Breath of Life: The Role of the Ventilator in Managing Life-Threatening Illnesses

Breath of Life: The Role of the Ventilator in Managing Life-Threatening Illnesses

by Irene S. Gilgoff, Illness and Loss, The Editors of the American Institute of Life-Threatening
     
 

ISBN-10: 081083488X

ISBN-13: 9780810834880

Pub. Date: 09/15/2001

Publisher: The Scarecrow Press, Inc.

Approximately 90 percent of deaths from Duchenne Muscular Dystrophy (DMD) are the result of chronic respiratory failure and/or concurrent respiratory infection. Respiratory failure in neuromuscular diseases is of the restrictive type, resulting from progressive weakness of breathing muscles. The ventilator simply replaces or augments the failed bellows mechanism of…  See more details below

Overview

Approximately 90 percent of deaths from Duchenne Muscular Dystrophy (DMD) are the result of chronic respiratory failure and/or concurrent respiratory infection. Respiratory failure in neuromuscular diseases is of the restrictive type, resulting from progressive weakness of breathing muscles. The ventilator simply replaces or augments the failed bellows mechanism of the respiratory system. The use of assisted ventilation by individuals with Duchenne Muscular Dystrophy has been in effect for the past 25 to 30 years. As in other management issues of DMD, there is, and probably will continue to be, recurrent debate regarding the cost/benefit ratio of various treatment regimes. The authors come to this issue from an emotional, psychosocial, and ethical perspective, as well as a financial point of view. A necessary volume in any library's consumer health collection.

Product Details

ISBN-13:
9780810834880
Publisher:
The Scarecrow Press, Inc.
Publication date:
09/15/2001
Pages:
288
Product dimensions:
6.20(w) x 9.36(h) x 0.94(d)

Table of Contents

Acknowledgment
List of Contributors
1A Review of Ventilator Use in Duchenne's Muscular Dystrophy1
2Life with Dignity - Death with Dignity11
3Cardiac Function in Duchenne's Muscular Dystrophy: Use of Radionuclide Ventriculography in Initial Evaluation, Progress, and Stress Testing15
4Living and Dying with Ventilator-Dependent Quadriplegia21
5Images of Life and Death33
6The Ventilator: Psychosocial and Medical Aspects45
7The Impact of Ventilation Technology: Contrasting Consumer and Professional Perspectives53
8Automony, Perception, and Empowerment: Issues in Achieving Quality of Life for Ventilator-Dependent Individuals65
9Discontinuing Ventilator Support at Home: Clinical Experience with Amyotrophic Lateral Sclerosis in California71
10Description of Self85
11Ethical Issues Related to the Special Care Unit87
12Case History Report - The Atypical Patient: An Adolescent with ALS in an ICU93
13Use of Long-Term Assisted Mechanical Ventilation in Patients with Spinal Muscular Atrophy99
14Psychosocial Stresses and Coping Resources in Families Caring for Ventilator-Assisted Children at Home107
15Ethical Problems Concerning Treatment of and Attitude toward Chronic Respiratory Insufficiency in Muscular Dystrophy115
16Chronic Ventilator Support at Home for Infants and Children with Ventilatory Muscle Weakness121
17Discontinuation of Ventilatory Support: A Personal Perspective129
18The Ventilator - A Way to a Positive Life133
19A 35-Year Perspective on the Utilization of Mechanical Ventilation As Experienced by the Author137
20Options for Living and Dying in Amyotrophic Lateral Sclerosis147
21Impact on the Family153
22Ventilator Users, Home Care, and Independent Living: A Historical Perspective161
23Prolongation of Life Spans of Duchenne's Muscular Dystrophy Patients in the Hospital Care Program in Japan167
24Cardiovascular Abnormalities in Duchenne's Muscular Dystrophy171
25A Historical Perspective on the Use of Noninvasive Ventilatory Support Alternatives185
26An Astronaut on Earth203
27Ventilating Feelings215
28Repression, Regression, and Respiration: Ventilators and the Post-Polio Patient221
29Regional Home Care Program for Ventilator-Dependent Patients: Report of the First Five Years233
30Occupational Therapy and the Ventilator-Dependent Patient: The Impact on Psychosocial and Motoric Aspects of Activities of Daily Living243
31Going Home on a Ventilator: A Nursing Model247
32Technologically Dependent Children: Their Effect on the Hospital System253

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