Far From the Tree: Parents, Children and the Search for Identity

Far From the Tree: Parents, Children and the Search for Identity

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by Andrew Solomon

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From the National Book Award–winning author of The Noonday Demon: An Atlas of Depression comes a monumental new work, a decade in the writing, about family. In Far from the Tree, Andrew Solomon tells the stories of parents who not only learn to deal with their exceptional children but also find profound meaning in doing so.

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From the National Book Award–winning author of The Noonday Demon: An Atlas of Depression comes a monumental new work, a decade in the writing, about family. In Far from the Tree, Andrew Solomon tells the stories of parents who not only learn to deal with their exceptional children but also find profound meaning in doing so. Solomon’s startling proposition is that diversity is what unites us all. He writes about families coping with deafness, dwarfism, Down syndrome, autism, schizophrenia, multiple severe disabilities, with children who are prodigies, who are conceived in rape, who become criminals, who are transgender. While each of these characteristics is potentially isolating, the experience of difference within families is universal, as are the triumphs of love Solomon documents in every chapter. All parenting turns on a crucial question: to what extent parents should accept their children for who they are, and to what extent they should help them become their best selves. Drawing on forty thousand pages of interview transcripts with more than three hundred families, Solomon mines the eloquence of ordinary people facing extreme challenges. Whether considering prenatal screening for genetic disorders, cochlear implants for the deaf, or gender reassignment surgery for transgender people, Solomon narrates a universal struggle toward compassion. Many families grow closer through caring for a challenging child; most discover supportive communities of others similarly affected; some are inspired to become advocates and activists, celebrating the very conditions they once feared. Woven into their courageous and affirming stories is Solomon’s journey to accepting his own identity, which culminated in his midlife decision, influenced by this research, to become a parent. Elegantly reported by a spectacularly original thinker, Far from the Tree explores themes of generosity, acceptance, and tolerance—all rooted in the insight that love can transcend every prejudice. This crucial and revelatory book expands our definition of what it is to be human.

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Editorial Reviews

The National Book Award-winning author of The Noonday Demon has written another richly nuanced account; this one, a captivating narrative about the parents of marginalized children. The harvest of ten years, Far from the Tree deserves a wide audience.

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Until I attended my first dwarf convention—the 2003 Little People of America (LPA) meeting in Danvers, Massachusetts—I had no clue how many kinds of dwarfism there are, nor how many varieties of appearance are collected under the category. Dwarfism is a low-incidence condition, usually occurring because of a random genetic mutation. Since most dwarfs are born to average-height parents, they do not have vertical community. There has been occasional talk about building a town for little people (LPs); there are metropolises where activist LPs have settled; there are high concentrations of otherwise rare dwarfing conditions among the Amish; but there has never been a significant geographic concentration of people of short stature. This means that the national LPA gatherings are not simply occasions to attend lectures and consult medical experts; for some participants, they are the annual exception to a certain kind of loneliness. The gatherings are emotionally intense; one dwarf I met told me she was “happy for one week a year,” although others emphasized that they love both of their lives—the one in the larger world, and the one among their LPA friends. More than 10 percent of Americans of short stature belong to LPA, and the organization has a role in the LP community that is greater than that of similar groups for comparable populations.

Arriving at the Sheraton Ferncroft Resort, where the convention was taking place, I was struck by how the concentration of LPs changed my perception of them. Instead of seeing, primarily, short stature, I saw that one was exceptionally beautiful, that one was unusually short even for a dwarf, that one laughed uproariously and often, that one had an especially intelligent face—and so I began to recognize how generically I had responded to little people until then. I understood what a relief it had to be for them that no one was focused on their height. Of course, the LPA convention was all about stature, but it was also the place where stature became blessedly irrelevant.

It would be difficult for an outsider to acknowledge this particularizing view of, for example, Latinos or Muslims. To say that a person’s ethnicity or religion had overwhelmed, even temporarily, one’s ability to appreciate his other personal characteristics would seem bigoted. But dwarfism has been the exception to these social rules. According to Betty Adelson, author of The Lives of Dwarfs and Dwarfism, “The only permissible prejudice in PC America is against dwarfs.” Mary D’Alton, chair of Columbia University’s Department of Obstetrics and Gynecology and a leader in the field of high-risk pregnancy, told me that dwarfism is the most difficult diagnosis to communicate to expectant parents. “You say that the baby has a hole in his heart,” she said, “and they say, ‘But you can fix that, right?’ But when I tell someone that they will be having a dwarf, they often seem disgusted by the idea.”

