Health Data in the Information Age: Use, Disclosure, and Privacy

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Editorial Reviews

Booknews
Provides a set of guidelines for realizing the potential benefits of the regional health care databases that are being established throughout the country without jeopardizing the confidentiality of personal health data. Explores how the database organizations can maintain the quality of their data, what policies and practices they should adopt, how to prepare for linking with computer-based patient records, and other aspects. Annotation c. Book News, Inc., Portland, OR (booknews.com)
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Product Details

  • ISBN-13: 9780309049955
  • Publisher: National Academies Press
  • Publication date: 1/1/1994
  • Edition number: 1
  • Pages: 257
  • Product dimensions: 6.23 (w) x 9.30 (h) x 0.97 (d)

Table of Contents

Summary 1
1 Introduction 27
Advancing the Prospects for Comprehensive Health Databases and Networks 29
Health Database Organizations 32
The Institute of Medicine Study 33
Study Activities 38
Organization of the Report 38
2 Health Databases and Health Database Organizations: Uses, Benefits, and Concerns 40
Definitions 42
The Benefits of Health Databases 61
Users of Information in HDOs 63
Uses of Databases 65
Ensuring the Quality of Data 85
3 Public Disclosure of Data on Health Care Providers and Practitioners 91
Previous Studies 93
Important Principles of Public Disclosure 95
Important Elements of Public Disclosure 96
Committee Findings and Conclusions 105
Recommendations 106
Strengthening Quality Assurance and Quality Improvement Programs 116
4 Confidentiality and Privacy of Personal Data 136
Historical Perspectives and General Observations on Disclosure of Information 136
Sources of Concerns about Privacy and the Confidentiality of Health Records 140
Definitions 142
Expanded Definitions 154
Harm from Disclosure and Redisclosure of Health Record Information 156
Privacy Interests and HDOs 162
Relevance of Existing Laws to HDOs 172
Options for Protecting Privacy and Confidentiality of Health-related Data in HDOs 179
Committee Recommendations 190
References 214
Appendixes 225
A Fact-Finding for the Committee on Regional Health Data Networks 227
B Committee on Regional Health Data Networks Biographical Sketches 232
Glossary 239
Acronyms 244
Index 247
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