Cystic Fibrosis: The Ultimate Teen Guide

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Overview

Cystic Fibrosis: The Ultimate Teen Guide leaves no aspect of this disease untold. Based on a series of interviews with young people with CF and their family members, the day-to-day dealings of life as a cystic fibrosis patient are described. Some of the topics covered include a description of the illness; a comprehensive discussion of who gets the disease and why; an explanation of the procedures involved in diagnosing CF; coverage of the arduous daily therapies involved in maintaining the life of a person with CF; and the challenges of dealing with CF-related diabetes. These teens' stories reflect how they live their lives to the fullest, how they are not bitter about their situations, and how they look forward to new medications, more-effective therapies, and—one day soon—a cure. Also included are stories told by people, now in their 30s and 40s, having CF who are still alive and coping well with the disease, demonstrating that progress is being made and that they can hope to live beyond their teen years, something that wasn't likely 20 years ago. This book is the ideal guide for any reader who wants positive medical information about CF, offering an extensive glossary and listings of books, websites, and organizations about Cystic Fibrosis.

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Editorial Reviews

VOYA
Supported by the author's experiences as a cystic fibrosis summer camp counselor and pediatric respiratory therapist, this great resource gives extensive medical and technical information as well as profound insight into the disease's human impact. The first four chapters focus on the definition, source, diagnosis, and grueling treatments of cystic fibrosis before moving on to discuss patient and family reactions to the information and challenges. Apel raises the terrible realities, as patients live longer, of further complications and describes the too-often Pyrrhic victories of meticulous treatment schedules and lung transplants. She also talks about the how and why of tragic, youthful deaths and projects future research. Boxes, graphics, and balloons include interviews, suggestions for further reading, and related facts. In addition to offering long lists of print sources and Web sites, Apel puts a human face on the disease with reactions from over eighty personal-contact research efforts as well as poetry and essays. Like Epilepsy (Scarecrow Press, 2002/VOYA April 2002) from the same series, this entry offers excellent research information for patients, families, and students. Its additional pages, however, provides even greater depth. Gripping personal accounts will pull in readers, teenage and adult, who are not familiar with the disease. This volume is an excellent nonfiction companion for Breath (Atheneum, 2003). (It Happened to Me). VOYA CODES: 5Q 4P J S (Hard to imagine it being any better written; Broad general YA appeal; Junior High, defined as grades 7 to 9; Senior High, defined as grades 10 to 12). 2006, Scarecrow Press, 280p.; Glossary. Index. Photos. Charts. Biblio. SourceNotes. Further Reading. Chronology., PLB $42.. Ages 12 to 18.
—Lucy Schall
School Library Journal
Gr 9 Up-A solid introduction to the disease-the facts, the challenges, the complications, and the outlook for the future. A plethora of personal stories accompanies each chapter. The book opens with the author's account of going to CF camp for several years, the friends she made there, and the ones she lost. Each chapter has a small black-and-white photograph of her fellow campers. An anecdote about something that happened at camp follows the picture; it is italicized and in small print, making it difficult to read. Interspersed throughout the text are geometrical boxes with additional facts. Famous people who have the disease or who have a child, parent, or friend with it are mentioned. Large caption boxes are filled with quotes or poignant poems written by CF patients, and eye-opening statistics appear throughout. Notes follow each chapter. The afterword tells of the individuals mentioned in the book who accomplished something they never expected to live long enough to do, while others tell of the deaths of some of the teens introduced. Young adults with the disease will feel a part of a worldwide community after reading this book. There is optimism as well as sadness here, but most of all there is the resonance of CF sufferers' voices telling others, "You are not alone."-Marilyn Fairbanks, Azure IRC, Brockton High School, MA Copyright 2006 Reed Business Information.
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Product Details

  • ISBN-13: 9780810848214
  • Publisher: The Scarecrow Press, Inc.
  • Publication date: 1/28/2006
  • Series: It Happened to Me Series , #14
  • Pages: 280
  • Age range: 12 - 17 Years
  • Product dimensions: 7.37 (w) x 10.35 (h) x 0.92 (d)

Meet the Author

Melanie Ann Apel began writing about CF in 1995 and has since published more than 40 non-fiction books for children and young adults. She worked as a pediatric respiratory therapist at Children's Memorial Hospital in Chicago for six years.

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Table of Contents

Part 1 Medical Disclaimer Part 2 Acknowledgments Part 3 Introduction Chapter 4 1. Cystic Fibrosis: The Facts Chapter 5 2. A Genetic Disorder Chapter 6 3. A Diagnosis Chapter 7 4. A Daily Challenge Chapter 8 5. Good Days and Bad Days Chapter 9 6. Living and Laughing Chapter 10 7. Other Complications Chapter 11 8. A Second Chance: The Lung Transplant Chapter 12 9. In the End Chapter 13 10. Just over the Horizon Part 14 Afterword Part 15 The Fabulous List of CF Resources Part 16 Glossary Part 17 Glossary of CF Meds Part 18 Bibliography Part 19 Index Part 20 About the Author

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