Many of the attendees I met my first day at LPA could identify instantly conditions that I had never heard of or imagined and had certainly never seen. When I went down to the conference disco the first night, I saw a brother and sister who had primordial dwarfism; they were full-grown, perfectly proportioned, and only about twenty-nine inches high. Their parents stood with them to make sure they weren’t trampled—a danger even at the dwarf convention. I learned that the girl played percussion in her high school band; she had a classmate who pushed her tiny wheelchair, and she held the drum in her lap—looking, in the words of a dwarf who was herself just three foot eight, “like a marionette.” The conference featured athletic competitions; a marathon-length talent show, including acts from Christian music to break dancing; and a fashion show, which revealed a broad range of dressy and casual styles, all tailored to little bodies. The conference also provided an eagerly awaited opportunity for dating. A dwarf comedian cracked, “You know you’re a teenager at LPA if you’ve had more boyfriends this week than you’ve had in the last year.”

• • •

When I met Mary Boggs on my second day at LPA, she told me that the organization had changed her life. When her daughter Sam was born in 1988, the obstetrician initially assumed that the baby’s diminutive size was a result of her premature arrival. A month later, while she was still in the neonatal intensive care unit, he diagnosed her with achondroplasia. “We would have rather had a child that was deaf or blind,” Mary told me. “Just anything besides a dwarf would have been better. When you’re thinking about what could go wrong with a pregnancy, this doesn’t cross your mind. We were thinking, ‘Why did we have another child at all?’”

Sam came home to her parents’ house in the suburbs of Washington, DC, on oxygen and a monitor. After six months, when Sam was declared physically healthy, Mary took her to her first local LPA meeting. When Sam was a year and a half old, she had a shunt inserted in her head to relieve her hydrocephalus (the accumulation of cerebrospinal fluid in the head); fortunately, she did not have the skeletal problems that in later life afflict so many people with achondroplasia. Mary and her husband got step stools and put them all over the house; they purchased light-switch extenders; they moved the faucet on the kitchen sink. These adjustments at home were easier to control than the challenges outside. “We’ve had people chase us down the grocery aisle to ask questions,” Mary said. “We learned to stare back. It frightens them off. I’d watch Sam not playing with the other kids because she’s too small to do what they do. You just feel sad.”

Before Sam set off for kindergarten, her parents told her that other kids would call her names; they reviewed what some of those names might be and taught her appropriate responses. Mary went to the school and explained Sam’s special needs, giving the teacher a book about dwarfs that she could read aloud to the class. The school lowered the sink and water fountain and installed a grab bar so Sam could pull herself up on the toilet. The kids in her class learned her story, but each year it was new to an incoming kindergarten class, and some would call her names. So Sam decided to make a presentation to each incoming class. She would explain, “I’m little, but I’m eight years old. I’m in third grade. I’m a dwarf, and I’m just like you all, but just short.” She did that every year through elementary school, and the teasing stopped.

When Sam was five, the Boggs family attended their first national LPA convention. “We walked in and saw a thousand dwarfs,” Mary said. “Sam was in shock. I thought my other daughter, who is average height, was going to cry. It took two or three days for us to take it in.” Over the years that followed, the Boggs family persuaded extended family and friends to come to meetings, so that they would know dwarfs other than Sam. “The grandparents could see adult dwarfs and realize, ‘Okay, this is what Sam’s going to look like,’” Mary said. She considered for a minute. “We went for Sam, but also so we could be comfortable with her. To make it easier for us to love her right.”

Middle school was more difficult than elementary school. “People who had been friends for years were suddenly not wanting to hang out with her anymore,” Mary said. “She was not called to go roller skating or go to the movies on Friday night. They pretended that it wasn’t because she was a dwarf. But she knew.” The athletics department gave her a varsity letter for being manager of the track team; she participated in student council and was elected treasurer of her class. Despite this, she was down to a couple of friends. “She’s a little lonely,” Mary said. “She’d have crushes on the boys at school, but eventually realized that average-size guys were not interested in going out with her. It was a big turning point when she started looking more at the hot guys at LPA.”

When I met Sam, she was in the throes of her first romance. She was fifteen going on sixteen, attractive and strikingly mature, and, at three feet nine inches, fairly short for a teenager with achondroplasia. Mary was optimistic about the future. “I would prefer for her to have an LP boyfriend or LP husband,” she said to me. “I think it’ll be easier for her. It’s kind of neat. I mean, you have a dwarf child. But it doesn’t just stop there; it goes on forever. We’re going to have, probably, a dwarf son-in-law, and dwarf grandchildren. What used to be an average-size family then becomes, when we’re gone, a dwarf family! And to think, if I’d known about this early in my pregnancy, I might have terminated.”

