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This most complete parent guide covers not only detailed and precise medical information about leukemia and the various treatment options, but also day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues of death and bereavement. Woven among the medical details and the practical advice are the voices of more than 150 parents and children who have lived with...
This most complete parent guide covers not only detailed and precise medical information about leukemia and the various treatment options, but also day-to-day practical advice on how to cope with procedures, hospitalization, family and friends, school, social and financial issues, communication, feelings, and, if therapy is not successful, the difficult issues of death and bereavement. Woven among the medical details and the practical advice are the voices of more than 150 parents and children who have lived with leukemia and its treatments. As many parents have already found, advice from "veteran" parents can be a lifeline.
Obtaining a basic understanding of topics such as medical terminology, common side effects of chemotherapy, and how to interpret blood counts can help improve quality of life for the whole family. Learning how to develop a partnership with your child's physician can vastly increase a family's peace of mind. Hearing parents describe their own emotional ups and downs, how they coped, and how they molded their family life around hospitalizations is a tremendous comfort. Just knowing that there are other kids on chemotherapy who refuse to eat anything but tacos or who have frequent rages makes one feel less alone.
Parents who read this book will encounter medical facts simply explained, advice to ease their daily life, and tools to be a strong advocate for their child. This fourth edition contains significant updates to the information on treatments (including tailoring treatments to children's individual genetic profiles), chemotherapy drugs, stem cell transplants, coping with side effects, and resources. It also contains a personal treatment summary and long-term follow-up guide for your child to keep as a permanent record.
"...written by a mother whose daughter is a survivor of childhood leukemia...examinies the social ramifications of the disease and the emotional, clinical, and financial effects, as well."
|3||Coping with Procedures||41|
|5||Family and Friends||82|
|6||Forming a Partnership with the Medical Team||106|
|9||Sources of Support||153|
|11||Common Side Effects of Chemotherapy||210|
|13||Record-Keeping and Finances||251|
|17||Feelings, Communication, and Behavior||335|
|18||End of Treatment and Beyond||357|
|20||Stem Cell Transplantation||393|
|21||Death and Bereavement||421|
|App. A||Photographs of Our Children||449|
|App. B||Blood Counts and What They Mean||455|
|App. C: Resource Organizations||463|
|App. D: Books and Online Sites||476|
Posted October 12, 2013
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