The Heart of a Child: What Families Need to Know about Heart Disorders in Childrenby Catherine A. Neill, Edward B. Clark, Carleen Clark
Written by doctors for the parents of patients, this book uses case studies, questions and answers, illustrations, and detailed descriptions to explain the causes of heart disorders, their diagnosis, their effects of children, and their treatment. Chapters also describe the various types of heart problems and the implications of childhood heart trouble for adult life.… See more details below
Written by doctors for the parents of patients, this book uses case studies, questions and answers, illustrations, and detailed descriptions to explain the causes of heart disorders, their diagnosis, their effects of children, and their treatment. Chapters also describe the various types of heart problems and the implications of childhood heart trouble for adult life. The book concentrates on defects present at birth, but does also cover acquired problems. The section on treatment covers everything from no treatment to emergency treatment at birth, surgery, complications, and treatment failures.
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Description: This book serves as an information source for families of children with heart disease and for healthcare professionals who wish to obtain a brief overview of pediatric cardiac disorders. The book previously published in 1992.
Purpose: The purpose is to inform families of patients diagnosed with congenital or acquired heart disease about the applicable medical terminology, as well as the diagnostic techniques and medical/surgical management strategies for specific heart defects. The type of information provided here is crucial for those thrust into the foreign world of pediatric heart disease. It is crucial for families to be well informed so that they can be a vital partner in the decision-making process for their child. The author's objectives are fully met, and in fact exceeded. This book provides not only information, but also a sensitive approach to dealing with the fragile state that these families are in as they deal with a child with potentially lethal disease.
Audience: According to the authors, the book is directed towards the family of a child with heart disease, but I think it is not only useful for families, but also for healthcare professionals who require a limited overview of pediatric heart disease. This group might include the nurse who care for patients of this type on an infrequent basis, pharmacy personnel, dietitians, and physical therapists. The authors are credible authorities in that they have personally cared for thousands of patients with heart defects of these types, and are recognized authorities in pediatric cardiology at national and international levels. On a more personal level, I have spoken to a number of families who have read the first edition of this book and obtained useful information and took solace in the caring way that the information was imparted.
Features: The book covers the range of topics of interest to families with a child who has heart disease. This runs the spectrum from the normal cardiac anatomy and function, to the use of cardiac medications for rhythm disturbances, the diagnosis and treatment of a wide variety of cardiac defects, and finally to the possible explanation for particular defects in terms of inherited/genetic etiologies. One of the best features is the author's use of patient anecdotes to explain specific cardiac disorders. This proves extremely effective and allows families to connect to the information as well as their own feelings. This book is also unique in that it is the first directed towards families (in my experience) that attempts to relate cardiovascular anomalies to their genetic basis. A shortcoming may be that families with limited education may find the information overwhelming and over their heads. Althgouh every effort is made to explain the subject simply, the authors also strive to impart a great deal of information, and these two goals can sometimes be at odds. Also, the topic of interventional cardiac catheterization is incompletely explored, especially as it relates to the atrial septal defect and patent ductus arteriosus. Families might incorrectly assume that surgical intervention for these defects is the standard of care.
Assessment: This skillfully written book serves as a worthy addition to the literature on pediatric heart disease. It will prove helpful to families of patients as well as others caring for these patients. The information is thorough and is provided in a sensitive manner. Based upon the rapid progress made in the field of pediatric cardiology in the past decade since the first edition was published, it is certainly a necessary update.
- Johns Hopkins University Press
- Publication date:
- Edition description:
- Older Edition
- Product dimensions:
- 6.43(w) x 9.53(h) x 1.10(d)
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