Final Negotiations: A Story of Love, and Chronic Illness [NOOK Book]

Overview


When Carolyn Ellis, a graduate student, and Gene Weinstein, her Professor, fell in love, he was experiencing the first stages of emphysema. As he became increasingly disabled and immobile, these two intensely connected partners fought to maintain their love and to live a meaningful life. They learned to negotiate their daily lives in a way that enabled each of them to feel sufficiently autonomous—him not always like a patient and her not always like a caretaker. Writing as a sociologist, Ellis protrays their ...

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Final Negotiations: A Story of Love, and Chronic Illness

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Overview


When Carolyn Ellis, a graduate student, and Gene Weinstein, her Professor, fell in love, he was experiencing the first stages of emphysema. As he became increasingly disabled and immobile, these two intensely connected partners fought to maintain their love and to live a meaningful life. They learned to negotiate their daily lives in a way that enabled each of them to feel sufficiently autonomous—him not always like a patient and her not always like a caretaker. Writing as a sociologist, Ellis protrays their life together as a way to understand the complexities of romance, of living with a progressive illness, and, in the final negotiation and reversal of positions, of coping with the loss of a loved one.



This rare memoir full of often raw details and emotions becomes an intimate conversation about the intricacies of feeling and relating in a relationship. What Ellis calls experimental ethnography is a finely crafted, forthright, and daring story framed by the author's reflections on writing about and analyzing one's own life. Casting off the safe distance of most social science inquiry, she surrenders the private shroud of a complex relationship to bring sociology closer to literature.

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Editorial Reviews

William Beatty
This is an odd book. In the acknowledgments and part one, "Beginning," Ellis suggests that the reader will find it a closely reasoned technical-sociological treatise (it does have many references). Instead, it seems to be almost a transcript (rife with later insertions) of the affair during 1975-85 between sociology graduate student Ellis and one of her professors. She was 24 when she met Gene Weinstein, then 44 and already suffering from the emphysema that later claimed his life; they married in a hospital a few weeks before his death. In the book, Ellis also deals with other major deaths in her life: her brother's in an airplane crash, her father's, and that of a dog, her pet for 14 years. In its main action, her highly personal account takes her and Weinstein from New York to California and Florida and on a round-the-world jaunt. Weinstein keeps fighting his disease, pushing himself to the limit, while Ellis becomes increasingly involved in the struggle.
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Product Details

  • ISBN-13: 9781439904985
  • Publisher: Temple University Press
  • Publication date: 8/4/2010
  • Series: Health Society And Policy
  • Sold by: Barnes & Noble
  • Format: eBook
  • Pages: 368
  • File size: 552 KB

Meet the Author

Carolyn Ellis is Professor of Sociology at the University of South Florida, Director of the Institute for Interpretive Human Studies, and author of several books, including Investigating Subjectivity: Research on Lived Experience (co-edited with Michael Flaherty).
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Table of Contents


Acknowledgments

1. Beginning

2. Negotiating Attachment

3. Negotiating Stability and Change

4. Negotiating Loss

5. Negotiating the Story

6. Endings

References

Index

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