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Handbook of Communication in Oncology and Palliative Care

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Overview


This comprehensive text provides clinicians with practical and evidence-based guidelines to achieve effective, patient-centered communication in the areas of cancer and palliative care. Written by an outstanding panel of international experts, it integrates empirical findings with clinical wisdom, draws on historical approaches and presents a state-of-the-art curriculum for applied communication skills training for the specialist oncologist, surgeon, nurse, and other multi-disciplinary team members involved in cancer care today.

In this book, communication is broken down into key modules that cover the life-cycle of cancer care. They include coverage of diagnosis and treatment including clinical trials, empathic support in response to distress, transition to survivorship or palliative therapies, discussion of prognosis, conduct of family meetings, and care of the dying. Complementary training of patients in their communication with the doctor completes the interactive dyad. The art of teaching, impact of gender, and power in the consultation and the ethical context are carefully considered.

Special communication challenges include discussion of genetic risk, rehabilitative and salvage surgery, promotion of treatment adherence, unanticipated adverse outcomes, intercultural issues, fertility, and sexuality. The value of decision aides, question prompt lists, audio-recording of consultations, and use of the internet is illustrated.

By looking across the full spectrum of disciplins involved in the multidisciplinary team, discipline-specific issues are considered by experts in each field. In this manner, the needs of patients and their relatives are evaluated, including paediatric and geriatric populations. To achieve all of this, theoretical models are examined from the medical school to the highly specialized practice, facilitation training and actor training are made explicit, and international approaches to communication skills training are compared and contrasted. Finally, research tools that assist in coding cancer consultations, evaluating training courses, and employing mixed methods in studies aid the reader in providing clear and sensitive communication when handling challenging situations while treating cancer sufferers and palliative care patients.

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Editorial Reviews

Doody's Review Service
Reviewer: Daniel Lam, BA, MD (University of Washington School of Medicine)
Description: This is an excellent book on clinical competence in communication, especially as it pertains to the uncertainty that is often present in the area of oncology.
Purpose: The purpose is to promote better clinician-patient communication via an evidence-based approach in an effort to optimize the quality of oncologic care. These are worthy objectives, not only in oncology, but also in medicine in general.
Audience: The book is written for students, residents, and practitioners, including those in allied health professions. While the book specifically targets those in oncology and palliative medicine, many of the principles may be applied to other subspecialties where uncertainty, and especially life-limiting disease, is encountered. The authors acknowledge this by adding that hospitalists, among others, are part of their target audience. They have done an excellent job of making the book accessible to this broad audience. Many of the authors are authorities on communication, especially as it relates to oncology and palliative care.
Features: This book does an excellent job of comprehensively addressing core competencies in clinician-patient communication. Of note, the book provides an easy-to-follow curriculum for oncology and palliative care, and specifically addresses common scenarios in this setting. In keeping with the recognition that teamwork is paramount in providing excellent patient care, it is notable that the authors have addressed the allied health professions and have devoted a substantial portion of the book to communication across different disciplines. Finally, the book highlights recent research from around the world to give a picture of how communication training is evolving.
Assessment: This is an excellent reference for all palliative care practitioners as well as for those involved in oncology. It will be helpful whether one is practicing, teaching future practitioners, or developing a curriculum for effective clinician communication.
From The Critics
Reviewer: Daniel Lam, BA, MD(University of Washington School of Medicine)
Description: This is an excellent book on clinical competence in communication, especially as it pertains to the uncertainty that is often present in the area of oncology.
Purpose: The purpose is to promote better clinician-patient communication via an evidence-based approach in an effort to optimize the quality of oncologic care. These are worthy objectives, not only in oncology, but also in medicine in general.
Audience: The book is written for students, residents, and practitioners, including those in allied health professions. While the book specifically targets those in oncology and palliative medicine, many of the principles may be applied to other subspecialties where uncertainty, and especially life-limiting disease, is encountered. The authors acknowledge this by adding that hospitalists, among others, are part of their target audience. They have done an excellent job of making the book accessible to this broad audience. Many of the authors are authorities on communication, especially as it relates to oncology and palliative care.
Features: This book does an excellent job of comprehensively addressing core competencies in clinician-patient communication. Of note, the book provides an easy-to-follow curriculum for oncology and palliative care, and specifically addresses common scenarios in this setting. In keeping with the recognition that teamwork is paramount in providing excellent patient care, it is notable that the authors have addressed the allied health professions and have devoted a substantial portion of the book to communication across different disciplines. Finally, the book highlights recent research from around the world to give a picture of how communication training is evolving.
Assessment: This is an excellent reference for all palliative care practitioners as well as for those involved in oncology. It will be helpful whether one is practicing, teaching future practitioners, or developing a curriculum for effective clinician communication.
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Product Details

