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Epidermolysis Bullosa: Clinical, Epidemiologic, and Laboratory Advances, and the Findings of the National Epidermolysis Bul
     

Epidermolysis Bullosa: Clinical, Epidemiologic, and Laboratory Advances, and the Findings of the National Epidermolysis Bul

by Jo-David Fine (Editor), Joseph McGuire (Editor), National Epidermolysis Bullosa Registry U.S. Staff, Alan Moshell (Editor), Eugene A. Bauer (Editor)
 

Inherited epidermolysis bullosa (EB) is a group of rare genetic diseas es in which the skin is mechanically very fragile, resulting in chroni c blister formation. In the most severe cases, affected persons may al so experience disease involvement of other organs, cancer, and even pr emature death. In this book, a distinguished group of medical authorit ies presents

Overview

Inherited epidermolysis bullosa (EB) is a group of rare genetic diseas es in which the skin is mechanically very fragile, resulting in chroni c blister formation. In the most severe cases, affected persons may al so experience disease involvement of other organs, cancer, and even pr emature death. In this book, a distinguished group of medical authorit ies presents the first comprehensive examination of EB employing a lar ge, well-characterized research study population and using the latest epidemiological and biostatistical research principles. Unique to this work is its assessment of more than two thousand patients with EB, th e largest such sample likely ever to be assembled in the world.

Editorial Reviews

Booknews
The first full report of the Registry, which was established in September 1986 to track the protean family of mostly inherited skin diseases. Scientists involved with the project provide a definition and historical overview and explore such aspects as the epidemiology in the US, Canadian, and European study populations; cutaneous and skin-associated musculoskeletal manifestations; the risk of selected major extracutaneous outcomes; premature death; altered nutrition; oral manifestations; the molecular biology; non-molecular approaches to treatment; and the rare acquired form. Annotation c. Book News, Inc., Portland, OR (booknews.com)

Product Details

ISBN-13:
9780801860249
Publisher:
Johns Hopkins University Press
Publication date:
05/13/1999
Edition description:
New Edition
Pages:
439
Product dimensions:
6.44(w) x 9.58(h) x 1.33(d)

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Meet the Author

Jo-David Fine, M.D., M.P.H., is a professor of dermatology at the School of Medicine and a clinical professor of epidemiology at the School of Public Health, University of North Carolina at Chapel Hill, and Principal Investigator and Project Head, National Epidermolysis Bullosa Registry, Chapel Hill, North Carolina. Eugene A. Bauer, M.D., is Vice President for Academic Affairs and Dean of the Stanford University School of Medicine. Joseph McGuire, M.D., is a professor of dermatology at Stanford University Medical Center. Alan Moshell, M.D., is Chief, Skin Disease Branch, National Institute of Arthritis and Musculoskeletal and Skin Diseases, National Institutes of Health.

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