The Cultures of Caregiving: Conflict and Common Ground among Families, Health Professionals, and Policy Makers / Edition 1

The Cultures of Caregiving: Conflict and Common Ground among Families, Health Professionals, and Policy Makers / Edition 1

by Carol Levine
     
 

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ISBN-10: 0801887712

ISBN-13: 9780801887710

Pub. Date: 09/05/2007

Publisher: Johns Hopkins University Press

As the population ages and the health care system focuses on cost-containment, family caregivers have become the frontline providers of most long-term and chronic care. Patient care at home falls mainly on untrained and unprepared family members, who struggle to adjust to the new roles, responsibilities, and expenses. Because the culture of family

Overview

As the population ages and the health care system focuses on cost-containment, family caregivers have become the frontline providers of most long-term and chronic care. Patient care at home falls mainly on untrained and unprepared family members, who struggle to adjust to the new roles, responsibilities, and expenses. Because the culture of family caregivers—their values, priorities, and relationships to the patient—often differs markedly from that of professionals, the result can be conflict and misunderstanding.

In The Cultures of Caregiving, Carol Levine and Thomas Murray bring together accomplished physicians, nurses, social workers, and policy experts to examine the differences and conflicts (and sometimes common ground) between family caregivers and health care professionals—and to suggest ways to improve the situation. Topics addressed include family caregivers and the health care system; cultural diversity and family caregiving; the changing relationship between nurses, home care aides, and families; long-term health care policy; images of family caregivers in film; and the ethical dimensions of professional and family responsibilities. The Cultures of Caregiving provides needed answers in the contemporary crisis of family caregiving for a readership of professionals and students in medical ethics, health policy, and such fields as primary care, geriatrics, oncology, nursing, and social work.

Contributors: Donna Jean Appell, R.N., Project DOCC: Delivery of Chronic Care; Jeffrey Blustein, Ph.D., Albert Einstein College of Medicine and Barnard College; Judith Feder, Ph.D., Georgetown University; Gladys Gonzalaz-Ramos, M.S.W., Ph.D., New York University School of Social Work and NYU Medical School; David A. Gould, Ph.D., United Hospital Fund in New York City; Eileen Hanley, R.N., M.B.A., St. Vincent's Hospital Manhattan / Saint Vincent Catholic Medical Centers, New York City; Maggie Hoffman, Project DOCC: Delivery of Chronic Care; Alexis Kuerbis, C.S.W., Mount Sinai Medical Center; Carol Levine, M.A., United Hospital Fund, in New York City; Jerome K. Lowenstein, M.D., New York University Medical Center; Mathy Mezey, R.N., Ed.D., New York University; Thomas H. Murray, Ph.D., The Hastings Center, Garrison, New York; Judah L. Ronch, Ph.D., LifeSpan DevelopMental Systems; Sheila M. Rothman, Ph.D., Columbia University Mailman School of Public Health; Rick Surpin, Independence Care System.

Product Details

ISBN-13:
9780801887710
Publisher:
Johns Hopkins University Press
Publication date:
09/05/2007
Edition description:
Reprint
Pages:
216
Sales rank:
885,753
Product dimensions:
6.00(w) x 9.00(h) x 0.57(d)

Table of Contents


List of Contributors     vii
Foreword   Christine K. Cassell, M.D.     xv
Preface     xxi
Introduction: Caregiving as a Family Affair: A New Perspective on Cultural Diversity   Carol Levine   Thomas H. Murray     1
Perspectives on Family Caregiving: Data, Diversity, and Personal Experience
Family Caregivers and the Health Care System: Findings from a National Survey   David A. Gould     15
On Loving Care and the Persistence of Memories: Reflections of a Grieving Daughter   Gladys Gonzalez-Ramos     35
The Weight of Shared Lives: Truth Telling and Family Caregiving   Jerome K. Lowenstein     47
Home Care Past and Present
Family Caregiving in New England: Nineteenth-Century Community Care Gives Way to Twentieth-Century Institutions   Sheila M. Rothman     57
Nurses and Their Changing Relationships to Family Caregivers   Mathy Mezey     70
The Culture of Home Care: Whose Values Prevail?   Rick Surpin   Eileen Hanley     87
The Societal Context
Explaining the Paradox of Long-Term Care Policy: An Example of Dissonant Cultures   Judith Feder   Carol Levine     103
Family Caregivers in Popular Culture: Images and Reality in the Movies   Carol Levine   Alexis Kuerbis     113
Bridging the Gap among Cultures
Integrating Medicine and the Family: Toward a Coherent Ethic of Care   Jeffrey Blustein     127
Project DOCC: A Parent-Directed Model for Educating Pediatric Residents   Maggie Hoffman   Donna Jean Appell     147
Changing Institutional Culture: Turning Adversaries into Partners   Judah L. Ronch     155
Conclusion: Building on Common Ground   Carol Levine   Thomas H. Murray     171
Index     183

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