Complete Directory for People with Chronic Illness, 1994

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Editorial Reviews

From The Critics
Grey House has produced another useful tool in the disability field, similar to its "Complete Directory for People with Disabilities". The publisher calls this work a comprehensive overview of the support services and information resources available for people diagnosed with a chronic illness. It is a one-stop source for general information on 82 chronic conditions. These range from the familiar, such as AIDS, Alzheimer's, arthritis, and tuberculosis, to such conditions as Charcot-Marie-Tooth disease, chronic fatigue syndrome, and Gaucher's disease. Some disability organizations may argue about the inclusion of blindness and deafness here; however, those who lose hearing or sight because of other medical conditions will appreciate the material Under each illness is a very brief description of the condition written in plain English, followed by lists of national and/or state organizations, support groups, libraries, reference books, magazines, pamphlets, videos, and children's books. Also included are a list of Wish Foundations that grant wishes for terminally or chronically ill children, and a chapter on Death and Bereavement The directory information is most helpful. The lists of organizations and support groups provide names of contact people, as well as complete addresses and telephone and fax numbers. The bibliographies for each section belong in the category of good place to start. While prices are given for books and pamphlets, date of publication and ISBNs are not. Many of the book titles include descriptive annotations Information is easy to find. The table of contents has "see" references to broader entries. For example, "Anorexia" and "Bulimia" are cross-referenced to "Eating Disorders"; "Alcoholism" and "Drug Abuse" are found under "Substance Abuse". The index is a good search tool if one knows the name of an organization or the title of a book and doesn't know where to find it in the main body of the book. One noteworthy feature in the index is that all titles in the book from any publisher are listed under the publisher's name This is the place to start for general information on chronic illness. While expensive, it contains the kind of information that any public library would use regularly as long as the publisher keeps it up-to-date.
Booknews
A comprehensive directory of associations, publications, research centers, and support groups specific to 82 chronic illnesses. The arrangement is alphabetical by illness (from Addison's disease to Wilson's disease), then alphabetical by state, and finally alphabetical by resource. Each resource entry includes name, address, phone, contact person, and a brief description. Also included are sections devoted to general resources, wish foundations, and death and bereavement. Annotation c. Book News, Inc., Portland, OR (booknews.com)
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Product Details

  • ISBN-13: 9780939300563
  • Publisher: Grey House Publishing
  • Publication date: 1/28/1996
  • Pages: 750

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