  • ISBN-13: 9780199238361
  • Publisher: Oxford University Press, USA
  • Publication date: 3/1/2010
  • Pages: 520
  • Product dimensions: 7.00 (w) x 9.80 (h) x 1.90 (d)

Meet the Author

David Kissane began teaching physician-patient communication skills to Monash University medical students in Australia in the early 1980s and then incorporated experiential training into the subject Psycho-Oncology within the Postgraduate Diplomas of Palliative Medicine and Psycho-Oncology that he initiated in 1996 at the University of Melbourne during his tenure as foundation Professor and Director of Palliative Medicine. He is currently the incumbent in the Jimmie C. Holland Chair of Psycho-Oncology and Chairman of the Department of Psychiatry and Behavioral Sciences at Memorial Sloan-Kettering Cancer Center in New York. He is thus an Attending Psychiatrist at The Memorial Hospital for Cancer and Allied Diseases, and Professor of Psychiatry at the Weill Medical College of Cornell University. Across his 35-year medical career, he has trained in family medicine, psychiatry of the medically ill and palliative medicine. Dr. Kissane is the author of over 175 publications. Barry Bultz became Director in 1981 of the Department of Psychosocial Resources at the Tom Baker Cancer Center in Calgary, Alberta, where he has subsequently developed and leads one of the first interdisciplinary psychosocial oncology programs in Canada - Psychosocial Oncology, Supportive, Pain and Palliative Care. As a founding member and Past President of the Canadian Association of Psychosocial Oncology (CAPO), he has been an active member of the Canadian Consortium on Communication Skills Training. He is internationally regarded for the concept of emotional distress as the 6th vital sign and chaired the 1st Canadian conference in Psychosocial Oncology in 1985 and the 6th World Congress of Psycho-Oncology in 2003. He is also holds faculty appointments in Oncology, Psychiatry, Surgery and Psychology. He is the author of over 100 scholarly publications and serves on several editorial boards for cancer-related journals.

Phyllis Butow is currently Professor and National Health and Medical Research Council Principal Research Fellow in the School of Psychology, University of Sydney, where she co-directs the Centre for Medical Psychology and Evidence-based Medicine (CeMPED). She has worked in Psycho-Oncology for over 16 years, currently chairs the newly established Australian Psycho-Oncology Co-operative Research Group and has developed an international reputation in Health Communication. She developed a curriculum in communication skills for the University of Sydney medical program, chairs the National Breast and Ovarian Cancer Centre (NBOCC) Communication Skills Working Party, was a Principal Investigator on one national and one international randomized controlled trial of communication skills training, and has facilitated hundreds of communication skills courses for the NBOCC and the Pam McLean Cancer Communications Centre over the past 10 years. Prof Butow has over 200 publications in peer reviewed journals.

Ilora Finlay is a Consultant in Palliative Medicine and chronic pain at the Velindre NHS Trust, Cardiff. She is also an honorary Professor and was Vice Dean of the School of Medicine 2000-2005. Professor Finlay currently chairs the Palliative Care Strategy Implementation Board for the Welsh Assembly Government. She has published over 126 papers and seven books and holds senior editorial positions for medical journals such as Lancet Oncology and the Journal of Evaluation in Clinical Practice. In 1996, Baroness Finlay was named Welsh Woman of the Year in recognition for her work in the field of palliative care. In 2001, she was appointed a people's peer in the first open contest for membership of the House of Lords. In establishing the Diploma/MSc in Palliative Medicine (Cardiff University), she has trained hundreds of general practitioners in communication skills through experiential residential programmes, developing teaching tools and assessment methods.

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Table of Contents

Foreword Michael Stefanek Stefanek, Michael

Foreword Leslie Fallowfield Fallowfield, Leslie

Sect. A Introduction to communication studies in cancer and palliative medicine

1 The history of communication skills knowledge and training Mack Lipkin Lipkin, Mack 3

2 The art of teaching communication skills Stewart M. Dunn Dunn, Stewart M. 13

3 Theoretical models of communication skills training Richard Brown Brown, Richard Carma L. Bylund Bylund, Carma L. 27

4 Shared treatment decision-making and the use of decision-aids Cathy Charles Charles, Cathy Amiram Gafni Gafni, Amiram 41

5 The ethics of communication in cancer and palliative care Laura A. Siminoff Siminoff, Laura A. 51

6 Gender, power, and non-verbal communication Marianne Schmid Mast Mast, Marianne Schmid Christina Klockner Klockner, Christina Judith A. Hall Hall, Judith A. 63

