A Delicate Balance

A Delicate Balance

by Susan Milstrey Wells
     
 

Chronic physical illnesses-such as lupus, Sjogren's syndrome, fibromyalgia, chronic fatigue syndrome, inflammatory bowel disorders, Lyme disease, interstitial cystitis, multiple sclerosis-take their toll on every aspect of a person's life. Though millions of people manage to cook, care for children, or work despite their disability, they do so with fatigue, pain,

Overview

Chronic physical illnesses-such as lupus, Sjogren's syndrome, fibromyalgia, chronic fatigue syndrome, inflammatory bowel disorders, Lyme disease, interstitial cystitis, multiple sclerosis-take their toll on every aspect of a person's life. Though millions of people manage to cook, care for children, or work despite their disability, they do so with fatigue, pain, and the grinding uncertainty of living with chronic illness.A thoughtful exploration of this experience, A Delicate Balance provides both up-to-date practical advice and inspiration for the millions of Americans who struggle daily against chronic illness. From locating a suitable health-care provider and making sense of the powerful emotions that accompany chronic illness, to seeking accommodations under the Americans with Disabilities Act and applying for Social Security Disability Insurance, A Delicate Balance is informed by in-depth, personal interviews with patients, care providers, and family members. The result is a compassionate and immensely hopeful book for anyone touched by a chronic disease.

Editorial Reviews

Library Journal
Many people suffer from chronic illnesses such as chronic fatigue syndrome, fibromyalgia, and Crohn's disease, and though their suffering is great, it is often invisible to others. Wells, a journalist and health writer who suffers from fibromyalgia, Sjogren's syndrome, and interstitial cystitis, has written this book in the hope of helping herself and others attain a balance between completely giving in to disease and denying that they are ill. Though the writing style does not enliven the subject, Wells gives good advice on finding a doctor, accepting illness, working with a chronic disease, maintaining relationships, and searching for both conventional and alternative treatments. She also offers insight into chronic illness from both her point of view and that of a number of other chronically ill people she interviewed. The comments of her interviewees are the most compelling part of the book. Recommended for public libraries and patient education collections.Stacey Hathaway, Fordham Health Sciences Lib., Wright State Univ., Dayton, OH
Booknews
The author follows 21 individuals, including herself, who suffer from chronic and largely invisible illnesses. She addresses such questions as finding a comprehensive diagnosis, locating a capable and caring health care provider, considering traditional or alternative treatments, making sense of powerful emotions, strengthening relationships with family and friends, making significant career decisions, and reflecting on how illness changes one's overall life. She also presents research on the mind-body connection and practical advice on topics such as using the internet for advice and support. Annotation c. by Book News, Inc., Portland, Or.

Product Details

ISBN-13:
9780738203232
Publisher:
Da Capo Press
Publication date:
06/01/2000
Edition description:
New Edition
Pages:
312
Product dimensions:
0.65(w) x 6.00(h) x 9.00(d)
Lexile:
1300L (what's this?)

Meet the Author

Susan Milstrey Wells has been a professional writer and editor for more than twenty years. She is a member of the Sjogren's Syndrome Foundation Board of Directors and lives in Halfmoon, New York.

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