Children with Disabilities / Edition 7 available in Hardcover
- ISBN-10:
- 159857194X
- ISBN-13:
- 9781598571943
- Pub. Date:
- 07/13/2012
- Publisher:
- Brookes Publishing
- ISBN-10:
- 159857194X
- ISBN-13:
- 9781598571943
- Pub. Date:
- 07/13/2012
- Publisher:
- Brookes Publishing
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Overview
Comprehensive, authoritative information from the most respected experts: For 30 years, that's what Children with Disabilities has given the thousands of students, faculty, and professionals who rely on it. Now this trusted text is in a NEW seventh edition, thoroughly updated with the very latest research, new instructor materials, and the critical issues professionals need to know as they prepare to work with children and families. Incorporating 5 years of significant research and progress in multiple disciplines, this highly anticipated new edition is the textbook of choice for courses on disability. The internationally respected editors bring together a who's who of contributors—of seasoned experts and fresh voices—definitive compendium of information about developmental, clinical, family, education, and intervention issues.
WHAT'S NEW
- All-new chapters on diagnosis, neuropsychological assessment, "new" disabilities faced by survivors of previously fatal disorders, and complementary and alternative medicine
- New multimedia instructor materials online, including high-quality downloadable medical illustrations
- 30+ new contributors from diverse fields
- Expanded chapters on autism and ADHD
- New developments in neuroscience, genetics, and imaging
- Greater focus on interdisciplinary collaboration
- Considerations from drafts of the DSM-5
- Thoroughly updated content in every chapter
- PowerPoint slides for each chapter, easy to customize for courses
Children with Disabilities retains and strengthens the student-friendly features of previous editions: concise and accessible chapters, a helpful glossary, chapter overviews, case studies that bring key concepts to life, extensive cross-referencing to make information easy to find, and resource lists for every topic. And with the complete package of new multimedia instructor materials, instructors will use this textbook effectively in their courses and prepare students for years of successful practice. An unparalleled text from the leading voices in the disability field, Children with Disabilities is the cornerstone resource future professionals will keep year after year to support their important work with children and families.
Product Details
ISBN-13: | 9781598571943 |
---|---|
Publisher: | Brookes Publishing |
Publication date: | 07/13/2012 |
Pages: | 904 |
Product dimensions: | 7.30(w) x 10.00(h) x 1.80(d) |
About the Author
He remained a professor at Johns Hopkins for 13 years and won the prestigious Alexander Schaffer teaching award while there. A Joseph P. Kennedy, Jr., Scholar and recipient of major grants from the March of Dimes Birth Defects Foundation and the National Institutes of Health (NIH), Dr. Batshaw is director of the NIH-funded Mental Retardation and Developmental Disabilities Research Center at CNMC and continues to pursue his research on innovative treatments for inborn errors of metabolism, including gene therapy. Dr. Batshaw has published more than 130 articles, chapters, and reviews on his research interests and on the medical aspects of the care of children with disabilities. Dr. Batshaw was the founding editor in chief (1995 - 2001) of the journal Mental Retardation and Developmental Disabilities Research Reviews. He is also the editor of When Your Child Has a Disability: The Complete Sourcebook of Daily and Medical Care, Revised Edition (Paul H. Brookes Publishing Co., 2001), and Handbook of Developmental Disabilities (co-edited with Kurtz, Dowrick, & Levy; Aspen Publishers, 1996). Dr. Batshaw is a Fellow of the American Academy of Pediatrics and is a member of the American Pediatric Society, the Society for Inherited Metabolic Disorders, the Society for Pediatric Research, and the Society for Developmental Pediatrics. Dr. Batshaw's investment in the well-being of children was first sparked by his parents, both of whom were social workers; his father was involved in modernizing the juvenile justice system in Quebec. Dr. Batshaw's wife, Karen, is a social worker in the field of international adoptions. His children also continue this legacy of making a difference: His daughter, Elissa, is a special education teacher and co-authored the chapter on special education in this edition of Children with Disabilities; his son Michael is a social worker; and his younger son, Drew, has overcome the challenges of attention-deficit/hyperactivity disorder to graduate from Vassar College and enter business school.
Nancy J. Roizen, M.D., is the Chief of the Division of Developmental–Behavioral Pediatrics and Psychology at University Hospital of Cleveland's Rainbow Babies and Children's Hospital in Cleveland. She is certified in neurodevelopmental disabilities and developmental-behavioral pediatrics.