7 Medical student training in communication skills Joshua Hauser Hauser, Joshua Gregory Makoul Makoul, Gregory 75

8 Enhancing cancer patients' participation in medical consultations Donald J. Cegala Cegala, Donald J. Dana Eisenberg Eisenberg, Dana 87

Sect. B A core curriculum for communication skills training for oncology and palliative care

9 Breaking bad news Walter F. Baile Baile, Walter F. Patricia A. Parker Parker, Patricia A. 101

10 Discussing prognosis and communicating risk Phyllis N. Butow Butow, Phyllis N. Martin H. N. Tattersall Tattersall, Martin H. N. Martin Stockler Stockler, Martin 113

11 Communication training to achieve shared treatment decisions David W. Kissane Kissane, David W. 127

12 Responding to difficult emotions Jennifer Philip Philip, Jennifer David W. Kissane Kissane, David W. 135

13 Denial and communication Linda Sheahan Sheahan, Linda Simon Wein Wein, Simon 147

14 Communicating with relatives/companions about cancer care Terrance L. Albrecht Albrecht, Terrance L. Susan S. Eggly Eggly, Susan S. John C. Ruckdeschel Ruckdeschel, John C. 157

15 Conducting a family meeting Nessa Coyle Coyle, Nessa David W. Kissane Kissane, David W. 165

16 Communication about coping as a survivor Linda E. Carlson Carlson, Linda E. Barry D. Bultz Bultz, Barry D. 177

17 Dealing with cancer recurrence Lidia Schapira Schapira, Lidia 191

18 Communication about transitioning patients to palliative care Josephine M. Clayton Clayton, Josephine M. David W. Kissane Kissane, David W. 203

19 End-of-life communication training Tomer Levin Levin, Tomer Joseph S. Weiner Weiner, Joseph S. 215

Sect. C A specialty curriculum for oncology

20 Enrolment in clinical trials Richard Brown Brown, Richard Terrance L. Albrecht Albrecht, Terrance L. 231

21 Working as a multidisciplinary team Jane Turner Turner, Jane 245

22 Communicating genetic risk Elizabeth Lobb Lobb, Elizabeth Clara Gaff Gaff, Clara 259

23 Rehabilitative and salvage surgery Andrea Pusic Pusic, Andrea Rachel Bell Bell, Rachel Diana Harcourt Harcourt, Diana 269

24 Discussing unproven therapies Penelope Schofield Schofield, Penelope Justine Diggens Diggens, Justine Sue Hegarty Hegarty, Sue Catherine Charleson Charleson, Catherine Rita Marigliani Marigliani, Rita Caroline Nehill Nehill, Caroline Michael Jefford Jefford, Michael 281

25 The effect of internet use on the doctor-cancer patient relationship Carma L. Bylund Bylund, Carma L. Jennifer A. Gueguen Gueguen, Jennifer A. 293

26 Promoting treatment adherence Kelly B. Haskard Haskard, Kelly B. M. Robin DiMatteo DiMatteo, M. Robin 303

27 Communication strategies and skills for optimal pain control Melanie Lovell Lovell, Melanie Frances Boyle Boyle, Frances 315

28 Discussing adverse outcomes with patients Thomas H. Gallagher Gallagher, Thomas H. Afaf Girgis Girgis, Afaf 327

29 Clinical perspectives on shared decision-making Martin H. N. Tattersall Tattersall, Martin H. N. 339

30 Audio-recording important consultations for patients and their familities - putting evidence into practice Thomas F. Hack Hack, Thomas F. Lesley F. Degner Degner, Lesley F. 351

31 Working with interpreters and achieving culturally competent communication Steven Klimidis Klimidis, Steven Harry Minas Minas, Harry 361

32 Challenges in communicating with ethnically diverse populations Bejoy C. Thomas Thomas, Bejoy C. Joshua J. Lounsberry Lounsberry, Joshua J. Linda E. Carlson Carlson, Linda E. 375

33 Intercultural communication in palliative care James Hallenbeck Hallenbeck, James Vyjeyanthi S. Periyakoil Periyakoil, Vyjeyanthi S. 389

34 Communicating about infertility risks Zeev Rosberger Rosberger, Zeev Jeanne Carter Carter, Jeanne Marie Achille Achille, Marie Barry D. Bultz Bultz, Barry D. Peter Chan Chan, Peter 399

35 Communicating about sexuality in cancer care John W. Robinson Robinson, John W. Joshua J. Lounsberry Lounsberry, Joshua J. 409

