Future Perfect: Confronting Decisions About Genetics

Future Perfect: Confronting Decisions About Genetics

by Lori B. Andrews
     
 

ISBN-10: 0231121628

ISBN-13: 9780231121620

Pub. Date: 02/22/2001

Publisher: Columbia University Press

Genetic technologies have moved off the pages of science fiction and into our everyday lives. Internists now offer genetic testing for cancers and early coronary disease. Obstetricians make genetic predictions during pregnancy about a baby´s future health. Even dentists are getting into the act, offering testing for a genetic propensity to peridontal disease. In…  See more details below

Overview

Genetic technologies have moved off the pages of science fiction and into our everyday lives. Internists now offer genetic testing for cancers and early coronary disease. Obstetricians make genetic predictions during pregnancy about a baby´s future health. Even dentists are getting into the act, offering testing for a genetic propensity to peridontal disease. In this pathbreaking book, Lori Andrews provides the first detailed glimpse into how genetic testing can change your self-image, your relationships with loved ones, and your expectations about your children. She documents how ill prepared doctors are to deal with complex genetic issues. Andrews also uncovers the ways in which employers, insurers, schools, and courts have discriminated against people on the basis of their genetic make up. She traces the legal case history of genetics litigation and legislation and describes the ethical and social protections that need to be in place so that the Human Genome Project does not lead us directly toward Brave New World.In Future Perfect, Lori Andrews offers a new plan for making decisions as individuals and as a society based on emerging issues of ethics and science. Who should have access to your personal genetic information? Should genetic treatments be used to enhance characteristics such as intelligence in "normal" individuals? Should gene therapy be undertaken on embryos, changing their genetic inheritance, as well as that of future generations? If a woman learns she has a genetic mutation predisposing her to breast cancer, does she have a moral or even a legal duty to share that information with an estranged relative? Andrews considers the answer to these and many other questions that have profound implications for health care providers, medical organizations, social institutions, legislatures, courts, and ordinary people.

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Product Details

ISBN-13:
9780231121620
Publisher:
Columbia University Press
Publication date:
02/22/2001
Pages:
288
Product dimensions:
6.10(w) x 9.00(h) x 0.90(d)
Age Range:
18 Years

Table of Contents

Acknowledgments
Ch. 1Genetics Enters Our Lives1
The Rapid Integration of Genetic Tests Into Clinical Practice2
How Genetics Differs from Other Medical Realms5
Commercialism in Genetics8
Simplifying Genetic Tests10
Exaggerated Faith in Genetics11
Charting the Future of Genetic Policy13
2Competing Frameworks for Genetics Policy15
Historical Context of Genetics19
Alternative Frameworks21
The Medical Model22
The Public Health Model25
The Fundamental Rights Model27
Seeking a Framework for the Future of Genetics29
3The Impact of Genetic Services on Personal Life31
Impact on Self-Concept31
Use of Genetic Services40
4The Changing Face of Parenthood in the Genetics Era56
Impact on Reproduction56
Impact on Decision About Children66
Reconceiving Parenthood75
5The Impact of Genetic Services on Women, People of Color, and Individuals with Disabilities77
Women and Genetic Services77
People of Color and Genetic Services90
Individuals with Disabilities and Genetic Services97
Protecting the Disadvantaged106
6Problems in the Delivery of Genetic Services107
Physician Knowledge About Genetics108
Quality Assurance in Testing110
Genetic Hubris116
Medical Pressure to Use Genetic Services119
Impact of Physicians Beliefs and Personalities on the Provision of Genetic Information122
Informational Materials About Genetics124
Enhancing the Quality of Genetic Services129
7The Impact of Genetics on Cultural Value and Social Institutions130
Predicting Future Academic Worth131
Predicting Future Health Care Needs132
Statutory Responses to Insurance and Employment Discrimination138
The Lack of Protection for Medical Information in General140
DNA and Social Decision Making142
Genetic Determinism Takes Hold145
8Which Conceptual Model Best Fits Genetics?151
The Medical Model152
The Public Health Model153
The Fundamental Rights Model160
Legal Justification for the Fundamental Rights Model170
Drawing the Line in the Genetics Realm173
Combating Genetic Hubris176
Notes179
Index249

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