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Part One. Setting the Stage: Introduction, Theory, Methods
1. Introduction: Environmental Justice and Contested Illnesses
Rachel Morello-Frosch, Phil Brown, and Stephen Zavestoski
2. Embodied Health Movements
Phil Brown, Rachel Morello-Frosch, Stephen Zavestoski, Sabrina McCormick, Brian Mayer, Rebecca Gasior Altman, Crystal Adams, Elizabeth Hoover, and Ruth Simpson
3. Qualitative Approaches in Environmental Health Research
Phil Brown
4. Getting into the Field: New Approaches to Research Methods
Phil Brown, Rachel Morello-Frosch, and Stephen Zavestoski
5. Environmental Justice and the Precautionary Principle: Air Toxics Exposures and Health Risks among Schoolchildren in Los Angeles
Rachel Morello-Frosch, Manuel Pastor, and James Sadd
Part Two. Working in the Environmental Health Field: Ethnographic Studies
6. A Narrowing Gulf of Difference? Disputes and Discoveries in the Study of Gulf WarRelated Illnesses
Phil Brown, Stephen Zavestoski, Alissa Cordner, Sabrina McCormick, Joshua Mandelbaum, Theo Luebke, and Meadow Linder
7. The Health Politics of Asthma: Environmental Justice and Collective Illness Experience
Phil Brown, Brian Mayer, Stephen Zavestoski, Theo Luebke, Joshua Mandelbaum, Sabrina McCormick, and Mercedes Lyson
8. Pollution Comes Home and Gets Personal: Women’s Experience of Household Chemical Exposure
Rebecca Gasior Altman, Rachel Morello-Frosch, Julia Green Brody, Ruthann A. Rudel, Phil Brown, and Mara Averick
9. The Personal Is Scientific, the Scientific Is Political: The Public Paradigm of the Environmental Breast Cancer Movement
Sabrina McCormick, Phil Brown, Stephen Zavestoski, and Alissa Cordner
10. School Custodians and Green Cleaners: Labor-Environmental Coalitions and Toxics Reduction
Laura Senier, Brian Mayer, Phil Brown, and Rachel Morello-Frosch
11. Labor-Environmental Coalition Formation: Framing and the Right to Know
Brian Mayer, Phil Brown, and Rachel Morello-Frosch
12. The Brown Superfund Research Program: A Multistakeholder Partnership Addresses Problems in Contaminated Communities
Laura Senier, Benjamin Hudson, Sarah Fort, Elizabeth Hoover, Rebecca Tillson, and Phil Brown
Part Three. Ethical Considerations
13. Toxic Ignorance and the Right to Know: Biomonitoring Results Communication; A Survey of Scientists and Study Participants
Rachel Morello-Frosch, Julia Green Brody, Phil Brown, Rebecca Gasior Altman, Ruthann A. Rudel, Carla Pérez, and Alison Cohen
14. IRB Challenges in Community-Based Participatory Research on Human Exposure to Environmental Toxics: A Case Study
Phil Brown, Rachel Morello-Frosch, Julia Green Brody, Rebecca Gasior Altman, Ruthann A. Rudel, Laura Senier, Carla Perez, and Ruth Simpson
15. Conclusion
Phil Brown, Rachel Morello-Frosch, and Stephen Zavestoski
Appendix: Contested Illnesses Research Group’s Nuts and Bolts and Lessons Learned
Laura Senier, Rebecca Gasior Altman, Rachel Morello-Frosch, and Phil Brown
References
List of Contributors
Index
For additional appendixes, see www.ucpress.edu/go/contestedillnesses
Anonymous
Posted May 20, 2013
"I'll see you tomorrow, honey," Mom says, clomping dangerously up the porch steps to hug me. I try to breath through her busty cleavage. "Umm, yeah," I gasp, pulling away without too much force. "Okay." "Have fun," she nods, and I smile weakly before hurrying to their car, a sleek silver Elanda. "That was a shocker," I say, only now blinking for the first time. I manage a quick glimpse at my own chest. I'm actually small in comparison, and I've never regreted it. "You're telling me," Lainey laughed, buckling herself in. Her father pulls out, and nervously looks over into the rear view mirror. He's a math teacher, the dorky, geeky type that is just adorable to watch. "What..what's the occasion?" He asked, pushing his glasses up his nose. "A...date," I say, looking down at my open hands. Lainey snorts, and we all burst out laughing. My mother was never good at dates, not even for dad. I've told Lainey and her family numerous times that I think dad took pity on her. "Dad, Lulu's house is up there," Lainey suddenly says, pointing out a well-to-do neighborhood on top of a grassy hill. My eyes grow wide, as they do everytime I see Lucy Somerset's home. In my eyes, it's pretty much a mansion. Her parents are both doctors, and as large and grand as her house is, I wouldn't give up mine for the world. "Should we get her or-" I begin, but I don't have to finish. Lulu is already beaming, running outside with two large bags, one for her camera, and the other a duffel for her clothes and other needs. She quickly throws them inside, almost crushing my knees, and smothers us in a hug, squishing me in the middle. "What's up, my bffs?" She asks happily, releasing us to gasp for air. "Just...picking up a friend," Lainey replies, hand on her chest. Me and Lulu giggle, then we all laugh again. My life has been so serious, it feels good to laugh. I need to do this more often. "Glad you could join the crew," her dad says as we pull away from the fancy houses. "Yeah, I am so looking forward to a relaxing mani/pedi," Lulu sighs, finally sinking back into the leather seat. "Same here," I agree with a high five. "Well, it will be Mrs. Harris taking you girls to the mall, not me," her dad states. "Thank god," Lainey mutters and I smile and nudge her while Lulu giggles again. I start to grab my things when Mr. Harris stops me. Me and Lulu thank him, then we all rush inside. I almost immediately begin to trip over Lainey's black cat, who darts out right under my foot. Luckily, they had a stair railing to catch me. "Bad Licorice," Lainey scolds, picking her up. I can tell she doesn't mean it though, because Licorice is purring loudly and Lainey is kissing her.
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Overview
The politics and science of health and disease remain contested terrain among scientists, health practitioners, policy makers, industry, communities, and the public. Stakeholders in disputes about illnesses or conditions disagree over their fundamental causes as well as how they should be treated and prevented. This thought-provoking book crosses disciplinary boundaries by engaging with both public health policy and social science, asserting that science, activism, and policy are not separate issues and showing ...