Equal Treatment for People with Mental Retardation: Having and Raising Children

Equal Treatment for People with Mental Retardation: Having and Raising Children

Equal Treatment for People with Mental Retardation: Having and Raising Children

Equal Treatment for People with Mental Retardation: Having and Raising Children

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Overview

Engaging in sex, becoming parents, raising children: these are among the most personal decisions we make, and for people with mental retardation, these decisions are consistently challenged, regulated, and outlawed. This book is a comprehensive study of the American legal doctrines and social policies, past and present, that have governed procreation and parenting by persons with mental retardation. It argues persuasively that people with retardation should have legal authority to make their own decisions.

Despite the progress of the normalization movement, which has moved so many people with mental retardation into the mainstream since the 1960s, negative myths about reproduction and child rearing among this population persist. Martha Field and Valerie Sanchez trace these prejudices to the eugenics movement of the late nineteenth and early twentieth centuries. They show how misperceptions have led to inconsistent and discriminatory outcomes when third parties seek to make birth control or parenting decisions for people with mental retardation. They also explore the effect of these decisions on those they purport to protect. Detailed, thorough, and just, their book is a sustained argument for reform of the legal practices and social policies it describes.


Product Details

ISBN-13: 9780674036840
Publisher: Harvard University Press
Publication date: 07/01/2009
Sold by: Barnes & Noble
Format: eBook
Pages: 460
File size: 1 MB

About the Author

Valerie A. Sanchez is Assistant Professor of Law and Associate Director of the Institute for Dispute Resolution at the University of Florida Fredric G. Levin College of Law. She was formerly Lecturer on Law at Harvard Law School.

Table of Contents

Preface

Acknowledgments

PART I: INTRODUCTION

Some Families

Public Policy, Past and Present

Changing Policies toward Mental Retardation

The Current Policy Dilemma concerning Parents with Retardation

Who Are Called "Retarded"?

Causes of Mental Retardation

Defining and Classifying Mental Retardation

A History of Intelligence Testing

Evolving Definitions of IQ

IQ Testing Today

PART II: PROCREATION

Procreative Choice—But Whose?

Different Legal Approaches

Discrimination against Persons Who Have Retardation

The Patient as the Appropriate Decisionmaker

Benefits and Costs of Protective Measures

Resolving the Problem

Evolution of Policies toward Sterilization

Procedural Protections

The Need for Substantive Reforms

Judicial Decisionmaking in a Legislative Void

Ambivalence toward Eugenics

Current Policy Issues concerning Sterilization

Strict Prohibition of Nonconsensual Sterilization

Retreat from Strict Prohibition

Judicial Supervision of Third-Party Consent to Sterilization

What Should the Standards for Sterilization Be?

Substituted Judgment or Best Interests?

Standards for Who Can Be Sterilized and When

Disagreement about the Reasons for Sterilization

Sex and Contraception

Constitutional Law concerning Minors' Access to Sex

Constitutional Law concerning Adults' Access to Sex

Access to Sex for Persons with Retardation

The Importance of Sex Education

Preferring Contraception over Sterilization

Contraception: Practice and Law

Different Legal Treatment of Sterilization and Other Contraceptive Measures

Distinguishing Sterilization from Other Contraception

The Legal Status of Persons with Mental Retardation Conpared with that of Children

The Limited Impact of Guardianship

Four Scenarios

Imprecise Rules about When Guardianship Is Appropriate

Interactions between Guardian and Ward

The Peculiar Problem of Abortion

Two Differing Legal Approaches

Does Practice Accord with the Law?

Standards for Abortion

Resistance from the Patient

PART III: A PROPOSAL FOR SELF-DETERMINATION

Self-Determination Explained and Evaluated

The Necessity for Self-Determination

Respecting a Patient's Resistance

Four Scenarios

Critique: Danger and Unworkability

How the Proposed System Would Work

The Best Available Solution

Necessary Limitations on Self-Determination

Nonexpressive Persons

Minors

The Possibility of Varying the Rule

The Glen Ridge Rape Case

Should Sterilization Be Available Only with Actual Informed Consent?

PART IV: PARENTING

Some Underlying Rules and Issues

Standards for Evaluating Parents: Adoption, Neglect and Abuse, and Custody Proceedings

Comparing the Standards

The Difficulty and Subjectivity of Defining Unfitness

Use and Misuse of Sociological Studies

Written Law concerning Parenting: Important Issues for Parents with Retardation

Historical Perspective: Per se Disqualification

The Unconstitutionality of Disqualifying Parents Because of Unfitness of Their Group

Evolution of the Standard

Toward an Appropriate Legal Standard, Applicable to All Parents

The Social Welfare System in Practice

The Process for Parents in General

Applying the Procedures to Parents Who Have Retardation

Reforming the System

Some Difficult Policy Issues

Applying Procedural Protections to Removal Proceedings

Adjusting the Interval between Removal and Termination

More Flexible Kinds of Adoption

Providing Assistance

Devising Solutions

Hope for the Future

Some Key Suggested Reforms

Conclusion

Notes

Bibliography

Cases

Index

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