The Disabled Woman's Guide to Pregnancy and Birth / Edition 1

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Overview

The Disabled Woman's Guide to Pregnancy and Birth was a finalist for a 2005 Foreward Magazine Best Book of the Year Award and a 2006 Ben Franklin Award!

This comprehensive and useful guide is based on the experiences of ninety women with disabilities who chose to have children. In order to bring an intimate focus and understanding to the issues involved in being pregnant and disabled, author Judith Rodgers conducted in-depth interviews with women with 22 different types of disabilities and with a total of 143 pregnancies.

Thoroughly researched and informative, this book is a practical guide both for disabled women planning for pregnancy and the health professionals who work with them.

The Disabled Woman's Guide to Pregnancy and Birth supports the right of all women to choose motherhood, and will be useful for any disabled woman who desires to have a child. The subjects covered include: an introduction to the ninety women and their specific disabilities; the decision to have a baby; parenting with a disability; emotional concerns of the mother, family and friends; nutrition and exercise in pregnancy; a look at each trimester; labor and delivery; caesarean delivery; the postpartum period; and breast-feeding. A list of references and a glossary will assist the reader in obtaining additional information and understanding medical terminology.

Empathetic, balanced, comprehensive, and practical, this guide provides all the facts needed by disabled women and their families. It stresses the importance of informed communication among the pregnant woman, her family members, and health care professionals. It is the only book that answers critical questions and provides guidance for the woman with a disability facing one of the biggest challenges of her life.

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Editorial Reviews

Advance for Nurse Practitioners
"Whether planning a first pregnancy, pregnant, or hoping to improve on the experience of a previous pregnancy, this book will empower disabled women, their partners and the professionals who support them. It should become standard reading for professionals, [we] certainly recommend it." — Disability, Pregnancy & Parenthood international

"An impressive guidebook for disabled moms... Judith Rogers interviewed 90 mothers with disorders ranging from arthritis to spina bifida. The results of these interviews, accompanied by extensive research, provide the foundation for this comprehensive, empowering, clearly written manual."—Mothering

"An introduction to the 90 interviewees gives this work a personal touch and depth that readers will not find in other pregnancy guides. Only someone of Rogers's stature—a respected researcher at Through the Looking Glass, a national resource center for disabled parents—could have written this book. Essential for public, consumer health, women's health, and health sciences collections."—Library Journal Review

"Rogers's wonderful new book addresses every question you may have...Though chock-full of practical advice, the real strength of this book is its emotional honesty... Rogers deserves special kudos for her recognition that women are under a lot of pressure to have children, and the challenges faced by disabled women are that much greater - but challenges that will be alleviated with this comprehensive guidebook." - Kirkus Reports

"A wonderful, positive book for women with disabilities who are planning a pregnancy or are pregnant. It provides them with practical information and gives them a framework of issues to address with their healthcare team... This book clearly fills a niche as there is little information on this topic."—Doody's Reviews

"This is a thorough and comprehensive text on this vital aspect of maternal health...It offers valid information on all of the body systems as well as pertinent issues that would concern a woman, such as...exercise, breast feeding, bladder and bowel management." — National Spinal Cord Injury Association

"...Not your ordinary clinical text or patient guide. Rogers weaves in the stories of 90 women with disabilities. She counteracts the prevalent societal chatter that scolds women with disabilities, insisting that motherhood must not be considered a life option... Disabled women talk about being treated in the medical system as 'a disability,' not as a woman. This book does much to change that tone, elegantly showing us how a textbook description of a medical condition does not give us a sense of the person she is, living with a condition that is unique to her."—Advance for Nurse Practitioners