Dr. Roizen received her B.S. and M.D. degrees from Tufts University. After completing an internship in pediatrics at Massachusetts General Hospital, she did a residency in pediatrics at The John's Hopkins Hospital. Her fellowships were in neurodevelopmental disabilities at the Kennedy Krieger Institute and in developmental and behavioral pediatrics at University of California, San Francisco. She was then a staff physician at the Child Development Center at Oakland Children's Hospital for 8 years followed by 16 years as Chief of the Section of Developmental Pediatrics at University of Chicago. Next, at SUNY Upstate Medical University, she was the Vice-Chair for Education for the Department of Pediatrics and Chief of the Division of Neurosciences for 4 years. Next stop was the Cleveland Clinic where she was the Chief of the Department of Developmental Pediatrics, and Physiatry for 2 years. Dr. Roizen has published 125 articles, books, reviews, and chapters on research and the clinical aspects of children with developmental disabilities including those with Down syndrome, toxoplasmosis, and velocardiofacial syndrome.
Laura Gutermuth Anthony, Ph.D., is a psychologist and a Professor in the Division of Child and Adolescent Psychiatry, Department of Psychiatry, University of Colorado School of Medicine, and Children’s Hospital of Colorado. Dr. Anthony completed a dual degree doctoral program in clinical and developmental psychology at the University of Illinois, Chicago, in 1997. She has focused most of her research and clinical work on children with neurodevelopmental disabilities and authored o coauthored more than 75 publications. She has also received or participated in 32 externally funded research grants. She has specialized training and research experience using Community Based Participatory Research (CBPR) methods and partnerships to develop interventions, contextualize and disseminate results and implement findings in the community. In 2021, she was appointed the inaugural Director of Research for Child and Adolescent Mental Health at the University of Colorado.
Philippa H. Campbell, Ph.D., directs all of the research and training projects under the Child and Family Studies Research Programs (CFSRP) at Thomas Jefferson University.
Larry W. Desch, M.D., FAAP, directs both the clinical and educational aspects of developmental pediatrics at Hope Children's Hospital, a major teaching affiliate of the University of Illinois College of Medicine, Department of Pediatrics. He completed his fellowship training in developmental disabilities at the University of Kansas Medical School and did postfellowship work for 3 years with Drs. Al Healy, Mark Wolraich, and James Blackman at the University of Iowa. Since then, Dr. Desch has served on the faculties of the University of Missouri and University of Wisconsin medical schools. He is a clinical associate professor at the University of Illinois-Chicago College of Medicine. Over the years, Dr. Desch has also assisted various state agencies that deal with children with a wide spectrum of disabilities and has served on a number of advisory boards and committees for children with disabilities of state chapters of the American Academy of Pediatrics (AAP) (including as a past chair of the committee in Missouri). He is also active in a number of national academic and professional organizations, including the AAP (the Section on Developmental and Behavioral Pediatrics and the Section on Children with Disabilities), the Society for Developmental Pediatrics, the Ambulatory Pediatrics Association, and the Midwest Society for Pediatric Research. Within the American Academy for Cerebral Palsy and Developmental Medicine, Dr. Desch serves as chair of the Continuing Education Committee.
Lauren Kenworthy, Ph.D., is Professor of Neurology, Pediatrics, and Psychiatry at the George Washington University School of Medicine, Associate Chief of the Neuropsychology Division and Director of the Center for Autism Spectrum Disorders at Children’s National Health System. Dr. Kenworthy received her bachelor of arts degree from Yale University and her doctoral degree from the University of Maryland. Her research interests are in describing, supporting and treating neuropsychological phenotypes in autism. She is the author of more than 85 peer-reviewed publications, three treatment manuals, and a coauthor of the Behavior Rating Inventory of Executive Function. She has participated in more than 25 funded research projects related to executive function, treatment evaluation and child development.
Louis Pellegrino, M.D., is a pediatrician who completed subspecialty training in Neurodevelopmental Pediatrics at the University of Rochester, New York. Following his fellowship training, he joined the faculty at the University of Pennsylvania School of Medicine as an assistant professor and was Medical Director of the Cerebral Palsy Program at The Children's Hospital of Philadelphia and Children's Seashore House. He is now Assistant Professor of Clinical Pediatrics at the University of Medicine and Dentistry of New Jersey, Robert Wood Johnson Medical School. He has written extensively on the subject of cerebral palsy and maintains cerebral palsy as a primary focus in his clinical, teaching, and academic pursuits, working in a variety of medical and educational settings in collaboration with many different professionals who devote themselves to the care of children with developmental disabilities. Dr. Pellegrino is board-certified in pediatrics and is a fellow of the American Academy of Pediatrics. He is a member of the American Academy of Pediatrics, the American Academy of Cerebral Palsy and Developmental Medicine, and the Society for Developmental Pediatrics. He lives in Hillsborough, New Jersey with his wife, Joan, and daughter, Elizabeth.
