 of The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son
  • Alternative view 2 of The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son

The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son

4.2 8
by Ian Brown
     
 

View All Available Formats & Editions

ISBN-10: 0312671830

ISBN-13: 9780312671839

Pub. Date: 04/26/2011

Publisher: St. Martin's Press

“[A]n intimate glimpse into the life of a family that cares around the clock for a disabled child, that gets so close to the love and despair, and the complex questions the life of such a child raises...It is a beautiful book, heartfelt and profound, warm and wise.”

           

Overview

“[A]n intimate glimpse into the life of a family that cares around the clock for a disabled child, that gets so close to the love and despair, and the complex questions the life of such a child raises...It is a beautiful book, heartfelt and profound, warm and wise.”

                                     —Jane Bernstein, author of Loving Rachel and Rachel in the World

Ian Brown’s son Walker is one of only about 300 people worldwide diagnosed with cardiofaciocutaneous (CFC) syndrome—an extremely rare genetic mutation that results in unusual facial appearance, the inability to speak, and a compulsion to hit himself constantly. At age thirteen, he is mentally and developmentally between one and three years old and will need constant care for the rest of his life.

Brown travels the globe, meeting with genetic scientists and neurologists as well as parents, to solve the questions Walker’s doctors can’t answer. In his journey, he offers an insightful critique of society’s assumptions about the disabled, and he discovers a connected community of families living with this illness. As Brown gradually lets go of his self-blame and hope for a cure, he learns to accept the Walker he loves, just as he is.

Honest, intelligent, and deeply moving, The Boy in the Moon explores the value of a single human life.

Product Details

ISBN-13:
9780312671839
Publisher:
St. Martin's Press
Publication date:
04/26/2011
Pages:
304
Product dimensions:
5.60(w) x 8.50(h) x 1.07(d)

Customer Reviews

Average Review:

Write a Review

and post it to your social network

     

Most Helpful Customer Reviews

See all customer reviews >

The Boy in the Moon: A Father's Journey to Understand His Extraordinary Son 4.3 out of 5 based on 0 ratings. 8 reviews.
Anonymous More than 1 year ago
Anonymous More than 1 year ago
Anonymous More than 1 year ago
Anonymous More than 1 year ago
Anonymous More than 1 year ago
Anonymous More than 1 year ago
Anonymous More than 1 year ago
Anonymous More than 1 year ago