Children, Families, and HIV/AIDS: Psychosocial and Therapeutic Issues

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This much-needed work is the first to combine a psychosocial perspective with in-depth clinical case examples that poignantly bring the issues to life. It describes in detail an array of modalities including family, individual, group treatment, as well as hypnotherapeutic techniques for non-pharmacologic pain management.

The volume presents a family-focused, culturally sensitive, and systems-coordinated approach for the provision of effective ...
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Overview

This much-needed work is the first to combine a psychosocial perspective with in-depth clinical case examples that poignantly bring the issues to life. It describes in detail an array of modalities including family, individual, group treatment, as well as hypnotherapeutic techniques for non-pharmacologic pain management.

The volume presents a family-focused, culturally sensitive, and systems-coordinated approach for the provision of effective service delivery and care to HIV/AIDS children and their families. Called the Multisystems HIV/AIDS Model, it offers a conceptual framework that orients the service provider to the medical, cultural, psychosocial, and mental health needs of HIV-infected infants, children, and adolescents; mothers and other relatives who are also infected with HIV/AIDS; and uninfected but nonetheless affected family members and other caretakers.

A valuable tool for practitioners of all health care disciplines, the book, thoroughly integrates the most up-to-date knowledge on:
* Epidemiological, medical, neurological, and
neurodevelopmental concerns
* Prevention and treatment strategies for children,
adolescents, women, and families
* Multisystemic case management
* Providing continuity of care
* Implementing school interventions
* Community HIV/AIDS education, prevention, and outreach
* Ethical, moral, and legal concerns
* Research and public policy issues

The AIDS epidemic has stimulated practitioners to quickly develop cultural competency when working with multiple ethnic and racial groups. A key component of this book is its clear explication of the needs of African American, Hispanic/Latino, and Haitianchildren and families who are coping with HIV/AIDS.

Issues surrounding death and bereavement are addressed with compassionate sensitivity in a chapter that describes how many of these families must interweave multigenerational loss with their ongoing lives. The book also examines reactions of professionals who work with the HIV/AIDS population, discussing their special needs and ways to deal with professional burnout.

Providing a model of comprehensive care based on the authors' frontline experiences, this volume is essential reading for a wide range of helping professionals--from psychologists, psychiatrists, social workers, and pastoral counselors to researchers, medical practitioners, nurses, teachers, and school personnel. Public health and agency administrators designing programs for children with HIV/AIDS and their families will find it an invaluable resource. Written in an accessible style, and featuring illuminating case examples that are ideal for initiating class discussion, the book also serves as an excellent text for advanced students in these fields.

The book contains black-and-white illustrations.

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Editorial Reviews

From the Publisher

"Finally, a book devoted to the needs of children and adolescents facing HIV/AIDS. The challenges for these families, particularly those of the inner city and minorities, have been shamefully neglected. Clearly written and comprehensive, this book provides an empowering systems framework. Boyd-Franklin, Steiner, Boland, and other contributing authors skillfully guide professionals to meet the complex medical, cultural, and psychosocial needs of these families. This outstanding book is a must for all health and mental health professionals working with HIV/AIDS." --John S. Rolland, MD, Clinical Associate Professor of Psychiatry & Co-Director, Center for Family Health, University of Chicago, Author of Families, Illness, and Disability; An Integrative Treatment Model

"The authors have detailed a comprehensive blueprint for caring for children and families with AIDS. In addition to placing the disease and its manifestations in a broad epidemiological and psychosocial context, they and their collaborators have constructed a well crafted approach to developing a multidisciplinary approach to the care of infants, children, adolescents, women, and families. From the supportive care of individuals to the development of support groups for children or care providers, the authors offer guidance based on models that have worked. Family-centered care is important for optimal health care. Although it is a necessity for children with AIDS, the principles of family-centered care are applicable to many other diseases and the principles offered in Children, Families and HIV/AIDS: Psychosocial and Psychotherapeutic Issues are relevant to all who care for children with serious disease." --Philip A. Pizzo, MD, Chief of Pediatrics, Head, Infectious Disease Section, National Cancer Institute, Professor of Pediatrics, Uniformed Services University of the Health Sciences

"This book is another important addition to the growing but still young body of literature about children and families affected by HIV disease and AIDS. A great strength is its interdisciplinary perspective and the expertise of its authors. I highly recommend it." --Felissa Lashley Cohen, RN, PhD, FAAN, Co-editor, Women, Children and HIV/AIDS and Head, Dept. of Medical-Surgical Nursing, University of Illinois at Chicago

