Heart Warriors: A Family Faces Congenital Heart Disease

Heart Warriors: A Family Faces Congenital Heart Disease

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by Amanda Rose Adams
     
 

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Five months pregnant, Amanda Adams and her husband were given two abysmal choices regarding her pregnancy: force her baby to fight for his life through countless invasive and dangerous surgeries, or perform a late term abortion. Despite the fact that Liam was missing half his heart, Amanda chose life.

Amanda's emotional plate was full as she found herself

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Overview

Five months pregnant, Amanda Adams and her husband were given two abysmal choices regarding her pregnancy: force her baby to fight for his life through countless invasive and dangerous surgeries, or perform a late term abortion. Despite the fact that Liam was missing half his heart, Amanda chose life.

Amanda's emotional plate was full as she found herself redefining the usual expectations a mother has for her child. Instead of wondering where he'd go to college, she wondered if he would survive his first birthday. The eventual acceptance of Amanda's grief helped her accept her new role as a powerful advocate. Over the course of seven years, together, as a family, Amanda and her husband helped Liam endure twelve heart surgeries, each time taking him to the brink of death.

Heart Warriors is Amanda's personal and emotional story that initiates a powerful dialogue about infant mortality and hope. Includes a Parent's/Family Field Guide.

Amanda Adams is a "Heart Mom" and a powerful voice within the congenital heart disease (CHD) community by working closely with cardiologists, cardiothoracic surgeons, and nurses from Harvard University, Baylor University, University of Southern California, University of Illinois, and CU Boulder Medical. She founded two CHD organizations, organizes medical conferences for Hypoplastic Right Hearts, attends medical advisory board meetings and national chapter presidents meetings for the Children's Heart Foundation, and chaired the Congenital Heart Walk in Colorado. As a pioneer of CHD advocacy, she is also firmly rooted in the social network of CHD parents and

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Product Details

ISBN-13:
9781933016801
Publisher:
Behler Publications, LLC
Publication date:
04/24/2012
Pages:
300
Sales rank:
450,295
Product dimensions:
5.58(w) x 8.28(h) x 0.72(d)

Meet the Author

Amanda Adams is a “Heart Mom” and a powerful voice within the CHD community by working closely with cardiologists, cardiothoracic surgeons, and nurses from Harvard University, Baylor University, University of Southern California, University of Illinois, and CU Boulder Medical. She founded two 501 c3 nonprofit organizations for CHD, organizes medical conferences for Hypoplastic Right Hearts, attends medical advisory board meetings and national chapter presidents meetings for the Children’s Heart Foundation, and chaired the Congenital Heart Walk in Colorado. As a pioneer of CHD advocacy, she is also firmly rooted in the social network of CHD parents and survivors.

Amanda has done several press interviews and addressed a variety of audiences on behalf of the American Heart Association, including her speech to over 10,000 walkers and the press for the 2006 American Heart Association Heart Walk in metro Denver.

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Heart Warriors: A Family Faces Congenital Heart Disease 5 out of 5 based on 0 ratings. 4 reviews.
Anonymous More than 1 year ago
Omg made me want to cry
Anonymous More than 1 year ago
I read this book while in the comfort of our local hospital as our oldest daughter was recovering from complications after her 2nd open heart surgery. In hindsight, I believe it was the only thing keeping me sane and holding me together. I have wonderful 'heart mom' connections locally, but it isn't always easy to express OUT LOUD what we are thinking, feeling, or fearing. Amanda gives the gift of relatability in a time where it is needed it most. I highly encourage ANYONE to read Heart Warriors - whether you know a family or child dealing with CHD, other illness, or not - because the best lesson Amanda gives through her book is HOPE. Hope in any shape, in any form, and I don't believe there's a person out there that couldn't benefit from that gift. Thank you Amanda for giving a voice to our 'heart mom fears', laying them out for all to see, and in the end for putting hope in their place... heart hugs!
Anonymous More than 1 year ago
This book describes exactly what it is like to have a child with congenital heart disease. Our experience was over 25 years ago, but very little has changed. I strongly recommend the book to anyone who has a seriously ill child. It is good to know that you are not alone.
Anonymous More than 1 year ago
This book was so good!! I have a heart warrior of my own and really wish this book had been out when I was pregnant with her and going through all her surgeries. Would of helped me out quite a bit. I recommend this book to everyone not just heart damiles. I think everyone should be more aware of CHD's. It affects so many!!!