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As the population ages and the health care system focuses on cost-containment, family caregivers have become the frontline providers of most long-term and chronic care. Patient care at home falls mainly on untrained and unprepared family members, who struggle to adjust to the new roles, responsibilities, and expenses. Because the culture of family caregivers—their values, priorities, and relationships to the patient—often differs markedly from that of professionals, the result can be conflict and misunderstanding.
In The Cultures of Caregiving, Carol Levine and Thomas Murray bring together accomplished physicians, nurses, social workers, and policy experts to examine the differences and conflicts (and sometimes common ground) between family caregivers and health care professionals—and to suggest ways to improve the situation. Topics addressed include family caregivers and the health care system; cultural diversity and family caregiving; the changing relationship between nurses, home care aides, and families; long-term health care policy; images of family caregivers in film; and the ethical dimensions of professional and family responsibilities. The Cultures of Caregiving provides needed answers in the contemporary crisis of family caregiving for a readership of professionals and students in medical ethics, health policy, and such fields as primary care, geriatrics, oncology, nursing, and social work.
Contributors: Donna Jean Appell, R.N., Project DOCC: Delivery of Chronic Care; Jeffrey Blustein, Ph.D., Albert Einstein College of Medicine and Barnard College; Judith Feder, Ph.D., Georgetown University; Gladys Gonzalaz-Ramos, M.S.W., Ph.D., New York University School of Social Work and NYU Medical School; David A. Gould, Ph.D., United Hospital Fund in New York City; Eileen Hanley, R.N., M.B.A., St. Vincent's Hospital Manhattan / Saint Vincent Catholic Medical Centers, New York City; Maggie Hoffman, Project DOCC: Delivery of Chronic Care; Alexis Kuerbis, C.S.W., Mount Sinai Medical Center; Carol Levine, M.A., United Hospital Fund, in New York City; Jerome K. Lowenstein, M.D., New York University Medical Center; Mathy Mezey, R.N., Ed.D., New York University; Thomas H. Murray, Ph.D., The Hastings Center, Garrison, New York; Judah L. Ronch, Ph.D., LifeSpan DevelopMental Systems; Sheila M. Rothman, Ph.D., Columbia University Mailman School of Public Health; Rick Surpin, Independence Care System.
Johns Hopkins University Press
Editors Levine and Murray and their contributors demonstrate a broad understanding of the culture of caregiving and families.
|List of Contributors|
|Introduction : Caregiving as family affair : a new perspective on cultural diversity||1|
|1||Family caregivers and the health care system : findings from a national survey||15|
|2||On loving care and the persistence of memories : reflections of a grieving daughter||35|
|3||The weight of shared lives : truth telling and family caregiving||47|
|4||Family caregiving in New England : nineteenth-century community care gives way to twentieth-century institutions||57|
|5||Nurses and their changing relationships to family caregivers||70|
|6||The culture of home care : whose values prevail?||87|
|7||Explaining the paradox of long-term care policy : an example of dissonant cultures||103|
|8||Family caregivers in popular culture : ideals and reality in the movies||113|
|9||Integrating medicine and the family : toward a coherent ethic of care||127|
|10||Project DOCC : a parent-directed model for educating pediatric residents||147|
|11||Changing institutional culture : turning adversaries into partners||155|
|Conclusion : Building on common ground||171|