Clinican's Guide To Pediatric Chronic Illness / Edition 1

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Primary care physicians and nurse practitioners will welcome this ground-breaking guide to the treatment of children with chronic illnesses. The author explores the full range of health, family, and ethical concerns associated with chronically ill children, including nutrition, developmental issues, rehabilitation, mental health, surgical & orthopedic problems, home care, and abuse & neglect.
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Editorial Reviews

Doody's Review Service
Reviewer: John M. Neff, MD (University of Washington School of Medicine)
Description: This guide to pediatric chronic illnesses is presented in two sections, one on general considerations and one on specific disease groups or categories, and includes an appendix of resources.
Purpose: Although the author does not specifically state the purpose of the book, it is quite clearly written as a general guide for those whose pediatric practices include children with chronic illnesses. The book meets this very worthwhile purpose and there are few if any books that fill this particular need.
Audience: The book seems to be written primarily for general practitioners and clinics that provide general comprehensive primary care for children with chronic illnesses. It is of minimal value to residents, students, or specialty clinics. It also is of limited value to clinics that see primarily well children, or only a small number of children. The author has a wide range experience in taking care of children with chronic illnesses.
Features: In the first section the author covers the essential issues involved in taking care of the majority of children with chronic illnesses. It is broadly comprehensive and covers a wide range of topics, all of which are important. In the second section, the author has selected specific conditions grouped by disease category and has covered the essential ingredients for care of children with these conditions. A major feature is a comprehensive appendix that itemizes the support groups and organizations that serve these children. The book by the nature of its broad approach to these issues can not go into a great deal of depth.
Assessment: This is an excellent resource for any clinic or physician that cares for a significant number of children with chronic illnesses. It is well organized and easy to read. Because of the broad approach that covers many complex subjects, it cannot go into much depth in any specific area. It will be necessary for interested readers to follow up with other resources for more in-depth information. The book fills a very important clinical need and provides an excellent resource of organizations and support groups who can help involved families and practitioners.
From The Critics
Defining chronic illnesses as those that last for more than three months, Light (pediatrics, U. of Miami) offers guidance for pediatricians and other clinicians responsible for direct patient care. He begins with general considerations such as the extent of chronic illness, care, nutrition, complementary medicine, and normal and abnormal development. Then he details specific conditions that affect children and adolescents. Annotation c. Book News, Inc., Portland, OR (

3 Stars from Doody
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Product Details

  • ISBN-13: 9780071347204
  • Publisher: McGraw-Hill Professional Publishing
  • Publication date: 3/12/2001
  • Series: Hazelden Chronic Illness Series
  • Edition number: 1
  • Pages: 484
  • Sales rank: 1,228,554
  • Product dimensions: 1.08 (w) x 6.00 (h) x 9.00 (d)

Table of Contents

Pt. I General Considerations
1 Chronic Illness in Children 3
2 Health Maintenance 9
3 Impact on the Child and Family 21
4 Nutrition 33
5 Eating/Elimination Disorders 43
6 Complementary Medicine 53
7 Developmental Issues 65
8 Pediatric Rehabilitation 73
9 Sensory Disorders 83
10 Mental Health Problems 91
11 Surgical and Orthopedic Problems 103
12 Home Care and Technology Dependence 111
13 Child Abuse and Neglect 123
14 Ethical and Legal Issues 137
Pt. II Description of Conditions
15 Genetic Disorders 147
16 Metabolic Disorders 167
17 Endocrine Disorders 181
18 Allergy and Immunology Disorders 201
19 Infectious Diseases 225
20 Pulmonary Disease 247
21 Cardiac Disorders 267
22 Renal Disease 283
23 Gastrointestinal Disorders 299
24 Hematology and Oncology Disorders 321
25 Neuromuscular Disorders 343
26 Psychological Disorders 369
27 Rheumatology Disorders 391
28 Dermatologic Disorders 405
App. I: Bibliography 417
App. II: Resources 421
Index 441
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Pediatrics is the care of children from the newborn period to adulthood. It is the time of growth and development. Clinical pediatric care involves the diagnosis and management of wellness and illness. Chronic illness is usually defined as an illness or medical condition that lasts for more than three months. The spectrum of disorders is very extensive. Some affect millions of children and are very common whereas some are so rare that they may not be seen in a lifetime of clinical care. The clinician is the professional who provides direct patient care. In reality, everyone is involved at some level with children and adolescents who have chronic illness. Part I describes general considerations that may affect any child with a chronic condition. It starts with an outline of the scope of the problem with some numbers that show the extent of chronic illness. Access to care and the effect of chronic illness on the child and the family are discussed. Nutrition, eating disorders, and complementary medicine are presented in the context of chronic illness. Normal and abnormal development are outlined. Physical and occupational therapy that are so important in achieving optimal outcome are only briefly mentioned. Sensory and mental health problems are often secondary effects of a large number of chronic conditions. Although surgical and orthopedic problems could merit their own section in Part II, they are included in Part I because they also are present in multiple situations. Home care and technology dependence services are increasingly being utilized. Unfortunatelv, there is an increase in child abuse and nealect in the population of children that are affected by chronic conditions. There are many legal and ethical issues that are pertinent to this population.

Part II is the description of the individual conditions that affect children and adolescents. The intent is to present in detail the most important chronic conditions. The question of which conditions are important is debatable. To the families, the condition that they deal with every day is, by definition, the most important. The compromise, which is "author's discretion," is to detail the most common and well-known conditions. These conditions are fairly predictable and include asthma, diabetes, and AIDS. In addition, the majority of conditions that are included in pediatric textbooks are also presented so that there are a total of 30 or so "well-known" conditions andmorethan 100 other conditions.

There are two appendices. First is a listing of all of the sources of information that were used to help in providing the data for this book. The second appendix lists resources and organizations that potentially can help clinicians and caregivers (including parents) in the care of children with chronic conditions. Internet sites can act as a starting point for information about chronic conditions. These are current at the time of writing and most of them should be stable enough to be useful in the long term.

The author wishes to acknowledge the assistance of Hazelden Press, Inc., in particular Karen Chernyaev who guided him through the editorial process in the early phases of the project. Many people contribute to the publication of a book and the author is grateful to the publishers, McGraw-Hill, especially Martin Wonsiewicz, and to Alan Hunt of Keyword Publishing Services Ltd.

To improve future editions of this book, the author requests feedback from the readers. Comments or suggestions can be e-mailed to either or mlight39@yahoo. com.
—Copyright 2001 by The McGraw-Hill Companies, Inc. Used with permission.

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