Clinical Management of Craniosynostosis / Edition 1

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Overview

Clinics in Developmental Medicine No. 163

Children with craniosynostosis are born with congenital deformities of the face and skull. In severe cases associated problems are common. The child who is not properly cared for can end up blind, deaf and with severe learning difficulties. In addition, they may be left with unacceptable facial deformities. Outside specialized craniofacial units, there is at present nowhere for those involved in primary or secondary care to go for help with the many practical problems that these children present. In this book, a distinguished team of editors have assembled experts in the field to introduce the non-craniofacial specialist to what can be achieved and how they can contribute to the child's welfare. It will be essential reading for paediatricians seeking practical information about the management of these disorders, and for specialists in neurosurgery, ENT, ophthalmology, plastic surgery, maxillo-facial surgery, orthodontics, psychology, genetics, anaesthesia, audiology and speech therapy.

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Editorial Reviews

Doody's Review Service
Reviewer: Robert M Arensman, MD (University of Illinois at Chicago College of Medicine)
Description: The Clinical Management of Craniosyntosis is an almost 400 page text devoted to this single diagnosis, encompassing the many varieties and syndromes of the disorder. It contains 19 chapters that touch on all the medical aspects (ocular and aural, increased cerebral pressure, airway management, etc) of this family of conditions and concludes with a fairly short section on surgical planning and correction.
Purpose: Within the introduction, Drs. Hayward, Dunaway, Evans, and Jones state "the purpose of this volume: to present the care of children with craniosyntosis 'in the round.'" Specifically, they are trying to discuss this matter as a family would encounter care within a specialized care center for these children through a multidisciplinary team. In other words, a "management philosophy that sees the child as a whole rather than an assembly of surgical challenges". They achieve this quite admirably within the book.
Audience: Anyone interested in this very narrow and fairly rare disorder will find this book a treasure trove, but its content and level are clearly for those with knowledge and experience with afflicted children. Level or presentation is complex and includes such detailed material as the current understanding of genetics and biochemical basis for these disorders. Since most of the contributors are members of the team at Great Ormond Street Hospital for Children, they are highly credible authorities and speak with a vast experience.
Features: The best aspect of this book is its complete thoroughness. It begins with a review of craniofacial growth, passes on to classification, and then reviews current genetics and biochemical derangement. The following chapters begin the introduction of practical, clinical considerations such as prenatal diagnosis, imaging, management of ocular, aural, speech, dental, and psychological problems associated with the malformation. In their completeness, the authors have requested a chapter on the role of the clinical nurse specialist who cares for these children which contains several nice algorithms on care and communication. The authors conclude with two chapters on anesthesia and surgery for children; both good, but far from complete and comprehensive for a subject of such vast surgical literature today.
Assessment: Overall, this is an excellent addition to the medical literature on craniosyntosis. It is reasonable in length, highly readable, and comprehensive for a general reference that succeeds in its objective: a presentation of care for these children "in the round".

4 Stars! from Doody
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Product Details

Table of Contents

1. The growth of the skull and face David Dunaway and Robert Evans; 2. The classification and clinical diagnosis of craniosynostosis Dominic Thompson and Jonathon Britto; 3. The molecular genetics of craniosynostosis Willie Reardon and Jonathon Britto; 4. The epidemiology and incidence of craniosynostosis Louise Wilson; 5. The ante-natal diagnosis of craniosynostosis Lynn Chitty; 6. Imaging and craniosynostosis Kling Chong; 7. Principles of management of the child with craniosynostosis David Dunaway, Robert Evans, Richard Hayward and Barry Jones; 8. Management of raised ICP Richard Hayward and Ken Nischal; 9 Management of airway obstruction Susannah Leighton and Rod Lane; 10. Management of ophthalmological complications Ken Nischal; 11. Management of malocclusion and dental complications Robert Evans; 12. Psychological considerations Daniella Hearst; 13. Neurological problems of children with craniosynostosis and the role of the paediatrician Lucinda Carr; 14. Speech and language development Caroleen Shipster; 15. Hearing disorders Tony Sirimanna; 16. The management of feeding problems in children with complex craniosynostosis Valerie Pereira; 17. The role of the clinical nurse specialist Andrea White; 18. Anaesthesia and the child with craniosynostosis Bob Bingham and Sue Mallory; 19. The surgical management of the child with craniosynostosis David Dunaway, Robert Evans, Richard Hayward and Barry Jones; Index.

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