A Caregiver's Guide to Lewy Body Dementia

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Overview

Although Lewy body dementia is the second leading cause of degenerative dementia in the elderly, it is not well known or understood and is often confused with Alzheimer's or Parkinson's disease. The Caregiver's Guide to Lewy Body Dementia is the first book to present a thorough picture of what Lewy body dementia really is. Written in everyday language, and filled with personal examples that connect to the readers' own experiences, it includes quick facts and caregiving tips for easy reference, a comprehensive ...

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A Caregiver's Guide to Lewy Body Dementia

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Overview

Although Lewy body dementia is the second leading cause of degenerative dementia in the elderly, it is not well known or understood and is often confused with Alzheimer's or Parkinson's disease. The Caregiver's Guide to Lewy Body Dementia is the first book to present a thorough picture of what Lewy body dementia really is. Written in everyday language, and filled with personal examples that connect to the readers' own experiences, it includes quick facts and caregiving tips for easy reference, a comprehensive resource guide, glossary, and a list of acronyms. This is the ideal resource for caregivers, family members, and friends seeking to understand Lewy body dementia.

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Editorial Reviews

Doody's Review Service
Reviewer: Natalya V Shneyder, MD (Mayo Clinic Arizona)
Description: This is a comprehensive description of problems and some possible solutions for people who are involved in the care of patients or loved ones with Lewy body dementia (LBD).
Purpose: This book aims to educate and raise awareness about LBD and issues that patients and caregivers may encounter during this rough journey.
Audience: It is a valuable resource for caregivers, which include spouses and children as well as nurses and nurses' aides caring for people with dementia. Family doctors and neurologists also will benefit, as it uncovers a lot of questions that they should address during visits with these patients.
Features: The book includes recommendations for dealing with cognitive, behavioral, general health, and legal issues in patients with LBD, as well as tips for self-maintenance during the difficult times of caring for a loved one with LBD.
Assessment: This is a great resource for information about dealing with LBD, although it is not a substitute for physician advice on specific care issues, especially medications.
From The Critics
Reviewer: Natalya V Shneyder, MD(Mayo Clinic Arizona)
Description: This is a comprehensive description of problems and some possible solutions for people who are involved in the care of patients or loved ones with Lewy body dementia (LBD).
Purpose: This book aims to educate and raise awareness about LBD and issues that patients and caregivers may encounter during this rough journey.
Audience: It is a valuable resource for caregivers, which include spouses and children as well as nurses and nurses' aides caring for people with dementia. Family doctors and neurologists also will benefit, as it uncovers a lot of questions that they should address during visits with these patients.
Features: The book includes recommendations for dealing with cognitive, behavioral, general health, and legal issues in patients with LBD, as well as tips for self-maintenance during the difficult times of caring for a loved one with LBD.
Assessment: This is a great resource for information about dealing with LBD, although it is not a substitute for physician advice on specific care issues, especially medications.
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Product Details

  • ISBN-13: 9781932603934
  • Publisher: Demos Medical Publishing, LLC
  • Publication date: 10/20/2010
  • Edition number: 1
  • Pages: 312
  • Sales rank: 238,711
  • Product dimensions: 6.00 (w) x 8.90 (h) x 0.90 (d)

Meet the Author

Helen Buell Whitworth is a retired nurse, an educator and a writer. She served the Lewy Body Dementia Association in a number of positions including Volunteer Coordinator and was named the 2007 LBDA Volunteer of the Year. Today Helen and her husband Jim operate The Whitworths of Arizona and sell Lewy Body Dementia Training Kits to long-term care and memory care facilities.

James Whitworth's first wife was diagnosed with Lewy Body Dementia. Propelled by the lack of information on the disease, he co-founded the now nationally known Lewy Body Dementia Association and served as its first president. Today Jim and his wife Helen operate The Whitworths of Arizona and sell Lewy Body Dementia Training Kits to long-term care and memory care facilities.

