Growing Up with Diabetes: What Children Want Their Parents to Know

Overview

A chance to step into your child's shoes. When your child was diagnosed with diabetes your first priority was probably to learn everything you could about diabetes and how to manage it. Whether your child is a youngster or a teenager, you've done your best to help with injections, meals and snacks, and the many other elements of a diabetes management program. But through all this, you may be overlooking the importance of your child's social and emotional development. Children want to be normal, and diabetes makes...

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Overview

A chance to step into your child's shoes. When your child was diagnosed with diabetes your first priority was probably to learn everything you could about diabetes and how to manage it. Whether your child is a youngster or a teenager, you've done your best to help with injections, meals and snacks, and the many other elements of a diabetes management program. But through all this, you may be overlooking the importance of your child's social and emotional development. Children want to be normal, and diabetes makes them "different." Many well-meaning parents inadvertently focus too much on their child's diabetes, and not enough on other aspects of their child's life. This unique book, written by a young woman who was diagnosed with diabetes at age 11, gives you the opportunity to understand and relate to your child's feelings. Drawing on the author's own experiences and those of the many children and young adults she's counseled, this sensitive guide explains:
* How children feel when they're diagnosed
* Why diabetes is a bigger adjustment for you than for your child
* How to encourage a healthy approach to diabetes
* The importance of diabetes education
* How to make your child's life as normal as possible
* Dealing with outside forces (school, day care, relatives, etc.)
* Eliminating the power struggle for independence in adolescence
* Books to Fund A Cure
• A portion of this book's proceeds will go to the Juvenile Diabetes Foundation International, a not-for-profit voluntary health agency, whose primary objective is to support and fund research to find the cause, cure, treatment, and prevention of diabetes and its complications. Juvenile Diabetes Foundation Library Health

"Written by a twenty-one-year old who has lived with diabetes for the past 10 years, this book explains firsthand the emotions children experience when they are diagnosed & how to help them cope with the reactions of others."

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Editorial Reviews

VOYA - Marilyn Brien
These two different approaches to diabetes cover the basic details while at the same time making the point that life can go on in a relatively normal fashion for someone with diabetes. Kelly's book is the "work horse" title, while McAuliffe's is a self-help, inspirational call to action.

Kelly's recent addition to Rosen's Coping with . . . series, addresses issues of concern to today's teens. This competent, thorough examination of the disease and its treatment includes a look at the role of diet and exercise, possible complications to watch out for, family dynamics when a member is diagnosed, how to deal with health care professionals (in particular the members of the diabetic health care team), and how living with a chronic condition like diabetes can affect a teen's life. Addressing the teen reader, the author provides clear-cut, concise information about the disease and how to handle it. Teens with diabetes share their stories of problems faced and overcome. Both insulin-dependent and non-insulin dependent diabetes are covered in text easily accessible to the teen reader.

As the mother of two children with juvenile diabetes, I wish McAuliffe's book had been around when they were first diagnosed with the disease as pre-schoolers. An impressive young woman who tells it like it is, the author was eleven when she was diagnosed and ten years later is a healthy, well-adjusted college student working toward a chiropractic degree. McAuliffe's supportive, concerned parents were there for her, but she was also there for herself-taking charge of her diabetic management, getting actively involved in helping others by counseling children and young adults with the disease, even founding a not-for-profit camp specifically for young people with diabetes. The message here is loud and clear-treat the child, not the disease.

Both parents and child have to come to terms with coping with a chronic disease, and get on with their lives. It is vitally important to acknowledge the

Library Journal
Managing childhood diabetes is essential to avoid short- and long-term complications. At the same time, the child must be able to enjoy normal activities despite the condition. This balancing act frequently results in overly protective parents and a child who rebels against the regimen of shots, tests, and meal plans. McAuliffe, a 21-year-old chiropractic student, was diagnosed with diabetes at age 11 and is a peer counselor, support group leader, and founder of a diabetes camp for young people. Her book explores the disease's emotional and psychological aspects with the hope of making diabetes management less of a battle between parent and child. Notwithstanding her personal experiences, there is little of substance here to help struggling parents. McAuliffe writes of the need for educating the child's teachers and classmates about diabetes but does not explain how parents might do this. The few quotes from young people on a child's view of diabetes, e.g., "Get an attitude of determination and get on with life," are too generic to be either revealing or helpful. The scant bibliography consists almost solely of materials from the publisher. A better choice is Pat Kelly's Coping with Diabetes Rosen, 1998.Karen McNally Bensing, Benjamin Rose Inst. Lib., Cleveland
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Product Details

  • ISBN-13: 9780471347316
  • Publisher: Wiley
  • Publication date: 5/24/1998
  • Edition number: 1
  • Pages: 128
  • Sales rank: 1,499,523
  • Product dimensions: 5.53 (w) x 8.41 (h) x 0.33 (d)

Meet the Author

Alicia McAuliffe is a 21-year-old student who was diagnosed with diabetes at age 11. She has been counseling children and young adults with diabetes for six years, and is the founder of the Circle of Life Camp, Inc., a not-for-profit camp for young people with diabetes.

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Table of Contents

Diabetes "Hurts" Parents More Than Kids.

Education and Attitude: Equal Partners.

Getting on with Life.

The Importance of Social Involvement and Support.

Working Through Frustrations.

A Declaration of Independence.

Appendices.

Index.

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