• • •

Writing in 1754, William Hay, a dwarf and the first notable memoirist of disability, described visiting a general: “I never was more humbled, than when I walked with him among his tall Men, made still taller by their Caps. I seemed to my self a Worm and no Man: and could not but inwardly grieve, that when I had the same Inclination to the Service of my Country and Prince, I wanted their Strength to perform it.” This feeling of inadequacy salted with the wish to transcend it has been a common narrative among dwarfs, but in the long pause between Hay’s dignified early account and the modern literature on the experience of being an LP, a grossness of prejudice has often quelled that dignity.

Woody Allen once quipped that dwarf is one of the four funniest words in the English language. To be in your very essence perceived as comical is a significant burden. When I described the other categories included in this book, my listeners were hushed by the seriousness of the enterprise; at the mention of dwarfs, friends burst into laughter. I would describe, for example, the time during a convention when a miscreant dwarf had made a bomb threat at 8:00 a.m., so that all hotel guests, most recovering from a night of intense partying, had to evacuate the building. People found hilarity in the mere idea of some five hundred sleepy dwarfs, many of them hungover, standing in the hotel’s forecourt. This had some resonance for me; I know that not so long ago, people might have found the idea of five hundred sleepy homosexuals similarly hilarious. But homosexuality can be hidden, and being among gay people is not a visual gag. Passersby who might avert their eyes tactfully from wheelchair users stare at dwarfs. A sighted woman who marries a blind man inspires admiration; an average-size woman who marries a dwarf inspires suspicion that she has a fetish. Dwarfs still appear in freak shows; in dwarf-tossing competitions; and in pornography, where a whole subgenre featuring dwarf sex exploits an objectifying voyeurism. This is testimony to a callousness beyond that shown to almost any other disabled group. Barbara Spiegel, now director of community outreach at LPA, described how her grandmother said, “You’re a beautiful girl, but no one’s going to marry you. You need to be able to do everything because you’re going to be alone.” Barbara’s stepmother complained about having to be seen on the street with her.

More than 80 percent of people with skeletal dysplasias—the primary dwarfing conditions, the most common among which is achondroplasia, resulting in shortened limbs, a large head, and an average trunk—are born to average parents with no history of dwarfism in their families, either because of de novo mutations or because both parents carry a recessive gene. Other forms of dwarfism include pituitary dwarfism, based on lack of human growth hormone, and psychosocial dwarfism, caused by severe physical abuse.

Parents are still dealing with a legacy of blame assigned to mothers. From medieval times into the eighteenth century, “monstrous births” were said to indicate the unfulfilled desires of lascivious women, whose obscene longings supposedly produced deformity. This theory, called Imaginationism, was hotly debated for hundreds of years. The Princeton historian Marie-Hélène Huet describes how “in the nineteenth century, discoveries in the fields of embryology and heredity provided scientists with new ways of explaining resemblances. But if the mother’s imagination was no longer perceived by the medical field to be a factor in resemblances, its role as the shaper of progeny was never totally forgotten.” John Mulliken, a pediatric surgeon, writes that every parent wants to know what he or she did to cause the situation. “In most cases, the answer is nothing. But every mother is blamed.”

Dwarfism is also often outside the experience of doctors with whom these parents initially interact, and parents frequently recall being told of the condition with particular insensitivity. Adelson recounts one doctor’s pronouncement to the parents of a newly diagnosed child—“You have given birth to a circus dwarf”—and another’s equally heartless recommendation that a child he had diagnosed should “be institutionalized or sent to live with a dwarf troupe in Florida.” One mother reported that most doctors acted as though her daughter were defective and therefore didn’t deserve to be treated like a “real” baby. Another described being in the delivery room with her dwarf husband when the doctor said to them both, “I regret to tell you that your child is a dwarf.”

Such behavior from a doctor is not merely a breach of etiquette; the way the news of a dwarfing condition is communicated to parents may have a lasting effect on their ability to love and care for their child. Mothers and fathers are helped by knowing right away that the child will have a full life span, that they did not cause the dwarfism through acts during pregnancy, and that their child can lead a happy, healthy, and independent life. Parents, in turn, influence friends and family; embarrassed parents create awkward friends. In addition to LPA, organizations such as the MAGIC Foundation and the Human Growth Foundation have fact-filled websites and sponsor both online chat rooms and local support groups, providing average-size parents of dwarf children opportunities to meet dwarfs who are living positive, fulfilling lives.

