- Shopping Bag ( 0 items )
VOYASupported by the author's experiences as a cystic fibrosis summer camp counselor and pediatric respiratory therapist, this great resource gives extensive medical and technical information as well as profound insight into the disease's human impact. The first four chapters focus on the definition, source, diagnosis, and grueling treatments of cystic fibrosis before moving on to discuss patient and family reactions to the information and challenges. Apel raises the terrible realities, as patients live longer, of further complications and describes the too-often Pyrrhic victories of meticulous treatment schedules and lung transplants. She also talks about the how and why of tragic, youthful deaths and projects future research. Boxes, graphics, and balloons include interviews, suggestions for further reading, and related facts. In addition to offering long lists of print sources and Web sites, Apel puts a human face on the disease with reactions from over eighty personal-contact research efforts as well as poetry and essays. Like Epilepsy (Scarecrow Press, 2002/VOYA April 2002) from the same series, this entry offers excellent research information for patients, families, and students. Its additional pages, however, provides even greater depth. Gripping personal accounts will pull in readers, teenage and adult, who are not familiar with the disease. This volume is an excellent nonfiction companion for Breath (Atheneum, 2003). (It Happened to Me). VOYA CODES: 5Q 4P J S (Hard to imagine it being any better written; Broad general YA appeal; Junior High, defined as grades 7 to 9; Senior High, defined as grades 10 to 12). 2006, Scarecrow Press, 280p.; Glossary. Index. Photos. Charts. Biblio. SourceNotes. Further Reading. Chronology., PLB $42.. Ages 12 to 18.