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Facing the Cognitive Challenges of Multiple Sclerosis

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Overview

When attorney Jeffrey N. Gingold misplaced his wife on the living room couch, and became lost while driving just blocks from his home, little did he know that he was experiencing a hidden symptom of multiple sclerosis: cognitive difficulties. Facing the Cognitive Challenges of Multiple Sclerosis is a courageous and compelling personal account of one man's anguishing struggle with this aspect of the disease. It was written for the silent majority of MS patients who are privately ...

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Facing the Cognitive Challenges of Multiple Sclerosis

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Overview

When attorney Jeffrey N. Gingold misplaced his wife on the living room couch, and became lost while driving just blocks from his home, little did he know that he was experiencing a hidden symptom of multiple sclerosis: cognitive difficulties. Facing the Cognitive Challenges of Multiple Sclerosis is a courageous and compelling personal account of one man's anguishing struggle with this aspect of the disease. It was written for the silent majority of MS patients who are privately dealing with MS cognitive symptoms and potential disabilities.

The National Multiple Sclerosis Society estimates that over 400,000 people in the U.S. have been diagnosed with multiple sclerosis, and there are millions more worldwide. Conservatively speaking, half of them will encounter varying degrees of cognitive difficulties. Facing the Cognitive Challenges of Multiple Sclerosis brings this hidden disability into the open. It is an essential resource that will educate individuals coping with multiple sclerosis, and inform their families, caregivers, doctors and therapists.

The new edition has been thoroughly revised and updated for medical accuracy. The book includes a new foreword written by Joyce Nelson of the National Multiple Sclerosis Society (NMSS) and two completely new chapters that follow Jeffrey's journey since 2006. Not only did he become more active in the movement to cure MS, he also became more disabled, and ended up switching to a more controversial MS treatment, that has, so far, made his disease go back into remission. Whether or not a person is dealing with the cognitive issues associated with multiple sclerosis this book deserves to be on the bookshelf of every individual who is dealing with multiple sclerosis.

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Editorial Reviews

Doody's Review Service
Reviewer: Greg Thaera, MD (Mayo Clinic Arizona)
Description: This is a chronicle of one man's journey through the challenges of multiple sclerosis with a particular focus on the underappreciated cognitive manifestations as they intrude on his daily life.
Purpose: The purpose is to increase awareness of cognitive difficulties in patients with multiple sclerosis as well as to provide a means to improve mental functioning in afflicted patients. These are valuable goals given that the cognitive problems are often the most limiting. The author does an excellent job of explaining the specific problems and how he tries to overcome them.
Audience: The book is written for multiple sclerosis patients, families, supporters, and medical providers at all levels. It is easily accessible to all of these groups and does not require any prior medical knowledge. The author has become one of the strongest patient advocates on the cognitive challenges of multiple sclerosis.
Features: Although it particularly focuses on cognitive symptoms, the book also discusses other physical symptoms such as weakness and numbness, as well as treatment options and the author's experience with medications and medical providers. Thus, this book provides a well-rounded view of the life of a person with multiple sclerosis, which is its strongest point. The discussions are objective and based on the best evidence available to date, backed up by ample references and resources.
Assessment: This second edition provides a welcome update, as both the author's experience and the available management options for multiple sclerosis have changed significantly since the first edition.
Library Journal
Gingold was a high-powered attorney with a wife and two young daughters when, at 36, he was diagnosed with multiple sclerosis (MS), a chronic disease that afflicts over 400,000 people in the United States. After five years of dealing with the effects of the disease's characteristic brain lesions, he retired from his law practice and became a volunteer and advocate for the National Multiple Sclerosis Society. This book (the first edition was published in 2006) details the cognitive challenges he faced—losing his train of thought while making a statement in court, getting lost a few blocks from home, forgetting whether he had dropped his daughters off at school, and not really recognizing his wife sitting next to him on their sofa—and the way he coped with them, from practical aides to courage, humor, and persistence in finding a neurologist who took his smallest mental lapses seriously. Since then, he has switched to a new, controversial treatment that has put his MS into remission. VERDICT Gingold often speaks to groups afflicted with MS and their families and health-care providers, and this is another powerful testimony that interested readers will appreciate. Recommended.—Marcia Welsh, Dartmouth Coll. Lib., Hanover, NH
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Product Details