"Informed and informative, touching, comprehensive, this is an extraordinary book--a major addition to our literature on a difficult and timely topic. The book is truly a tour de force, combining epidemiologic and research knowledge with down to earth practical suggestions of how to be helpful to families in an everyday way. The commitment of the authors to their work and to the lives of these families is clear. Their dedication as researchers, authors, and clinicians bears witness to the courage of these children and to the strength of their caregivers and families." --Monica McGoldrick, ACSW, PhD, Director, The Family Institute of New Jersey

"....A very handy utilitarian resource that goes beyond most others in its attempts to educate all service providers who work with patients with HIV/AIDS. The authors' experience in working directly with families and children contributes significantly....This book can well serve as a beginning training text as well as an excellent resource guide." --Helene Rabinovitz, MSW in Smith College

"...A comprehensive overview of the issues involved in working with children and families with HIV disease....The volume covers a wide range of subjects and provides a wealth of valuable, practical information on an understudied and important topic...." --Rosalyn Benjamin Darling in Disability Studies Quarterly

Readings

"A comprehensive collection of uniformly well-written essays by a group of professionals dealing with HIV/AIDS-related issues in a variety of settings....Well edited, the individual pieces contain none of the contradictions and unnecessary overlap common to this kind of compilation."--Readings
Child and Family Behavior Therapy

"....Based on front-line experiences, the writing style is readily accessible and theoretically sound....Virtually all aspects of the problem are given due consideration....It is an excellent starting-off point for the serious researcher or clinical investigator and the public at large would also do well to make themselves familiar with its contents."--Child and Family Behavior Therapy
AIDS Book Review Journal

"The contributors have done an excellent job of presenting various perspectives that can help counselors and others in working with children and families...a highly recommended book for all libraries."--AIDS Book Review Journal
Doody's Review Service
Reviewer: Doreen Salina, PhD (Northwestern University Feinberg School of Medicine)
Description: This book is an ambitious effort to further develop a multisystems/multigenerational conceptual model for professionals involved in providing direct care to families impacted by HIV/AIDS. The book is divided into three sections that elucidate the medical, psychosocial, and treatment interventions for these families and attempts to weave these complex issues into a cohesive body of work.
Purpose: The book provides therapeutic interventions for HIV/AIDS impacted families in a multidimensional context. It includes specific techniques such as support groups and the use of hypnotherapy. It also addresses problems faced by both the professional and family caregiver.
Audience: It is written in clear and direct language suitable for both the direct service counselor and medical personnel. The references are recent, numerous, and appropriate, and the book extends its focus to caregivers and the problems they face when working with people with AIDS.
Features: The writers provide specific recommendations using a multisystems approach to HIV/AIDS as well as address the moral, legal, and ethical issues that may be encountered. The editors have provided a systems perspective that takes into account the burden of care and affective responses that both the family of origin and extended family often face.
Assessment: This book is a welcome addition to an area that is fraught with complex and interwoven problems related to HIV infection, and it places extended families and caregivers in an appropriate context. This book would be a welcome addition to any library, and I recommend it to individuals involved in the field of HIV/AIDS. It is very ambitious and it attempts to cover all aspects of the HIV/AIDS epidemic facing professional caregivers and families impacted by the disease. It is generally well written, with useful references that should be helpful for both professional and familial caregivers.
Doreen Salina
This book is an ambitious effort to further develop a multisystems/multigenerational conceptual model for professionals involved in providing direct care to families impacted by HIV/AIDS. The book is divided into three sections that elucidate the medical, psychosocial, and treatment interventions for these families and attempts to weave these complex issues into a cohesive body of work. The book provides therapeutic interventions for HIV/AIDS impacted families in a multidimensional context. It includes specific techniques such as support groups and the use of hypnotherapy. It also addresses problems faced by both the professional and family caregiver. It is written in clear and direct language suitable for both the direct service counselor and medical personnel. The references are recent, numerous, and appropriate, and the book extends its focus to caregivers and the problems they face when working with people with AIDS. The writers provide specific recommendations using a multisystems approach to HIV/AIDS as well as address the moral, legal, and ethical issues that may be encountered. The editors have provided a systems perspective that takes into account the burden of care and affective responses that both the family of origin and extended family often face. This book is a welcome addition to an area that is fraught with complex and interwoven problems related to HIV infection, and it places extended families and caregivers in an appropriate context. This book would be a welcome addition to any library, and I recommend it to individuals involved in the field of HIV/AIDS. It is very ambitious and it attempts to cover all aspects of the HIV/AIDS epidemic facing professional caregiversand families impacted by the disease. It is generally well written, with useful references that should be helpful for both professional and familial caregivers.