Doody's Review Service
Reviewer: Elisabeth H. Quint, MD (University of Michigan Medical School)
Description: Through interviews, this book describes the combined pregnancy and birthing experiences of 90 women with a variety of disabilities. Their stories are intertwined with literature and expert testimony surrounding the issues of childbirth and parenting with a disability. More women were interviewed and more literature was added for this second extended edition of a book first published in 1991.
Purpose: The purpose is to provide a practical guide to pregnancy for women with disabilities that will also encourage them to enjoy their pregnancies. Healthcare professionals can learn about some of the problems that their patients have not told them (and some of their practical solutions). This book is unique in that it describes childbirth from the disabled women's point of view.
Audience: It is written for women with disabilities who are contemplating getting pregnant or are pregnant. The author is a mother with a disability as well as a birthing instructor and an occupational therapist. Medical experts and the literature have been consulted for this book.
Features: This book starts with a general section describing the women and their disabilities, as well as the decisions that go into contemplating pregnancy. There is a section on parenting, nutrition and excercise. All three trimesters are discussed in detail as well as vaginal and cesarean birth. A separate chapter on the postpartum period addresses many issues, including special equipment for babies and breastfeeding. The book highlights many practical aspects of pregnancy, childbirth, and parenting in a very positive manner, while making readers aware of the possible problems related to the disability. The exercise section is especially helpful as it written to be very adaptable to any level of mobility. Several appendixes provide the detailed birth experience of the women, categorized by their specific disability. Most of the medical information appears to be fine for the general reader, but in some areas it is somewhat superficial. Several serious medical concerns are mentioned only briefly (like autonomic dysreflexia in women with SCI). The need to have open discussions with healthcare providers and to approach childbirth as a team is emphasized throughout. It is important to remember that the descriptions of events rely on the memory of the women and may not give an accurate picture of some of the medical circumstances of the births.
Assessment: This is a wonderful, positive book for women with disabilities who are planning a pregnancy or are pregnant. It provides them with practical information and gives them a framework of issues to address with their healthcare team. For healthcare professionals who provide obstetrical care, this is a good source of information about the care of women with disabilities as well as experiences of patients. This book clearly fills a niche as there is little information on this topic. This second edition, coming 15 years after the first, contains updated information and more interviews.
Library Journal
Disabled women who choose to have children face obstacles beyond the normal discomforts of pregnancy. Finding supportive medical care and overcoming the concerns of family and friends are only the beginning. Rogers, a woman with cerebral palsy who has two children, has updated her much-needed guide, first published in 1991. For this edition, Rogers interviewed 90 women, diverse in type of disability, ethnicity, and sexual orientation, up from the original 36. She also reviewed the most current literature through 2004 and interviewed medical professionals who work with disabled pregnant women. Covering everything from planning for the pregnancy to parenting after the birth, Rogers's guide also examines such practical issues as getting a wheelchair into an examining room. She also discusses choosing one's doctor, breastfeeding, labor and delivery, and the emotional concerns involved in the decision to have children. Exercises, diet plans, and a resource list round out the book. An introduction to the 90 interviewees gives this work a personal touch and depth that readers will not find in other pregnancy guides. Only someone of Rogers's stature-a respected researcher at Through the Looking Glass, a national resource center for disabled parents-could have written this book. Essential for public, consumer health, women's health, and health sciences collections.-Barbara M. Bibel, Oakland P.L. Copyright 2005 Reed Business Information.
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Product Details

  • ISBN-13: 9781932603088
  • Publisher: Demos Medical Publishing, LLC
  • Publication date: 6/1/2005
  • Edition description: New Edition
  • Edition number: 1
  • Pages: 528
  • Sales rank: 623,863
  • Product dimensions: 6.75 (w) x 9.75 (h) x 1.30 (d)

Meet the Author

Judith Rogers, who is disabled and has two children, is the pregnancy and parenting specialist at Through the Looking Glass, a National Resource Center located in Berkeley, California. Since its inception in 1982, Through the Looking Glass has been the main resource nationally and internationally for disabled parents. Judith Rogers was honored to be a Robert Wood Johnson Community Health Leader in 2002.

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Table of Contents

Preface
Meet the Experts: The Experiences of Ninety Women
The Decision to Have a Baby
The Interaction Between Pregnancy and Disability
Parenting With a Disability
Getting Your Health Care Needs Met
Eating For Two: Nutrition in Pregnancy
Getting in Shape: Exercises for Pregnancy
Nine Months of Change: The First Trimester
Nine Months of Change: The Second Trimester
Nine Months of Change: The Third Trimester
The Main Event: Labor and Delivery
Another Way of Birth: Caesarean Delivery
After Delivery: The Postpartum Period
Appendix A: Pregnancy Tables for the Ninety Women
Appendix B: Pregnancy Discomforts Tables
Appendix C: Diet Plan and Suggested Food Lists
Appendix D: Resources
References
Glossary
Bibliography

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