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Genetics and Public Health in the 21st Century: Using Genetic Information to Improve Health and Prevent Disease / Edition 1
     

Genetics and Public Health in the 21st Century: Using Genetic Information to Improve Health and Prevent Disease / Edition 1

by Muin J. Khoury, Wylie Burke, Elizabeth J. Thomson
 

ISBN-10: 0195128303

ISBN-13: 9780195128307

Pub. Date: 08/03/2000

Publisher: Oxford University Press, USA

With the accelerating discovery of human genes, public health professionals are increasingly confronted with a large body of scientific information that will guide public health action. Because the broad mission of public health is to fulfill society's interest in assuring conditions in which people can be healthy, the integration of new genetic information in

Overview

With the accelerating discovery of human genes, public health professionals are increasingly confronted with a large body of scientific information that will guide public health action. Because the broad mission of public health is to fulfill society's interest in assuring conditions in which people can be healthy, the integration of new genetic information in public health research, policy, and program development is unavoidable. Public health leadership is urgently needed to use genetic information to improve health and prevent disease, and to address ethical, legal and social issues resulting from inappropriate use of such information. In the not too-distant future, disease prevention and health promotion programs will routinely consider whether or not to use genetic information to help target behavioral, medical or environmental intervention activities in order to maximize benefit and minimize costs and harm to individuals. In anticipation of the expected growth at the interface of genetics and public health, this book delineates a framework for the integration of advances in human genetics into public health practice. It provides a comprehensive review of public health genetics, including chapters on important general issues such as newborn and other genetic screening, the delivery of genetic services, and the ethical, legal and social implications of the use of genetics within public health. It also reviews relevant clinical topics, the historical background, cross-cultural aspects, and communication issues. Contributors come from a wide range of fields including epidemiology, biostatistics, health policy and management, health services research, behavioral and social sciences, ethics, law, health economics, and laboratory sciences.

Product Details

ISBN-13:
9780195128307
Publisher:
Oxford University Press, USA
Publication date:
08/03/2000
Series:
Oxford Monographs on Medical Genetics Series , #40
Edition description:
New Edition
Pages:
664
Product dimensions:
9.00(w) x 6.00(h) x 1.40(d)