3 Stars from Doody
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Product Details

  • ISBN-13: 9780898625028
  • Publisher: Guilford Publications, Inc.
  • Publication date: 5/12/1995
  • Edition description: New Edition
  • Edition number: 1
  • Pages: 334
  • Product dimensions: 5.93 (w) x 8.93 (h) x 0.85 (d)

Meet the Author


Nancy Boyd-Franklin, Ph.D., is a Professor and teacher at Rutgers, State University of New Jersey, Graduate School of Applied and Professional Psychology For the last 6 years, she has been a consultant to the Children's Hospital AIDS Program (CHAP) and the National Pediatric HIV Resource Center in Newark, New Jersey. The author of the highly acclaimed Black Families in Therapy: A Multisystems Approach, she is a nationally recognized author on issues such as ethnicity, African American families, Family Therapy, and the psychosocial and treatment issues related to pediatric AIDS.

Gloria L. Steiner, Ed.D., is Clinical Associate Professor of Psychiatry at the University of Medicine and Dentistry of New Jersey. She was Director of Psychology Training in the Division of Child and Adolescent Psychiatry at the Community Mental Health Center, New Jersey Medical School, in Newark. She is a consultant to the National Pediatric HIV Resource Center. Dr. Steiner was formerly the Director of the New Jersey Center for Family Studies and is known as an expert in training mental health clinicians in the field of family therapy. In addition to having published papers in professional journals on aspects of child psychology she has given many presentations on topics related to children and families with HIV/AIDS.

Mary G. Boland, RN, MSN, Director, National Pediatric HIV Resource Center, and Co-Founder and Director of the AIDS Program at Children's Hospital of New Jersey, United Hospital Medical Center, Newark, New Jersey. She has authored numerous publications related to children and HIV/AIDS and has testified on the behalf of children with AIDS before the House of Representatives, the Presidential Commission on the HIV Epidemic and the Senate Finance Subcommittee on Social Security and Family Policy. Ms. Boland currently serves as Co-Chair of the Health Resources Services Administration Advisory Committee on AIDS. Ms. Boland is also an Associate in Pediatrics at the University of Medicine and Dentistry of New Jersey.

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Table of Contents


I. Introduction
1. Rationale and Overview of the Book, Steiner, Boyd-Franklin, and Boland
II. The Epidemiological and Medical Context
2. The Health Care Needs of Infants and Children: An Epidemiological Perspective, Boland and Oleske
3. Neurological and Neurodevelopmental Functioning in Pediatric HIV Infection, Hanna and Mintz
III. The Psychosocial Context: Psychosocial Issues for Different Groups
4. Cultural Sensitivity and Competence: African-American, Latino, and Haitian Families with HIV/AIDS, Boyd-Franklin, Alemán, Jean-Gilles, and Lewis
5. HIV-Relevant Issues in Adolescents, Bartlett, Keller, Eckholdt, and Schleiffer
6. Women and HIV/AIDS, Alemán, Kloser, Kreibick, Steiner, and Boyd-Franklin
IV. Therapeutic Approached with HIV-Infect Children and Their Families
7. Family Systems Interventions and Family Therapy, Boyd-Franklin, Alemán, Steiner, Drelich, and Norford
8. The HIV-Infected Child in Therapy, Pollock and Thompson
9. Nonpharmacological Pain Management for Children with HIV/AIDS: Working with Hypnotherapeutic Techniques, Torrence, Lewis, La Brie, and Czarniecki
10. Support Group for Children with HIV/AIDS, Gomez, Haiken, and Lewis
11. Caretakers' Support Group, Kreibick
12. Death and Dying/Bereavement and Mourning, Boyd-Franklin, Drelich, Schwolsky, and Fitch
V. Service Deliverers and Systems Issues
13. A Multisystems Approach to Service Delivery for HIV/AIDS Families, Boyd-Franklin and Boland
14. Caring for the Professional Caregiver, Boyd-Franklin and Boland
15. HIV/AIDS in the Schools, Pozen
16. Professional, Ethical, and Moral Issues, Boyd-Franklin, Staloff, and Brady
17. Legal Issues, Harvey
VI. Research and Public Policy
18. Psychosocial Research Concerning Children, Families, and HIV/AIDS: A Challenge for Investigators, Sherwen and Tross
19. HIV/AIDS and Public Policy: Recent Developments, Harvey
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