Bruce K. Shapiro, M.D., is Professor of Pediatrics, The Johns Hopkins University School of Medicine, The Arnold J. Capute, M.D., M.P.H. Chair in Neurodevelopmental Disabilities, and Vice President of Training, The Kennedy Krieger Institute, Baltimore, Maryland.
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The full resource guide from Children with Disabilities, Seventh Edition
Table of Contents
About the Online Companion Materials
About the Editors
Contributors
A Personal Note to the Reader
Preface
Acknowledgments
Letters from Andrew Batshaw
I. As Life Begins
- Genetics and Developmental Disabilities
Mark L. Batshaw, Andrea Gropman, and Brendan Lanpher
Genetic Disorders
Chromosomes
Cell Division and Its Disorders
Genes and Their Disorders
Epigenetics
Genetic Testing
Environmental Influences on Heredity
- Fetal Development
Adré J. du Plessis
Structural Development of the Brain
Functional Development of the Fetal Nervous System
- Environmental Toxicants and Neurocognitive Development
Jerome Paulson
Scope of the Issue
Susceptible Periods of Development
Specific Toxicants
Public Policy Implications
- Birth Defects and Prenatal Diagnosis
Rhonda L. Schonberg
Screening Evaluations During Pregnancy
Prevention and Alternative Reproductive Choices
Psychosocial Implications
- Newborn Screening: Opportunities for Prevention of Developmental Disabilities
Joan E. Pellegrino
What Is a Screening Test?
Why Screen Newborns?
How Is Newborn Screening Done?
What Should Be Done When a Child Has a Positive Newborn Screen?
What Happens to Children with Confirmed Disease?
What Is the Risk of Developmental Disability in Children with Confirmed Disease?
How Can Screening Fail?
The Past, Present, and Future of Newborn Screening
Prenatal Screening
- The First Weeks of Life
Chrysanthe Gaitatzes, Taeun Chang, and Stephen Baumgart
The Fetus Before Birth
The Birth Process
The Nervous System
- Premature and Small-for-Dates Infants
Khodayar Rais-Bahrami and Billie Lou Short
Definitions of Prematurity and Low Birth Weight
Incidence of Preterm Births
Causes of Premature Birth
Complications of Prematurity
Medical and Developmental Care of Low Birth Weight Infants
Survival of Low Birth Weight Infants
Care After Discharge From the Hospital
Early Intervention Programs
Neurodevelopmental Outcome
- Nutrition and Children with Disabilities
Rebecca M. Haesler and Jocelyn J. Mills
Typical Growth During Childhood
Nutritional Guidelines
Nutritional Issues in Children with Developmental Disabilities
Medical Nutritional Therapy
Special Nutritional Concerns in Children with Disabilities
Nutrition within Complimentary and Alternative Medical Care
- Feeding and Its Disorders
Peggy S. Eicher
The Feeding Process
Feeding and the Influence of Medical Conditions
Feeding and the Influence of Tone, Posture, and Development
Feeding Problems in Children with Disabilities
Evaluation of a Feeding Problem
Managing Feeding Problems
- Hearing and Deafness
Pamela Buethe, Betty R. Vohr, and Gilbert R. Herer
The 1-3-6 Guidelines for Screening and Diagnosis
The Hearing System
Defining Sound
Defining Hearing Loss
Causes of Hearing Loss
Identifications of Hearing Loss
Intervention for Hearing Loss
- Vision and Visual Impairment
Brooke E. Geddie, Michael J. Bina, and Marijean M. Miller
Structure and Function of the Eye
Ocular Development
Development of Visual Skills
Common Disorders of the Eye in Children with Disabilities
Disorders of the Visual Cortex
Strabismus and Ocular Motility Disorders
Refractive Errors in Children
Vision Assessment
Blindness
- The Brain and Nervous System
Amanda Yaun, Robert Keating, and Andrea Gropman
The Brain and Spinal Cord
The Peripheral Nervous System
The Microscopic Architecture of the Brain
Techniques for Evaluating the Central Nervous System
- Muscles, Bones, and Nerves
Peter B. Kang
Components of the Neuromuscular and Musculoskeletal Systems
Symptoms and Signs of Neuromuscular and Musculoskeletal Disorders
Laboratory Testing and Radiography
Disorders of the Neuromuscular System
Disorders of the Musculoskeletal System
Principles for the Management of Neuromuscular and Musculoskeletal Disorders
- Patterns in Development and Disability
Louis Pellegrino
Defining Disability
Defining Development
Patterns in Development
Disturbances in Development
- Diagnosing Developmental Disabilities