Table of Contents

PART I GENETICS AND PUBLIC HEALTH: AN OVERVIEW
1. Genetics and Public Health: A Framework for the Integration of Human Genetics into Public Health Practice, Muin J. Khoury, Wylie Burke, Elizabeth J. Thomson
2. Genetics and Public Health: Historical Perspectives and Current Challenges and Opportunities, Gilbert S. Omenn (University of Michigan)
3. The Human Genome Project: Evolving Status and Emerging Opportunities for Disease Prevention, Leslie Fink and Francis S. Collins (LF: National Institute of Allergy and Infectious Diseases, FC: National Human Genome Research Institute)
4. Models of Public Health Genetic Policy Development, Benjamin Wilfond and Elizabeth J. Thomson (National Human Genome Research Institute)
5. The Multidisciplinary Nature of Public Health Genetics in Research and Education, Melissa A. Austin and Patricia A. Peyser (MA: University of Washington, PP: University of Michigan)
PART II PUBLIC HEALTH ASSESSMENT
6. Epidemiology, Molecular Biology, and Public Health, Janice S. Dorman and Donald R. Mattison (JD:University of Pittsburgh, DM: March of Dimes Birth Defects Foundation)
7. Surveillance for Birth Defects and Genetic Diseases, Lorenzo D. Botto and Pierpaolo Mastroiacovo (LB: Centers for Disease Control & Prevention, PM: Catholic University, Rome)
8. Surveillance for Hemophilia and Inherited Hematologic Disorders, J. Michael Soucie, Frederick R. Rickles, and Bruce L. Evatt (JS, BE: Centers for Disease Control and Prevention, FR: George Washington University)
9. Public Health Assessment of Genetic Predisposition to Cancer, Steven S. Coughlin and Wylie Burke (SC: Centers for Disease Control and Prevention, WB: University of Washington)
10. Public Health Assessment of Genetic Susceptibility to Infectious Diseases: Malaria, TB, and HIV, Janet M. McNicholl, Marie V. Downer, Michael Aidoo, Thomas Hodge, and Venkatachalam Udhayakumar (Centers for Disease Control and Prevention)
11. Public Health Assessment of Genetic Information in the Occupational Setting, Paul A. Shulte and D. Gayle DeBord (Centers for Disease Control and Prevention)
PART III EVALUATION OF GENETIC TESTING
12. Medical and Public Health Strategies for Ensuring the Quality of Genetic Testing, Michael S. Watson (Washington University)
13. Newborn Screening Quality Assurance, W. Harry Hannon, L. Omar Henderson, and Carol J. Bell (Centers for Disease Control and Prevention)
PART IV DEVELOPING, IMPLEMENTING, AND EVALUATING POPULATION INTERVENTIONS
14. Public Health Needs Assessment for State-Based Genetic Services Delivery, Robert M. Fineman and Debra Lochner Doyle (Washington State Department of Health)
15. Access to Genetic Services in the United States: A Challenge to Genetics in Public Health, Jane S. Lin-Fu and Michele Lloyd-Puryear (U.S. Department of Health and Human Services)
16. Community Genetics in The Netherlands, Leo P. ten Kate (Vrije Universiteit, The Netherlands)
17. Delivery of Genetic Services in Developing Countries, Victor B. Penchaszadeh (Albert Einstein School of Medicine)
18. Genetics and Prevention Effectiveness, Scott D. Grosse and Steven M. Teutsch (SG: Centers for Disease Control and Prevention, ST: Merck & Co.)
19. Impact of Genetic Information and Genetic Counseling on Public Health, Judith L. Benkendorf, Beth N. Peshkin, and Caryn Lerman (Georgetown University Medical Center)
20. Lessons Learned from Newborn Screening for Phenylketonuria, Kenneth A. Pass (State of New York Department of Health)
21. Newborn Screening for Cystic Fibrosis: A Paradigm for Public Health Genetics Policy Development, Philip M. Farrell, Michael R. Kosorok, Michael J. Rock, Anita Laxova, Lan Zeng, Gary Hoffman, Ronald H. Laessig, Mark L. Splaingard, and the Wisconsin Cystic Fibrosis Neonatal Screening Group (PF, MK, MR, AL, LZ: University of Wisconsin, GH, RL: State Laboratory of Hygiene, Wisconsin, MS; Children's Hospital of Wisconsin)
22. Newborn Screening for Sickle Cell Disease: Public Health Impact and Evaluation, Richard S. Olney (Centers for Disease Control and Prevention)
23. Public Health Strategies to Prevent the Complications of Hemochromatosis, Wylie Burke, Mary E. Cogswell, Sharon M. McDonnell, and Adele Franks (MC,SM: Centers for Disease Control and Prevention. AF: Prudential Center for Healthcare Research)
24. Applying Genetic Strategies to Prevent Atherosclerosis, Roger R. Williams, Paul N. Hopkins, Lily Wu, and Steven C. Hunt (University of Utah)
PART V GENETICS AND PUBLIC HEALTH: ETHICAL, LEGAL, AND SOCIAL ISSUES
25. Genetics, Public Health, and the Law, Ellen Wright-Clayton (Vanderbilt University)
26. Genetics and Public Health: Informed Consent Beyond the Clinical Encounter, Nancy Press and Ellen Wright-Clayton (NP: Oregon health Sciences University, EW-C: Vanderbilt University)
27. Public Health Surveillance of Genetic Information: Ethical and Legal Responses to Social Risk, Scott Burris, Lawrence O. Gostin, and Deborah Tress (SB: Temple University, LG: Georgetown & Johns Hopkins Universities, DT: Centers for Disease Control and Prevention)
PART VI COMMUNICATION, EDUCATION, AND INFORMATION DISSEMINATION
28. Principles and Practices of Communication Processes for Genetics in Public Health, Celeste M. Condit, Roxanne L. Parrott, and Beth O'Grady (University of Georgia)
29. Training in Public Health Genetics, Susan M. Caumartin, Diane L. Baker, and Carl F. Marrs (University of Michigan)
30. Consumer Perspectives on Genetic Testing and Screening: Lessons Learned, Mary E. Davidson, Karey David, Nancy Hsu, Toni I. Pollin, Joan O. Weiss, Nachama Wilker, and Mary Ann Wilson (Alliance of Genetic Support Groups except NH at University of Wisconsin and TP at University of Maryland)
31. Using the Internet to Disseminate Genetics Information for Public Health, Leslie A. O'Leary and Debra L. Collins (LO: Centers for Disease Control and Prevention, DC: University of Kansas)

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