Nonetheless, many parents begin in sadness, denial, and shock. One dwarf, Ginny Sargent, wrote online, “No matter what we (as dwarfs) feel about how great it is to be alive, I still can’t help but wonder how much more pain (more than I) my mother was in when I was in discomfort . . . upset, hurt, or disheartened and beaten down by my uniqueness.”

Matt Roloff, former president of LPA and father on the popular television program Little People, Big World, said, “My parents didn’t wonder what I would like to do, what kind of woman I’d marry, or how many children I would have. They wondered what I could do for a living, if I could ever marry, and if I could have children.” He is now married to Amy, also a dwarf, and they have four children. Little People, Big World, which ran for almost four years on the Learning Channel, documented the Roloffs’ lives on their farm in Portland, Oregon. The show is somewhat voyeuristic but fairly clear of sensationalism, and it has helped to normalize perceptions of LPs.

Amy Roloff grew up in a household in which few accommodations were made for her. Friends who came to visit wondered why the phone was positioned where she needed to climb on a stool to reach it. “My mom said, ‘If Amy has to learn to adapt outside of the home, she might as well feel comfortable and learn to adapt within the home.’ Nothing was really tailored to my needs, and that was a good idea, ’cause I’m more independent.” The Roloffs have two average-height sons and one, Zach, with achondroplasia. Amy didn’t want to set up a house that suited the LPs in the family and felt foreign to the average kids, so she kept things “regular.” She encouraged Zach to be both proud of and nonchalant about his dwarfism. “He said one day, ‘Mom, we were playing and the kids were a little too rough.’ I said, ‘Zach, why don’t you be a little grateful that; perhaps, this was a moment where they don’t even think of you as a little person; they’re just hanging out and goofing around with you? That’s a good thing.’”

This equalizing spirit is extended to all of her children. Jeremy is the eldest and the tallest. “I have to remind Matt that we can’t take advantage of Jeremy because he’s tall. I don’t want him to think that he’s only good in the family ’cause he’s tall.” But even the New York Times, commenting on her children as they appear on TV, described Jeremy as “a gorgeous young athlete who manages the soccer ball with lazy grace,” and his brother Zachary as having “a clever and intense persona.” There’s nothing wrong with a clever and intense persona, but it’s interesting what different vocabulary comes up when the writer is describing, with kind intent, someone with a body that is not beautiful within the conventions of our larger society.

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Bill Clinton
In Far from the Tree, Andrew Solomon reminds us that nothing is more powerful in a child’s development than the love of a parent. This remarkable new book introduces us to mothers and fathers across America—many in circumstances the rest of us can hardly imagine—who are making their children feel special, no matter what challenges come their way.