Sect. D Communication issues across the disciplines

36 The challenges and rewards of communication skills training for oncology and palliative care nurses in the United Kingdom Sandra Winterburn Winterburn, Sandra Susie Wilkinson Wilkinson, Susie 425

37 Ambulatory care nurses responding to depression Anthony De La Cruz Cruz, Anthony De La Richard Brown Brown, Richard Steve Passik Passik, Steve 439

38 Social work support in settings of crisis Carrie Lethborg Lethborg, Carrie Grace Christ Christ, Grace 449

39 Communication in cancer radiology Kimberly Feigin Feigin, Kimberly Laura Liberman Liberman, Laura 459

40 Communication in surgical oncology Alexandra Heerdt Heerdt, Alexandra Bernard Park Park, Bernard Patrick Boland Boland, Patrick 473

41 Communication in non-surgical oncology Lai Cheng Yew Lai, Cheng Yew E. Jane Maher Maher, E. Jane 479

42 Palliative medicine: communication to promote life near the end of life Ilora G. Finlay Finlay, Ilora G. Nicola Pease Pease, Nicola 491

43 Communication issues in pastoral care and chaplaincy Peter Speck Speck, Peter Christopher Herbert Herbert, Christopher 503

44 Communication in oncology pharmacy: the challenge of treatment adherence Venetia Bourrier Bourrier, Venetia Brent Schacter Schacter, Brent 509

45 Psychosocial programme development Barry D. Bultz Bultz, Barry D. Paul B. Jacobsen Jacobsen, Paul B. Matthew Loscalzo Loscalzo, Matthew 521

46 Communication challenges with the elderly Ron Adelman Adelman, Ron Michelle Green Green, Michelle 531

47 Issues for cognitively impaired elderly patients Andrew Roth Roth, Andrew Christian Nelson Nelson, Christian 547

48 Communicating with children when a parent is dying Cynthia W. Moore Moore, Cynthia W. Michele Pengelly Pengelly, Michele Paula K. Rauch Rauch, Paula K. 557

49 Creative arts in oncology Marilyn Hundleby Hundleby, Marilyn Kate Collie Collie, Kate Linda E. Carlson Carlson, Linda E. 573

Sect. E Education and training

50 Learner-centred communication training Suzanne M. Kurtz Kurtz, Suzanne M. Lara J. Cooke Cooke, Lara J. 583

51 Facilitating skills practice in communication role-play sessions: essential elements and training facilitators Carma L. Bylund Bylund, Carma L. Richard Brown Brown, Richard Barbara Lubrano di Ciccone Ciccone, Barbara Lubrano di Lyuba Konopasek Konopasek, Lyuba 597

52 The role of the actor in medical education Paul Heinrich Heinrich, Paul 607

53 Training patients to reach their communication goals: a concordance perspective Carma L. Bylund Bylund, Carma L. Thomas A. D'Agostino D'Agostino, Thomas A. Betty Chewning Chewning, Betty 619

Sect. F International initiatives in communication training

54 The Oncotalk model Robert M. Arnold Arnold, Robert M. Anthony T. Back Back, Anthony T. Walter F. Baile Baile, Walter F. Kelly Fryer-Edwards Fryer-Edwards, Kelly James A. Tulsky Tulsky, James A. 631

55 The Swiss model F. Stiefel Stiefel, F. J. Bernhard Bernhard, J. G. Bianchi Bianchi, G. L. Dietrich Dietrich, L. Ch. Hurny Hurny, Ch. A. Kiss Kiss, A. B. Wossmer Wossmer, B. 641

56 The Australian model Caroline Nehill Nehill, Caroline Alison Evans Evans, Alison 649

57 The United Kingdom general practitioner and palliative care model Simon Noble Noble, Simon Nicola Pease Pease, Nicola Ilora G. Finlay Finlay, Ilora G. 659

58 Communication skills training and research: the Brussels experience Isabelle Merckaert Merckaert, Isabelle Yves Libert Libert, Yves Darius Razavi Razavi, Darius 671

Sect. G Research in cancer communication

59 Evaluating communication skills training courses Lyuba Konopasek Konopasek, Lyuba Marcy Rosenbaum Rosenbaum, Marcy John Encandela Encandela, John Kathy Cole-Kelly Cole-Kelly, Kathy 683

60 Qualitative approaches to clinician-patient communication Felicia Roberts Roberts, Felicia 695

61 Issues in Coding Cancer Consultations: interaction analysis systems Phyllis N. Butow Butow, Phyllis N. Sarah Ford Ford, Sarah 707

62 The Roter Interaction Analysis System (RIAS): applicability within the context of cancer and palliative care Debra Roter Roter, Debra 717

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