Genetics and Society

Genetics and Society

by Anne Kerr
     
 

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ISBN-10: 0415300819

ISBN-13: 9780415300810

Pub. Date: 10/01/2004

Publisher: Taylor & Francis

Kerr (sociology, U. of York, Kent) looks at the social circumstances surrounding the unprecedented growth in knowledge about the genetic basis of disease that took place in the last decade of the 20th century, as well as their implications for the future. She focuses on topics including the past, present, and future of genetic knowledge and technologies; the place of

Overview

Kerr (sociology, U. of York, Kent) looks at the social circumstances surrounding the unprecedented growth in knowledge about the genetic basis of disease that took place in the last decade of the 20th century, as well as their implications for the future. She focuses on topics including the past, present, and future of genetic knowledge and technologies; the place of professionals, patients, families, and various subsets of the public in genetic research and service provision; and the social and cultural construction of genes and disease. Annotation ©2004 Book News, Inc., Portland, OR

Product Details

ISBN-13:
9780415300810
Publisher:
Taylor & Francis
Publication date:
10/01/2004
Pages:
208
Product dimensions:
6.10(w) x 9.30(h) x 0.70(d)

Table of Contents

List of boxesviii
Acknowledgementsix
1Introduction1
Summary1
Introduction1
Why this book now?3
Themes and chapters9
Past, present and future10
Patients, professionals and publics11
Knowledge, practice and things12
2Past15
Summary15
Introduction16
Surveillance, coercion and voluntarism18
Prevention22
Reductionism24
Commerce, governance and expertise28
Contemporary debates about eugenics30
Conclusion36
Further reading37
3Discovery38
Summary38
Introduction38
The discovery discourse43
Knowledge, practice and things45
Commercialization46
Governance50
Expert relations53
Defining disease56
Conclusion62
Further reading62
4Reproduction64
Summary64
Introduction64
Reproductive choices66
Down's syndrome screening in the United Kingdom74
Conclusion82
Further reading83
5Patients84
Summary84
Introduction84
The psychosocial approach86
Biography narratives89
Risk and responsibility94
Conclusion101
Further reading102
6Biobanks103
Summary103
Introduction103
Informed consent106
Privacy and confidentiality111
Commercialization and governance116
Conclusion121
Further reading122
7Publics123
Summary123
Introduction123
Public opinion125
Lay knowledge132
Active citizenship134
Constructing citizens and publics138
Conclusion142
Further reading142
8Futures143
Summary143
Introduction143
Policy-speak145
Public bioethics148
Biomedicine154
Mass media156
Conclusion160
Further reading160
9Conclusion161
Introduction161
Past, present and future162
Patients, professionals and publics163
Knowledge, practice and things165
Researching genetics and society167
Glossary170
Notes174
Bibliography175
Index189

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