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Table of Contents

Introduction ix

1 What Is Lewy Body Dementia" 1

2 How Do I Find a Specialist and Get a Diagnosis I Can Trust" 13

3 Slowing the Progress of Dementia 25

4 Coping With Cognitive Symptoms 33

5 Coping With Motor Dysfunctions 61

6 Sleep Disorders and Lewy Body Dementia 69

7 What Are Perceptual Dysfunctions" 81

8 Drug Sensitivities and Adverse Reactions 93

9 Managing Acting-Out Behaviors 119

10 Coping With Autonomic Nervous System Dysfunctions 139

11 Coping With Urinary Tract Dysfunctions 161

12 How Do I Build a Health Care Team" 169

13 Managing Legal and Financial Issues 197

14 End-of-Life Issues 211

15 How Do I Take Care of Myself" 223

Glossary 237

Acronyms 257

Online Resources 263

References 265

Index 273

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Customer Reviews

Average Rating 3.5
( 7 )
Rating Distribution

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Sort by: Showing all of 8 Customer Reviews
  • Anonymous

    Posted December 2, 2012

    Highly Recommend.

    Lewy Body dementia has many differences (and therefore special needs) from alzheimer's dementia. This book provides loads of info on LBD behaviors, caregiving, medication, thereby offering the most important ingredient: understanding what the LBD person is experiencing. Offers good tips for caregivers.

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  • Posted April 19, 2012

    Excellent and helpful

    This book is worth its weight in gold. Lots of useful information, a reassuring tone, and lots of anecdotes about different aspects of the disease. The material about drugs was invaluable; the Whitworths caution that many drugs routinely used for Alzheimer's (and for other ailments such as incontinence) will make a Lewy Body patient more confused. My mother-in-law has found this book helpful in caring for her husband, and I've found the book helpful in caring for my mother-in-law, whose role as caregiver is exhausting her. My thanks to the Whitworths for writing this book.

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  • Anonymous

    Posted April 13, 2012

    I was overall, very disappointed with this book, after reading t

    I was overall, very disappointed with this book, after reading the glowing reviews. It left me with many questions that I had to look elsewhere to answer. I was surprised, because this is a lengthy book. However, it seems to be padded with personal stories. The resources section is also lacking with recommendations for further reading (which would have been helpful, considering the amount of questions I had). It just wasn't worth the money.

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  • Posted November 15, 2011

    OK, but missing important information

    After reading rave reviews, I was a little disappointed with the information lacking in this book -- especially the resources and references section. I would have expected a "what to do next" section, but found I had to resort to Google to find my answers. Diappointing.

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  • Posted December 19, 2010

    more from this reviewer

    A personal and thorough guide

    This guide is an excellent resource for caregivers of people with Lewy Body Dementia (and may even be helpful to people whose loved ones have Parkinson's and who are concerned about Lewy Body Dementia). The nice thing about this guide is that it is thorough-it discusses many issues that a caregiver may encounter such as how to find a doctor, drugs to avoid, how to deal with "acting out," and other medical issues. The target audience is the family member or loved one of the patient, but the guide would also be helpful to nurses and other caregivers. The guide keeps the discussion casual and personal by inserting comments by other caregivers.

    One downside of this guide is that it doesn't explain the biology behind Lewy Body Dementia, which is something many health care guides do. This will not be a problem to most of the target audience, however, since it focuses on things that are more important to them. Another downside is that although it is written by experts in Lewy Body Dementia (and therefore has a lot of useful information), it is not written by physicians. Therefore, the risk factors and comments about drugs definitely need to be discussed with your doctor. Again, this "downside" is not going to be a problem for most of the target audience, since the book is more personal by merit of being written by non-physicians. Therefore, I highly recommend this book to caregivers but caution them to supplement it with information from medical professionals.

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  • Anonymous

    Posted August 22, 2011

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  • Anonymous

    Posted June 2, 2011

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  • Anonymous

    Posted October 20, 2011

    No text was provided for this review.

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