  • ISBN-13: 9781936303205
  • Publisher: Demos Medical Publishing, LLC
  • Publication date: 6/17/2011
  • Edition description: Second Edition
  • Edition number: 1
  • Pages: 240
  • Sales rank: 1,413,293
  • Product dimensions: 5.90 (w) x 8.90 (h) x 0.60 (d)

Meet the Author

Jeffrey Gingold is the internationally acclaimed author of the Award-winning book, Facing the Cognitive Challenges of Multiple Sclerosis and an outspoken volunteer advocate on MS and cognitive disability. He has been a guest on The Montel Williams Show, NPR, numerous webcasts and national talk radio shows. In his second book, Mental Sharpening Stones: Manage the Cognitive Challenges of Multiple Sclerosis, Jeffrey provides strategies from people who have MS and medical providers, sharing their tactical advice on how to manage the "invisible MS."

He was recently inducted to the 2010 National Multiple Sclerosis Society Hall of Fame for his Advocacy. Jeffrey is a published freelance writer and has authored numerous articles for U.S and international publications. He enjoys spending family time with his wife, Terri, two adorable daughters, Lauren and Meredith, and one cat named Mickey - named after the baseball player, not the mouse.

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Table of Contents

Foreword xi

Preface xiii

Acknowledgments xv

Introduction xvii

Chapter 1 "Hollar," if You Need Me 1

Chapter 2 The Knock at the Door 13

Chapter 3 Music and Mirrors 27

Chapter 4 Unanswered Questions 41

Chapter 5 It's in the House 51

Chapter 6 The Family Mask 67

Chapter 7 Feeling the Edges 85

Chapter 8 Don't Just Stand There … 97

Chapter 9 Taking the Middle Fork 117

Chapter 10 Drifting and Dragging in a Mental Wheelchair 129

Chapter 11 Come Out, Come Out, Wherever You Are 143

Chapter 12 In the Game 153

Chapter 13 A Team Effort 165

Chapter 14 Gathering New Pieces 181

In Summation … 195

Resources 201

Index 205

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Customer Reviews

Average Rating 4.5
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Sort by: Showing all of 2 Customer Reviews
  • Anonymous

    Posted July 22, 2008

    Facing the Cognitive Challenges of Multiple Sclerosis

    In this book, author Jeffrey N. Gingold details the confusion that clouds his mind as a result of multiple sclerosis (MS). Gingold¿s firsthand accounts of incidents where he has dealt with cognitive difficulties ¿ a common symptom of MS ¿ are bound to be relatable for many people with MS. Reading Gingold¿s anecdotes about MS-related incidents he has experienced, such as becoming lost while driving near his home, may help to relieve any feelings of embarrassment that people who have MS are keeping to themselves after facing similar situations. This book goes a step further than being simply a memoir by featuring resources to assist readers who might also be experiencing cognitive difficulties. Gingold describes how to recognize cognitive difficulties, and then encourages readers to become educated about MS and make changes to maintain a satisfying quality of life. By addressing a symptom of MS sometimes left out of discussions because of embarrassment or a failure to recognize it, Gingold has provided MS patients and their families with a valuable source of empathy and advice on coping with the disease.

    4 out of 4 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted March 18, 2013

    If you or someone you know is living with MS, this is a great bo

    If you or someone you know is living with MS, this is a great book to help understand some of the aspects of MS that go untalked about. How it effects our memory, our ability to filter conversations, read, speak, relate to others. How you can loose your train of thought, yourself even your spouse in the same room for no reason. It's a must read for those going thru it and could be helpful for understanding what others are dealing with if you are on the outside looking in. People with MS still have great minds, they may just not know or have the ability to get all of it out now that their, brains are working differently.

    3 out of 3 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
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