Scott M. Myers
Atypical Patterns of Development
Developmental Principles
Diagnostic Classification
The Diagnostic Process
- Understanding and Using Neurocognitive Assessments
Lauren Kenworthy and Laura Gutermuth Anthony
The Purpose of Neuropsychological Assessment
A Model for Developmental Neuropsychological Assessment
Domains of Functioning Assessed in Neuropsychological Evaluations
Ensuring that Assessment Informs Management
- Developmental Delay and Intellectual Disability
Bruce K. Shapiro and Mark L. Batshaw
Early Identification of Developmental Delay
Defining Intellectual Disability
Classification of Intellectual Disability
Prevalence of Intellectual Disability
Associated ImpairmentsMedical Diagnostic Testing
Psychological Testing
Treatment Approaches
- Down Syndrome (Trisomy 21)
Nancy J. Roizen
Prevalence
Chromosomal Findings
Effects of Trisomy 21
Early Identification
Medical Complications in Down Syndrome
Neurodevelopment and Behavior
Evaluation and Treatment
Intervention
- Inborn Errors of Metabolism
Mark L. Batshaw and Brendan Lanpher
Types of Inborn Errors of Metabolism
Mechanism of Brain Damage
Associated Disabilities
Diagnostic Testing
Newborn Screening
Therapeutic Approaches
- Speech and Language Disorders
Sheela Stuart
Components of Communication
Typical Development of Speech and Language
Bilingualism
Communication Disorders
Assessment
Types of Communication Disorders
Treatment Approaches
- Autism Spectrum Disorders
Susan L. Hyman and Susan E. Levy
Diagnostic Categories within the Autism Spectrum
Diagnostic Features of Autism Spectrum Disorders
Causes of Autism Spectrum Disorders
Epidemiology of Autism Spectrum Disorders
Early Identification of Autism Spectrum Disorders
Associated Conditions
Treatment Approaches
- Attention Deficits and Hyperactivity
Marianne Glanzman and Neelam Sell
Diagnosis and Attention-Deficit/Hyperactivity Disorder Subtypes
Prevalence and Epidemiology
Clinical Presentation
Common Coexisting Conditions
Associated Impairments
Causes of Attention-Deficit/Hyperactivity Disorder
The Evaluation Process
Treatment of Attention-Deficit/Hyperactivity Disorder
Treatment with Coexisting Conditions
Alternative Therapies
- Specific Learning Disabilities
M.E.B. Lewis, Bruce K. Shapiro, and Robin P. Church
Defining Learning Disorders
Response to Intervention
Prevalence
Specific Reading Disability
Specific Mathematics Disability
Impairments Associated with Specific Learning Disabilities
Health Problems Simulating Specific Learning Disabilities
Assessment Procedures
Intervention Strategies
- Cerebral Palsy
Alexander H. Hoon, Jr., and Frances Tolley
What Is Cerebral Palsy?
What Causes Cerebral Palsy?
Epidemiology
Risk Factors
Diagnosis
Subtypes of Cerebral Palsy
Establishing the Etiology (Cause) of Cerebral Palsy
Associated Impairments in Cerebral Palsy
Comprehensive Management for Individuals with Cerebral Palsy
- Neural Tube Defects
Gregory S. Liptak
Prevalence of Neural Tube Defects
The Origin of Neural Tube Defects
Prevention of Neural Tube Defects Using Folic Acid Supplementation
Prenatal Diagnosis
Treatment of Meningomyelocele in the Newborn Period
Primary Neurological Impairments in Children with Meningomyelocele
Associated Impairments and Medical Complications
Educational Programs
Psychosocial Issues for the Child
Interdisciplinary Management
- Traumatic Brain Injury
Melissa K. Trovato and Scott C. Schultz
Incidence of Traumatic Brain Injury
Causes of Traumatic Brain Injury
Types of Brain Injuries
Concussions
Detection of Traumatic Brain Injury
Severity of Traumatic Brain Injury
Acute Treatment of Traumatic Brain Injury
Rehabilitation of Children with Traumatic Brain Injury
Outcome of Moderate to Severe Traumatic Brain Injury
- Epilepsy
Tesfaye Getaneh Zelleke, Dewi Francis T. Depositaro-Cabacar, and William Davis Gaillard
Epilepsy: Definitions and Classification
Diagnosis and Evaluation
Treatment
Multidisciplinary Care
- The New Face of Developmental Disabilities
Nancy J. Roizen and Adrienne S. Tedeschi
Sickle-Cell Disease
Cancer: Acute Lymphocytic Leukemia and Brain Tumors
Human Immunodeficiency Virus
Chronic Kidney Disease
- Behavioral and Psychiatric Disorders in Children with Disabilities
Adelaide Robb
Prevalence of Psychiatric Disorders Among Children with Developmental Disabilities of Specific Etiologies
