The Cultures of Caregiving: Conflict and Common Ground among Families, Health Professionals, and Policy Makers / Edition 1

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As the population ages and the health care system focuses on cost-containment, family caregivers have become the frontline providers of most long-term and chronic care. Patient care at home falls mainly on untrained and unprepared family members, who struggle to adjust to the new roles, responsibilities, and expenses. Because the culture of family caregivers—their values, priorities, and relationships to the patient—often differs markedly from that of professionals, the result can be conflict and misunderstanding.

In The Cultures of Caregiving, Carol Levine and Thomas Murray bring together accomplished physicians, nurses, social workers, and policy experts to examine the differences and conflicts (and sometimes common ground) between family caregivers and health care professionals—and to suggest ways to improve the situation. Topics addressed include family caregivers and the health care system; cultural diversity and family caregiving; the changing relationship between nurses, home care aides, and families; long-term health care policy; images of family caregivers in film; and the ethical dimensions of professional and family responsibilities. The Cultures of Caregiving provides needed answers in the contemporary crisis of family caregiving for a readership of professionals and students in medical ethics, health policy, and such fields as primary care, geriatrics, oncology, nursing, and social work.

Contributors: Donna Jean Appell, R.N., Project DOCC: Delivery of Chronic Care; Jeffrey Blustein, Ph.D., Albert Einstein College of Medicine and Barnard College; Judith Feder, Ph.D., Georgetown University; Gladys Gonzalaz-Ramos, M.S.W., Ph.D., New York University School of Social Work and NYU Medical School; David A. Gould, Ph.D., United Hospital Fund in New York City; Eileen Hanley, R.N., M.B.A., St. Vincent's Hospital Manhattan / Saint Vincent Catholic Medical Centers, New York City; Maggie Hoffman, Project DOCC: Delivery of Chronic Care; Alexis Kuerbis, C.S.W., Mount Sinai Medical Center; Carol Levine, M.A., United Hospital Fund, in New York City; Jerome K. Lowenstein, M.D., New York University Medical Center; Mathy Mezey, R.N., Ed.D., New York University; Thomas H. Murray, Ph.D., The Hastings Center, Garrison, New York; Judah L. Ronch, Ph.D., LifeSpan DevelopMental Systems; Sheila M. Rothman, Ph.D., Columbia University Mailman School of Public Health; Rick Surpin, Independence Care System.

Johns Hopkins University Press

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Editorial Reviews

Journal of Health Care for the Poor and Underserved - Fahmida Hussain

The Cultures of Caregiving: Conflict and Common Ground among Families, Health Professionals, and Policy Makers is a well-crafted book.


Editors Levine and Murray and their contributors demonstrate a broad understanding of the culture of caregiving and families.


Editors Levine and Murray and their contributors demonstrate a broad understanding of the culture of caregiving and families.

Family Caregiver Alliance

A well-written and thought-provoking book written by professionals in the health care industry, some who are family caregivers themselves.

Family Medicine - Tina Kenyon

This text would be helpful for teaching students in medicine, nursing, social work, and health care administration.

Journal of Women and Aging - Anne P. Glass

This book can be recommended to family caregivers, health care staff, and policy-makers—as well as to those teaching courses in health care, policy, and gerontology.

Journal of Women and Aging - Molly Ranney

A must read for those who are planning to work in the healthcare field and for those currently employed in it.

Inside GCM - Kathleen Wall

A well-researched and fascinating historical recount of the cultural differences between the family members, health professionals and policy makers... Recommended background reading for geriatric care managers and professionals seeking policy changes in caregiving.

Baylor University Medical Center Proceedings - David Sigel

The collaboration and talents brought together to write this book are phenomenal... This book should be considered an instrument in building and solidifying the bridge between caregivers and the medical community.

JAMA - Peggy Dilworth-Anderson

Levine and Murray have taken us beyond complaining about conflicts and problems in providing healthcare across the cultural divide. Instead, they offer insights, knowledge, and, most important, direction for creating remedies to problems.

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Product Details

  • ISBN-13: 9780801887710
  • Publisher: Johns Hopkins University Press
  • Publication date: 9/5/2007
  • Edition description: Reprint
  • Edition number: 1
  • Pages: 216
  • Sales rank: 1,548,045
  • Product dimensions: 6.00 (w) x 9.00 (h) x 0.57 (d)

Meet the Author

Carol Levine is director of the Families and Health Care Project of the United Hospital Fund in New York. Thomas H. Murray is president of the Hastings Center.

Johns Hopkins University Press

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Table of Contents

List of Contributors
Introduction : Caregiving as family affair : a new perspective on cultural diversity 1
1 Family caregivers and the health care system : findings from a national survey 15
2 On loving care and the persistence of memories : reflections of a grieving daughter 35
3 The weight of shared lives : truth telling and family caregiving 47
4 Family caregiving in New England : nineteenth-century community care gives way to twentieth-century institutions 57
5 Nurses and their changing relationships to family caregivers 70
6 The culture of home care : whose values prevail? 87
7 Explaining the paradox of long-term care policy : an example of dissonant cultures 103
8 Family caregivers in popular culture : ideals and reality in the movies 113
9 Integrating medicine and the family : toward a coherent ethic of care 127
10 Project DOCC : a parent-directed model for educating pediatric residents 147
11 Changing institutional culture : turning adversaries into partners 155
Conclusion : Building on common ground 171
Index 183
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