Cystic Fibrosis: A Guide for Patient and Family / Edition 3

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Overview

Designed specifically for patients with cystic fibrosis (CF) and their families, this clear and accessible resource explains the how and why behind the disease process, outlines the fundamentals of diagnosis and screening, and addresses the challenges of treatment for those living with CF.

The book contains black-and-white illustrations.

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Editorial Reviews

Wayne M. Samuelson
This is the second edition of a book aimed at people affected by cystic fibrosis, including patients, family, friends, and health professionals. The purpose is to inform those affected by the disease of the latest developments and help them pursue a normal life. The book fills an important gap for patients and families in providing answers to key questions. Although the book is primarily directed toward patients and their families and friends, medical students and trainees in both pediatrics and adult medicine will find it very useful. Established practitioners who are entering the field of cystic fibrosis as caregivers will also find this to be a very valuable introduction. The book is supplemented by illustrations that are clear and easy to understand. They are appropriate to the subject matter and text. A brief bibliography of classic references is provided. The table of contents is complete and easy to follow. There is an extensive index that is very useful. Each chapter begins with a highlighted summary of information called ""The Basics."" These are the high points of each chapter, and represent the essential information in each section. This carefully constructed book incorporates the expertise of some of the leaders in the field of cystic fibrosis into an easy to read book that clearly and frankly discusses the major issues of living with cystic fibrosis. The book is aimed at patients and their families. However, trainees in internal medicine, family practice, and pediatrics will find this book very useful. It would be a good acquisition for the medical library of any center that deals with cystic fibrosis patients.
From The Critics
Reviewer: Wayne M. Samuelson, MD (University of Utah Health Sciences Center)
Description: This is the second edition of a book aimed at people affected by cystic fibrosis, including patients, family, friends, and health professionals.
Purpose: The purpose is to inform those affected by the disease of the latest developments and help them pursue a normal life. The book fills an important gap for patients and families in providing answers to key questions.
Audience: Although the book is primarily directed toward patients and their families and friends, medical students and trainees in both pediatrics and adult medicine will find it very useful. Established practitioners who are entering the field of cystic fibrosis as caregivers will also find this to be a very valuable introduction.
Features: The book is supplemented by illustrations that are clear and easy to understand. They are appropriate to the subject matter and text. A brief bibliography of classic references is provided. The table of contents is complete and easy to follow. There is an extensive index that is very useful. Each chapter begins with a highlighted summary of information called "The Basics." These are the high points of each chapter, and represent the essential information in each section.
Assessment: This carefully constructed book incorporates the expertise of some of the leaders in the field of cystic fibrosis into an easy to read book that clearly and frankly discusses the major issues of living with cystic fibrosis. The book is aimed at patients and their families. However, trainees in internal medicine, family practice, and pediatrics will find this book very useful. It would be a good acquisition for the medical library of any center that deals with cystic fibrosis patients.

3 Stars from Doody
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Product Details

  • ISBN-13: 9780781741521
  • Publisher: Lippincott Williams & Wilkins
  • Publication date: 11/28/2003
  • Edition description: Third Edition
  • Edition number: 3
  • Pages: 448
  • Product dimensions: 8.68 (w) x 10.32 (h) x 1.17 (d)

Table of Contents

Contributing Authors
Introduction
Preface
Acknowledgments
1 The Basic Defect 1
2 Making the Diagnosis 13
3 The Respiratory System 19
4 The Gastrointestinal Tract 77
5 Other Systems 97
6 Nutrition 107
7 Hospitalization and Other Special Treatments 131
8 Transplantation 149
9 Daily Life 189
10 Exercise 197
11 Genetics 213
12 The Family 227
13 The Teenage Years 235
14 Cystic Fibrosis and Adulthood 253
15 Death and Cystic Fibrosis 273
16 Research and Future Treatments 281
17 The Cystic Fibrosis Foundation 293
App. A: Glossary of Terms 303
App. B: Medications 309
Glossary of Drugs 334
App. C Airway Clearance Techniques 347
App. D Some High Calorie Recipes 363
App. E The History of Cystic Fibrosis 373
App. F: Bibliography 375
App. G Cystic Fibrosis Care Centers in the United States 377
App. H Cystic Fibrosis Care Centers Worldwide 419
Subject Index 449
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Sort by: Showing all of 3 Customer Reviews
  • Posted January 23, 2009

    Outstanding Book!! Outstanding Author/Doctor

    My daughter was diagnosed with Cystic Fibrosis five years ago. I was given the previous version of this book by another CF doctor. It has become my go to book for anything and everything that I need to know about CF. We now have the added bonus of having Dr. Orenstein as our Pediatric Pulmonologist. To say he is an outstanding doctor or person is an understatement. He genuinely cares about his CF patients and the work he does. His knowledge of CF and CF Care is unmatchable.<BR/><BR/>We love this book and we love Dr. O.

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  • Anonymous

    Posted May 31, 2007

    great for help understanding CF

    great guide to understand CF

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  • Anonymous

    Posted December 13, 2003

    This is the Cystic Fibrosis Bible

    The latest edtion of Dr. Orenstein's excellent handbook which guides individuals through the ever-changing world of Cystic Fibrosis. This is the number one resource for parents of a child who has been diagnosed with cf. Written by one of the best pediatric pulmonologists specializing in cystic fibrosis, in a lively, upbeat manner, this work gives hope as well as a wealth of information to individuals affected by this disorder. This book is written with ease of use in mind. A handy reference and a good read for anyone interested in this condition. Whether you are the parent of a newly-diagnosed child, the person with cf, or the professional looking for the best up-to-date source of medical information about cystic fibrosis available from a single text, you won't be disappointed with this book.

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