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This second edition of the most complete parent guide available, features detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and bone sarcomas. In addition, it offers day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues ...
This second edition of the most complete parent guide available, features detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and bone sarcomas. In addition, it offers day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues of death and bereavement.
Woven among the medical details and the practical advice are the voices of parents and children who have lived with cancer and its treatments. As many parents have already found, advice from "veteran" parents can be a lifeline. Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel can only improve the quality of life for the whole family suffering along with their child. Having parents describe their own emotional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone.
Parents who read this book will encounter medical facts simply explained, advice to ease their daily lives, and tools to be strong advocates for their child. It also contains a personal treatment summary and long-term follow-up guide for your child to keep as a permanent record.
"...a compassionate and empathetic book written by one woman whose own child died from cancer, and another whose daughter survived leukemia...takes parents & caregivers through the pertinent physical & emotional issues."
|2||Coping with procedures||13|
|3||Family and Friends||41|
|4||Forming a Partnership with the Medical Team||64|
|7||Surviving Your Child's Hospitalization||106|
|10||Soft Tissue Sarcomas||137|
|14||Sources of Support||194|
|16||Common Side Effects of Chemotherapy||245|
|19||Bone Marrow and Stem Cell Transplantation||290|
|20||Record Keeping and Finances||305|
|24||Feelings, Communication, and Behavior||380|
|25||End of Treatment and Beyond||402|
|27||Death and Bereavement||426|
|A||Photographs of Our Children||451|
|B||Blood Counts and What They Mean||458|
|C: Resource Organizations||466|
|D: Books and Online Sites||477|
Posted March 3, 2000
Candlelighters Childhood Cancer Foundation fully endorses this book and places it on the 'must have resource list' for any parent whose child is diagnosed with any type of solid tumor cancer. This comprehensive guide provides extensive information on the diagnosis, prognosis, procedures, treatment and side effects of neuroblastoma, Wilms Tumor, retinoblastoma, rhabdomyosarcoma and bone sarcomas. Included is a thorough explanation of the various chemotherapy drugs used in treatment and their common side effects. Detailed information on radiation therapy, surgery and bone marrow transplantation is also included. Additionally, the book provides practical advice to families on related issues such as nutrition, returning to school and the end of treatment. The book addresses the emotional impact that such a cancer diagnosis places upon the child, their family and friends and offers practical insight on how to cope. A comprehensive list of childhood cancer websites, support organizations and additional reading materials is listed at the back of the book. The authors'extensive interviewing of families who have 'walked down this road' offers hope to those whose 'journey' has just begun.
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