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Far From the Tree: Parents, Children and the Search for Identity 4.3 out of 5 based on 0 ratings. 37 reviews.
Anonymous More than 1 year ago
How do we raise children who are profoundly different than we are? This is the question posed by award-winning writer Andrew Solomon in "Far From The Tree." How do parents deal with raising a child who isn't what they expected him or her to be? What if the child is autistic? Deaf? Has Down Syndrome? Or has dwarfism? And how much does nurture have to do with the people our children become? Or is it more due to nature, or genetics that are unchangeable? Solomon began writing this book twelve years ago, after attending a protest of deaf students who opened his eyes to seeing people with `differences' as not having disabilities, but having their own unique gifts. He follows the lives of many families who are faced with the challenge of raising children who are profoundly different than they expected them to be. Each of these stories reveals in their own way the nature of humanity, the unconditional love of parents for their children, and the desire for all humans to be valued as individuals. Don't get me wrong, though. Not all parents succeed at raising their children to excel and rise above any cultural prejudices. Some fail, but that is unfortunately the nature of life, I suppose. Combining the successes with failures adds to the completeness of this book. While putting the main focus on the families he describes in eloquent detail, Solomon also shines a spotlight on his own upbringing. The gay son of heterosexual parents, who was also dyslexic and bullied for not conforming to the stereotypical expectations of what a typical male should be, Solomon reveals how he overcame his insecurities to not only accept himself, but to decide to become a father. As a father myself, I found Solomon's stories moving, inspiring, and thought-provoking. At times I wondered whether I would have the inner strength of many of the parents in this book. I would like to think so. Reading this book made me think of two other exceptional books that also deal with unique parenting challenges. I highly recommend them as nice companions to Solomon's book. Anthony Youn's "In Stitche"s successfully spotlights the clash that occurs when immigrant, old-school parents raise a child in today's America. How do children react when their parents push them excessively, causing them to become social outcasts? Youn's struggle to deal with his parents' expectations and being the only ethnic minority in his entire town, are at times humorous, moving, and inspiring. It has shades of the controversial book "Battle Hymn of the Tiger Mother", but is a much more entertaining and empathetic read. "Monkey Mind: A Memoir of Anxiety" is a memoir I recently discovered from Daniel Smith, a person challenged with severe anxiety issues all his life. Smith details his sometimes funny but always revealing methods he used to deal with anxiety, both as a child and in adulthood. His mother and their relationship is also a big part of his story. I enjoyed this one.
Anonymous More than 1 year ago
This is an intense book. Not light bedtime reading. Very interesting and informative. It is both scientific and entertaining, which is a difficult combination to achieve. Every night I go to bed thinking about what I have just read. Really glad I found this and would definitely recommend it.
Lojie More than 1 year ago
Huge amounts of research, interviews that looked at both sides of raising a child withlife altering "issues".... The first issue was deafness which resinated with me because I am deaf. Solomon looked at all the difficult choices parents have to make as well as the impact of a deaf child on hearing and deaf parents. He also looked at the pain and exhaustion having a special child brings to parents often ill prepared. He is able to present both hero parents as well as those who struggle without giving an opinion about who is right. Since I work in mental health I was interested in his presentation of how the parents of transgendered respond to the loss of their sons to daughters. This is a big book and its expensive but well written and thoughtfully done.
Anonymous More than 1 year ago
After seeing the author profiled on the CBS Sunday Morning Show I figured such a talented speaker would produce a wonderful written account of the topic at hand. He certainly has accomplished that here!
Anonymous More than 1 year ago
This is an absorbing, thought-provoking, sometimes heart-breaking book that combines riveting personal stories with apparently well-researched facts. Not only parents of exceptional children, but all parents, can identify with and learn from it. I have been reading it slowly over the last month or so. It becomes too overwhelming to read for very long sessions, but I am regularly drawn back into it and am always left with new ideas to mull over.
jlm97 More than 1 year ago
A worthwhile read, after the first chapter. So he's gay. Who cares? In spite of the national debate, it really makes no difference. Subsequent chapters are much baet
Anonymous More than 1 year ago
i have not finished this book yet, but i have read 4 chapters and find it riveting. sometimes it gets a little bogged down in details, but that shows the depth and scope of his research. overall, the book is a new and unique perspective on things you thought you knew. i find myself thinking about the book a lot - and looking at things differently.
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SoftRain More than 1 year ago
Mr. Solomon gives us a personal view of people we seem to stereotype, whether we are aware of it or not. His insights and stories of dwarves, the deaf, autistic, etc. will broaden your knowledge and make you sympathetic to what its like from their viewpoint (if we can know it). And the book is easy to read. Good researched info interspersed with stories of those that have been there made the reading just flow. Frankly,I did not identify with most of stories as there was no personal link I was researching. I read it because it sounded interesting and because I want to know about different aspects of life on this Earth. Here certainly was a sampling. The author speaks for a those living under certain labels and does it well.
Anonymous More than 1 year ago
I first saw Andrew Solomon recently onThe Colbert Report and he sounded so interesting, intelligent and also humorous and the ideas he proposed sounded so interesting that I decided to get this book from our local library to read bore investing the $.  I didn't realize that it was so 'hefty'--over 900 pages (but  the Index and Appendix are 250+ pages) but it was such a worthwhile read that I'm now going to purchase the book in hardcover.  While I don't necessarily agree with all his opinions or suppositions, I think things were presented rationally and in an interesting manner.  As in life, things are not necessarily all black or white but in varying shades of gray.I appreciated many things about Mr. Solomon's writings--he didn't preach or demean his interviewees or his readers;   I really enjoyed the many excerpts of interviews--the HUMAN element of each chapter;  how moving, inspiring and thought-provoking the stories were; and finally the long-term commitment Mr. Solomon made to this book.  I want my own copy of his book so I can highlight those passages that really resonated with  me.  I think that my daughter (who is in the midst of child-bearing age) and my son (who has Bipolar Disorder) to read it.
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I honestly think that we can all supersede the meager expectations people have from us.
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