Congenital Disorders SourceBook

Overview

When a baby is born with a congenital disorder parents are often plagued with the questions. "Why?" and "What now?" This Sourcebook serves as a convenient starting place on their quest for answers. Here readers will find compassionate chapters providing hope, realistic expectations, and reports on current research initiatives.

The book contains black-and-white illustrations.

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Overview

When a baby is born with a congenital disorder parents are often plagued with the questions. "Why?" and "What now?" This Sourcebook serves as a convenient starting place on their quest for answers. Here readers will find compassionate chapters providing hope, realistic expectations, and reports on current research initiatives.

The book contains black-and-white illustrations.

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Editorial Reviews

Booknews
Despite medical advances and Jerry Lewis' telethons, birth defects of largely unknown origin are still the leading cause of infant mortality in the US (8,000 annually)<-->with 40,000 affected babies surviving with developmental disabilities. Before proceeding to specific congenital disorder categories, their causative factors (including the in-the-news-again drug thalidomide), research initiatives, and treatment options, important messages are offered on decreasing these statistics and risk factors through prenatal care/testing, folate use, preventative alcohol and drug avoidance, and recognition of early warning signs; and if all else fails: being an assertive parent on a treatment team. Little on genetic counseling. Resource list. Annotation c. by Book News, Inc., Portland, Or.
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Product Details

  • ISBN-13: 9780780802056
  • Publisher: Omnigraphics, Incorporated
  • Publication date: 1/1/1997
  • Series: Health Reference Series
  • Pages: 607
  • Product dimensions: 6.31 (w) x 9.32 (h) x 1.72 (d)

Table of Contents

Preface
Ch. 1 Decreasing the Chance of Birth Defects 3
Ch. 2 How Folate Can Help Prevent Birth Defects 11
Ch. 3 Prenatal Testing 19
Ch. 4 How to be an Assertive Parent on the Treatment Team 25
Ch. 5 Answering Your Questions about Spina Bifida 33
Ch. 6 Children with Hydrocephalus 67
Ch. 7 Social Skills Development in Children with Hydrocephalus 75
Ch. 8 Eye Problems Associated with Hydrocephalus 79
Ch. 9 Seizures in Children with Congenital Hydrocephalus 83
Ch. 10 Third Ventriculostomy 97
Ch. 11 The Variable Pressure Programmable Valve 103
Ch. 12 Prenatal Onset Hydrocephalus: Fetal Diagnosis 107
Ch. 13 Pregnancy and Maternal Hydrocephalus Survey 111
Ch. 14 Cerebral Palsy: Hope Through Research 119
Ch. 15 Cerebral Palsy: Statistics and Risk Factors 149
Ch. 16 Treating Muscle Spasticity in Cerebral Palsy 155
Ch. 17 Surgical Treatment of Drooling 163
Ch. 18 Current Research Initiatives in Cerebral Palsy 165
Ch. 19 Magnesium Linked to Lower Incidence of Cerebral Palsy 175
Ch. 20 Clinical Recognition of Fetal Alcohol Syndrome 181
Ch. 21 Critical Periods for Prenatal Alcohol Exposure 195
Ch. 22 Effects of Paternal Exposure to Alcohol on Offspring Development 209
Ch. 23 Comparative Teratogenicity of Alcohol and Other Drugs 223
Ch. 24 A Long-Term Perspective of Fetal Alcohol Syndrome 241
Ch. 25 Tracking the Prevalence of Fetal Alcohol Syndrome 259
Ch. 26 Congenital Heart Defects 273
Ch. 27 Twin-Twin Transfusion Syndrome 305
Ch. 28 Hirschsprung's Disease 309
Ch. 29 Clubfoot and Other Pediatric Foot Deformities 315
Ch. 30 Cleft Lip and Cleft Palate 325
Ch. 31 Sturge-Weber Syndrome 351
Ch. 32 Hemangiomas 357
Ch. 33 Chemicals and Birth Defects 363
Ch. 34 The Thalidomide Tragedy 391
Ch. 35 Accutane 399
Ch. 36 ACE Inhibitors and Birth Defects 405
Ch. 37 Outcomes of Pregnancy Associated with Antiepileptic Drugs 407
Ch. 38 Rubella 419
Ch. 39 Streptococcus B Infection of the Newborn 423
Ch. 40 Toxoplasmosis 425
Ch. 41 Cytomegalovirus Infection 435
Ch. 42 Syphilis 439
Ch. 43 Maternal Heat Exposure and Neural Tube Defects 447
Ch. 44 Investigating Prenatal Causes of Mental Retardation and Developmental Disabilities 459
Ch. 45 Assessment of Outcomes Following Neonatal Asphyxia 465
Ch. 46 Long-Term Outcome in Birth Asphyxia - The Role of Encephalopathy in Prediction 483
Ch. 47 Research Update: Pre-Term and Low Birthweight Infants 497
Ch. 48 Perinatal Emphasis Research Centers (PERCS) 513
Ch. 49 National Directory of Hydrocephalus Support Groups 523
Ch. 50 Hydrocephalus Association on the Internet and the World Wide Web 533
Ch. 51 United Cerebral Palsy Associations on the Internet 537
Ch. 52 Resources for People with Facial Differences 541
Ch. 53 Resources for Other Congenital Disorders 559
Index 569
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