Causes of Psychiatric Disorders in Developmental Disabilities
Psychiatric Disorders of Childhood and Adolescence
Vulnerability
Evaluation
Treatment
- Early Intervention
Toby Long
Principles of Early Intervention
Research Support for the Value of Early Intervention
Components of Part C of the Individuals with Disabilities Education Improvement Act: The Infants and Toddlers with Disabilities Program
Status of Early Intervention Services
Future Considerations
- Special Education Services
Elissa Batshaw Clair
Eligibility for Special Education
Special Education: A Description
The Individualized Education Program
Services Provided by Special Education Teachers
The Role of the Special Education Teacher in the General Education Curriculum
General Education Legislation Affecting Special Education Teachers
The School-Parent Connection
- Behavior Principles, Assessment, and Therapy
Michael F. Cataldo, SungWoo Kahng, Iser G. DeLeon, Brian K. Martens, Patrick C. Friman, and Marilyn Cataldo
Operant Learning Principles and Practices
Behavioral Assessment of Problem Behaviors
Functional Assessment and Treatment Development
Preference Assessment and Reinforcer
Evaluation: From Basic Principle to Application
Common Behavior Problems
Severe Problem Behaviors
Practical Strategies for the Classroom
Behavioral Teaching Strategies
Behavioral Instruction Programs
- Occupational and Physical Therapy
Philippa Campbell
Therapy Types and Purposes
Intervention Frameworks Used by Physical and Occupational Therapists
Team Structures and Therapist Roles
Features of Pediatric Therapy Services and the Role of Therapists
Intervention Strategies
Evidence-Based Intervention
- Physical Activity, Exercise, and Sports
Donna Bernhardt Bainbridge and James Gleason
Health Risks of Children with Disabilities Related to a Lack of Physical Activity
Considerations for Specific Disabilities
Community Programs
Policies Affecting Participation in Physical Activity
Choice and Preparation for Physical Activity, Exercise, or Sports
Injury Risk in Children
- Oral Health Care
H. Barry Waldman, Steven P. Perlman, and George Acs
Eruption of Teeth
Problems Affecting Development of Teeth
Contributing Factors to Oral Conditions of Individuals with Disabilities
Oral Diseases
Malocclusion
Prevention of Dental Caries and Periodontal Disease
Providing Dental and Orthodontic Treatment
Special Issues Regarding Dental Care for Children with Specific Developmental Disabilities
The Challenge of Providing Dental Services to Individuals with Disabilities
- Assistive Technology
Larry W. Desch
Definitions and Overview
Technology for Medical Assistance
Assistive Technology for Disabilities-Principles and Examples
Assessment for Assistive Technology
Effects of Assistive Technology on the Family and Community
- Caring and Coping: Helping the Family of a Child with a Disability
Michaela L. Zajicek-Farber
Understanding Family Systems
How Families Cope with the Diagnosis
Long-Term Effects on the Parents
Effects on Siblings
Effects on the Extended Family
Effects on the Child with a Disability
Principles of Family-Centered Care: Role of the Professional
The Role of Society and Community
- Complementary and Alternative Therapies
Michelle H. Zimmer
Evidence of Treatment Efficacy
Approaches to Advising Families About Complementary and Alternative Medicine
- Ethical Considerations
Kruti Acharya, Michelle Huckaby Lewis, and Peter J. Smith
Basic Ethical Principles
The Relationship Between Law and Ethics
Ethical Dilemmas
Institutional Ethics Committees
Protection of Human Subjects in Research
- Future Expectations: Transition from Adolescence to Adulthood
Nienke P. Dosa, Patience H. White, and Vincent Schuyler
General Principles of Transition
Moving Toward Independence: Self-Determination
Moving from School to Work
Moving from Home into the Community
Moving from Pediatric- to Adult-Oriented Health Care
- Health Care Delivery Systems and Financing Issues
Angelo P. Giardino and Renee M. Turch
The Concept of a Medical Home
Importance of Coordination of Care
Changes in Financing Health Care for CYSHCN
Looking Toward the Future
Appendix A: Glossary
Arlene Gendron
Appendix B: Syndromes and Inborn Errors of Metabolism
Kara L. Simpson
Appendix C: Commonly Used Medications
Michelle L. Bestic
Appendix D: Childhood Disabilities Resources, Services, and Organizations
Index