Childhood Cancer: A Parent's Guide to Solid Tumor Cancers


Childhood Cancer, the most complete parent guide available, includes detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and bone sarcomas. In addition, it offers day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues of ...

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Childhood Cancer: A Parent's Guide to Solid Tumor Cancers

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Childhood Cancer, the most complete parent guide available, includes detailed and precise medical information about solid tumor childhood cancers, including neuroblastoma, Wilms tumor, liver tumors, soft tissue sarcomas, and bone sarcomas. In addition, it offers day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues of death and bereavement.

Woven among the medical details and the practical advice are the voices of parents and children who have lived with cancer and its treatments. As many parents have already found, advice from "veteran" parents can be a lifeline.

Obtaining a basic understanding of topics such as medical terminology, how drugs work, common side effects of chemotherapy, and how to work more effectively with medical personnel can only improve the quality of life for the whole family suffering along with their child. Having parents describe their own emotional ups and downs, how they coped, and how they molded their family life around hospitalizations can be a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages can make one feel less alone.

Parents who read this book will encounter medical facts simply explained, advice to ease their daily lives, and tools to be strong advocates for their child.

"...a compassionate and empathetic book written by one woman whose own child died from cancer, and another whose daughter survived leukemia...takes parents & caregivers through the pertinent physical & emotional issues."

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Editorial Reviews

From The Critics
This second edition of a reference for families of children with solid tumor cancers is updated with new information on treatments, including stem cell transplants, new chemotherapy drugs, and recent clinical trials, and contains updated resources for medical information, emotional support, and financial assistance. There is practical advice on coping with medical procedures, hospitalization, and school, family, work, and financial issues, and different types of treatment and side effects are explained. A pull-out medical record-keeper is included. The authors are parents of children diagnosed with cancer. Annotation c. Book News, Inc., Portland, OR
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Product Details

  • ISBN-13: 9781941089156
  • Publisher: Childhood Cancer Guides
  • Publication date: 7/1/2002
  • Edition description: Second Edition, Second edition
  • Edition number: 2
  • Pages: 537
  • Sales rank: 524,996
  • Product dimensions: 6.90 (w) x 9.00 (h) x 1.00 (d)

Meet the Author

Honna Janes-Hodder's youngest son Matthew was diagnosed with neuroblastoma on his third birthday, and passed away at age seven on September 3, 1997. She loved, cared for, and advocated for Matthew during his long struggle with cancer. She lives with her husband, 14-year-old son, and 11-year-old daughter in beautiful Paradise, Newfoundland, and Labrador, Canada. Honna is founder of ChildCan, The Childhood Cancer Research Association of Newfoundland and Labrador, Inc., and president of the International Pediatric Cancer Alliance, Inc. Honna manages most of the pediatric discussion groups for ACOR, the Association of Cancer Online Resources, Inc. ACOR, based in New York, provides accurate and timely medical support and information for all those affected by cancer, in both the pediatric and adult communities. She is the administrator of five online discussion groups, providing support and reliable information to families dealing with childhood cancers globally. In addition, Honna sits on the Public Issues Committee for the Newfoundland and Labrador division of the Canadian Cancer Society and writes a regular health section for a national newspaper in Canada. Honna spends a great deal of time advocating on behalf of children diagnosed with cancer. She does not view this as a job, but as an important part of her identity. Honna attends Memorial University of Newfoundland as a part-time student when time permits, working toward a Ph.D. in biochemistry. Honna and Nancy were two of the first five people appointed as patient advocates to the Children's Cancer Group (CCG), a research organization consisting of pediatric cancer specialists from Canada, the United States, and Australia. They attend CCG meetings and facilitate communication between CCG investigators and the patient community.

Nancy Keene has written or co-authored five health books for families. She is co-creator of the Patient-Centered Guides series and Editor of pediatric titles. Nancy is a tireless advocate for childrens health issues, including pediatric clinical trials, childhood cancer, late effects of childhood cancer treatments, pediatric pain relief, and emotional support for families. She frequently speaks for professional and parent groups and works on/with national pediatric advocacy organizations and committees.

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Table of Contents

1 Diagnosis 1
2 Coping with procedures 13
3 Family and Friends 41
4 Forming a Partnership with the Medical Team 64
5 Clinical Trials 80
6 Catheters 91
7 Surviving Your Child's Hospitalization 106
8 Neuroblastoma 113
9 Wilms Tumor 126
10 Soft Tissue Sarcomas 137
11 Bone Sarcomas 152
12 Liver Cancers 170
13 Retinoblastoma 181
14 Sources of Support 194
15 Chemotherapy 210
16 Common Side Effects of Chemotherapy 245
17 Radiation 266
18 Surgery 280
19 Bone Marrow and Stem Cell Transplantation 290
20 Record Keeping and Finances 305
21 Nutrition 321
22 School 339
23 Siblings 361
24 Feelings, Communication, and Behavior 380
25 End of Treatment and Beyond 402
26 Relapse 418
27 Death and Bereavement 426
A Photographs of Our Children 451
B Blood Counts and What They Mean 458
C: Resource Organizations 466
D: Books and Online Sites 477
Glossary 493
Index 507
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Sort by: Showing 1 Customer Reviews
  • Anonymous

    Posted March 3, 2000

    Childhood Cancer: A Paren'ts Guide to Solid Tumor Cancers

    Candlelighters Childhood Cancer Foundation fully endorses this book and places it on the 'must have resource list' for any parent whose child is diagnosed with any type of solid tumor cancer. This comprehensive guide provides extensive information on the diagnosis, prognosis, procedures, treatment and side effects of neuroblastoma, Wilms Tumor, retinoblastoma, rhabdomyosarcoma and bone sarcomas. Included is a thorough explanation of the various chemotherapy drugs used in treatment and their common side effects. Detailed information on radiation therapy, surgery and bone marrow transplantation is also included. Additionally, the book provides practical advice to families on related issues such as nutrition, returning to school and the end of treatment. The book addresses the emotional impact that such a cancer diagnosis places upon the child, their family and friends and offers practical insight on how to cope. A comprehensive list of childhood cancer websites, support organizations and additional reading materials is listed at the back of the book. The authors'extensive interviewing of families who have 'walked down this road' offers hope to those whose 'journey' has just begun.

    1 out of 1 people found this review helpful.

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