Cystic Fibrosis: A Guide for Patient and Family

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Overview

This one-of-a-kind guide offers easy-to-understand explanations, advice, and management options for patients or parents of patients with cystic fibrosis. The book explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. As one reviewer said, this book “is the only complete answer book for everyone living with the disease. It is an indispensable resource for families of children with CF, adolescent and adult ...

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Cystic Fibrosis: A Guide for Patient and Family

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More About This Book

Overview

This one-of-a-kind guide offers easy-to-understand explanations, advice, and management options for patients or parents of patients with cystic fibrosis. The book explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. As one reviewer said, this book “is the only complete answer book for everyone living with the disease. It is an indispensable resource for families of children with CF, adolescent and adult patients, and physicians, nurses, respiratory therapists, and social workers involved in the care of CF patients.”

The book contains black-and-white illustrations.

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Editorial Reviews

Wayne M. Samuelson
This is the second edition of a book aimed at people affected by cystic fibrosis, including patients, family, friends, and health professionals. The purpose is to inform those affected by the disease of the latest developments and help them pursue a normal life. The book fills an important gap for patients and families in providing answers to key questions. Although the book is primarily directed toward patients and their families and friends, medical students and trainees in both pediatrics and adult medicine will find it very useful. Established practitioners who are entering the field of cystic fibrosis as caregivers will also find this to be a very valuable introduction. The book is supplemented by illustrations that are clear and easy to understand. They are appropriate to the subject matter and text. A brief bibliography of classic references is provided. The table of contents is complete and easy to follow. There is an extensive index that is very useful. Each chapter begins with a highlighted summary of information called ""The Basics."" These are the high points of each chapter, and represent the essential information in each section. This carefully constructed book incorporates the expertise of some of the leaders in the field of cystic fibrosis into an easy to read book that clearly and frankly discusses the major issues of living with cystic fibrosis. The book is aimed at patients and their families. However, trainees in internal medicine, family practice, and pediatrics will find this book very useful. It would be a good acquisition for the medical library of any center that deals with cystic fibrosis patients.
From The Critics
Reviewer: Wayne M. Samuelson, MD (University of Utah Health Sciences Center)
Description: This is the second edition of a book aimed at people affected by cystic fibrosis, including patients, family, friends, and health professionals.
Purpose: The purpose is to inform those affected by the disease of the latest developments and help them pursue a normal life. The book fills an important gap for patients and families in providing answers to key questions.
Audience: Although the book is primarily directed toward patients and their families and friends, medical students and trainees in both pediatrics and adult medicine will find it very useful. Established practitioners who are entering the field of cystic fibrosis as caregivers will also find this to be a very valuable introduction.
Features: The book is supplemented by illustrations that are clear and easy to understand. They are appropriate to the subject matter and text. A brief bibliography of classic references is provided. The table of contents is complete and easy to follow. There is an extensive index that is very useful. Each chapter begins with a highlighted summary of information called "The Basics." These are the high points of each chapter, and represent the essential information in each section.
Assessment: This carefully constructed book incorporates the expertise of some of the leaders in the field of cystic fibrosis into an easy to read book that clearly and frankly discusses the major issues of living with cystic fibrosis. The book is aimed at patients and their families. However, trainees in internal medicine, family practice, and pediatrics will find this book very useful. It would be a good acquisition for the medical library of any center that deals with cystic fibrosis patients.

3 Stars from Doody
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Product Details

  • ISBN-13: 9781608317530
  • Publisher: Lippincott Williams & Wilkins
  • Publication date: 7/29/2011
  • Edition description: Fourth
  • Edition number: 4
  • Pages: 416
  • Sales rank: 711,227
  • Product dimensions: 6.33 (w) x 8.98 (h) x 0.76 (d)

Table of Contents

 Contributing Authors v
Preface vii
Acknowledgments ix
Introduction xiii
1 The Basic Defect 1
Daniel J. Weiner, Raymond A. Frizzell, and David M. Orenstein
2 Making the Diagnosis 13
Jonathan E. Spahr, David M. Orenstein, and Daniel J. Weiner
3 The Respiratory System 21
Daniel J. Weiner and David M. Orenstein
4 The Gastrointestinal Tract 83
Douglas S. Lindblad, Daniel J. Weiner, and David M. Orenstein
5 Other Systems 103
Daniel J. Weiner and David M. Orenstein
6 Nutrition 113
Judith A. Fulton, Iris Yann, Daniel J. Weiner, and David M. Orenstein
7 Hospitalization and Other Special Treatments 135
Jonathan E. Spahr, David M. Orenstein, Daniel J. Weiner,
and Louise T. Bauer
8 Transplantation 153
Geoffrey Kurland, Jonathan E. Spahr, Daniel J. Weiner,
and David M. Orenstein
9 Daily Life 195
Jonathan E. Spahr, David M. Orenstein, and Daniel J. Weiner
10 Exercise 205
David M. Orenstein and Daniel J. Weiner
11 Genetics 221
Barbara Karczeski, Garry R. Cutting, and David M. Orenstein
12 The Family 235
David M. Orenstein and Daniel J. Weiner
13 The Teenage Years 245
Jonathan E. Spahr, David M. Orenstein, and Daniel J. Weiner
14 Cystic Fibrosis and Adulthood 265
Joseph M. Piliewski, David M. Orenstein, Jonathan E. Spahr,
and Daniel J. Weiner
15 Death and Cystic Fibrosis 287
Elisabeth P. Dellon and David M. Orenstein
16 Research and Future Treatments 295
Christopher Penland, David M. Orenstein, and Daniel J. Weiner
17 The Cystic Fibrosis Foundation 311
Robert J. Beall

A P P E N D I C E S
A Glossary of Terms 319
B Medications 325
C Airway Clearance Techniques 363
D Some High Calorie Recipes 375
E The History of Cystic Fibrosis 385
F Bibliography and Resources 387
G Cystic Fibrosis Care Centers in the United States 391
H Cystic Fibrosis Care Centers Worldwide 411
Index 445

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Sort by: Showing all of 3 Customer Reviews

  • Posted January 23, 2009

    Outstanding Book!! Outstanding Author/Doctor

    My daughter was diagnosed with Cystic Fibrosis five years ago. I was given the previous version of this book by another CF doctor. It has become my go to book for anything and everything that I need to know about CF. We now have the added bonus of having Dr. Orenstein as our Pediatric Pulmonologist. To say he is an outstanding doctor or person is an understatement. He genuinely cares about his CF patients and the work he does. His knowledge of CF and CF Care is unmatchable.<BR/><BR/>We love this book and we love Dr. O.

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  • Anonymous

    Posted May 31, 2007

    great for help understanding CF

    great guide to understand CF

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  • Anonymous

    Posted December 13, 2003

    This is the Cystic Fibrosis Bible

    The latest edtion of Dr. Orenstein's excellent handbook which guides individuals through the ever-changing world of Cystic Fibrosis. This is the number one resource for parents of a child who has been diagnosed with cf. Written by one of the best pediatric pulmonologists specializing in cystic fibrosis, in a lively, upbeat manner, this work gives hope as well as a wealth of information to individuals affected by this disorder. This book is written with ease of use in mind. A handy reference and a good read for anyone interested in this condition. Whether you are the parent of a newly-diagnosed child, the person with cf, or the professional looking for the best up-to-date source of medical information about cystic fibrosis available from a single text, you won't be disappointed with this book.

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