Despite Lupus: How to Live Well with a Chronic Illness [NOOK Book]

Overview

Feel like you’re losing the battle with lupus? Look no further than Despite Lupus, the book that will help you obtain the emotional and physical wellness you deserve. There is no cure for lupus, but there is a way to live well, despite it. The choices involved in living well with a chronic illness aren’t easy, but no one is in a better position to make the right ones than you. In Despite Lupus, you’ll learn how your lifestyle choices have contributed to your illness, why you make the choices you do, and most ...
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Despite Lupus: How to Live Well with a Chronic Illness

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Overview

Feel like you’re losing the battle with lupus? Look no further than Despite Lupus, the book that will help you obtain the emotional and physical wellness you deserve. There is no cure for lupus, but there is a way to live well, despite it. The choices involved in living well with a chronic illness aren’t easy, but no one is in a better position to make the right ones than you. In Despite Lupus, you’ll learn how your lifestyle choices have contributed to your illness, why you make the choices you do, and most importantly, how you can make better ones moving forward. A fulfilling life awaits you; this is the path that will get you there. In Despite Lupus, you’ll discover:

*Tips on tackling the mental and physical limitations brought on by the disease
*Insight into dealing with doctors, co-workers, friends and family members
*Tricks for managing test results, prescriptions, and myriad symptoms
*Exercises to help you eliminate stress, re-evaluate priorities, and refocus productivity

Reviews:
"An interesting and useful guide that instructs lupus patients in the art of coping and helping themselves with a serious disorder."
Daniel J. Wallace, MD
Rheumatologist
Author, “The Lupus Book: A Guide for Patients and Their Families”

“Lupus is a life-altering disease. What Sara [Gorman] learned is that she could let lupus alter her life or she could take charge and alter her own life to achieve better control of her lupus. During the struggle that she shares with her readers, she acquired the wisdom to accept that she would live the rest of her life with lupus. She also developed the courage to rebuild her life with lupus by taking charge of what she could control, and she shares that story. Those elements of wisdom, acceptance and taking control underlie many if not most of the stories that I hear of successfully living with lupus, and that is why I hope many will read Sara’s story and learn from its message of hope.“
Penny Fletcher, President and CEO
Lupus Foundation of America
Greater Washington Chapter

“Sara [Gorman] has written a gem of a book for lupus patients struggling with a new, frightening and unpredictable illness. Her advice is also applicable to all of us: lead a healthier, happier life. Discover the inner self and what is really important to you. Change is the cornerstone of life. Sometimes when we are feeling awful, we fear that "I will feel like this forever". That feeling is understandable but completely false. Things always change. Knowing that we will not feel the same the next day or the next week is comforting. Our ability to change and put our happiness and the happiness of our loved ones as the core of our existence makes us happier and healthier people with our chronic disease, what ever that disease may be. Sara's book helps us learn these and other truths to help us live with lupus and lead happier lives.”
Neil I. Stahl, MD
Rheumatologist

“An invaluable resource for those dealing, not just with lupus, but any chronic illness. Truly moving.”
Sam Rogers
Alliance for Lupus Research

"Suffering through a chronic illness can be one of life's great challenges. Not only do you have to deal with the physical ailment, but you also have to work through the emotional struggle that goes along with it. Then there's the "what if's": "What if we never find a cure?" "What if I never get better?" "What if I'm sick the rest of my life?" And there's also the pressure it can put on relationships. Sara Gorman experienced all of these -- and was able to come through victoriously. Her story is inspiring, challenging, and, most importantly, full of hope for anyone diagnosed with Lupus or any chronic illness."
Steve Kroening
Freelance writer for Success magazine
Publisher of wisdomsedge.com.
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Editorial Reviews

Angela Odom
For four years [the author] fought for a normal life — career, social life, a baby — before realizing she was fighting the battle the wrong way. Instead of surrendering, she changed her strategy. Gorman began living well and improving her life, despite lupus. She learned about her disease and took proactive steps to control the pain, swelling and fatigue caused by it. She realized her life had now changed and what was once normal was no longer normal.
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Product Details

  • BN ID: 2940014523684
  • Publisher: Four Legged Press
  • Publication date: 6/15/2009
  • Sold by: Barnes & Noble
  • Format: eBook
  • Pages: 208
  • Sales rank: 491,786
  • File size: 417 KB

Meet the Author

Sara Gorman was diagnosed with systemic lupus at the age of 26. Determined not to let lupus rewrite her plans for the future, she fought to maintain her demanding work schedule, busy social life, and invincible attitude. But after four years of running her body into the ground, she realized she was fighting life, not living it. Committed to working with the disease rather than against it, she made it her top priority to start living well, despite lupus. Her book, Despite Lupus: How to Live Well with a Chronic Illness, details the steps it took to reach that goal. Letting go of her career, postponing plans for pregnancy, and cutting off her hair (or what she had left) are just a few of the monumental steps she took to reach her goal of living well, despite lupus.

A native of Indiana and graduate of the University of Notre Dame, Sara resides in Alexandria, Virginia with her husband, two young daughters, and pug dog. She continues to blog about living well with a chronic illness at www.despitelupus.com.
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Sort by: Showing all of 4 Customer Reviews
  • Anonymous

    Posted November 10, 2009

    In Despite Lupus, Sara Gorman tells it like it is to live well with a chronic illness. Finally, a book about Lupus that has practical, well documented information that anyone with a chronic illness can use to better their lives. Despite Lupus is an

    easy read, like talking with an understanding friend over a cup of coffee. What the author offers is both inspirational and educational. Of particular interest are her discussions of how to establish a working and trusting relationship with your doctor, how to deal with well-intentioned family and friends, how to set boundaries for yourself and making hard choices in order to live well. Despite Lupus sums up in ordinary language what most "lupites" have been missing in other books on the subject. It's a great read you'll want to share.

    4 out of 4 people found this review helpful.

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  • Posted May 7, 2012

    Should be required reading

    This book was wonderful. It taught me so much! It was a huge inspirational story. If every teenager and adult read this book, our world would be a better and more compassionate place to live. God bless Sara for the courage to share her life. If I could give her a hug right now, I would. Thank you, Sara.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted April 23, 2011

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    Posted March 25, 2012

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Sort by: Showing all of 4 Customer Reviews

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