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Holly
     

Holly

5.0 1
by Dixie James
 

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Holly

(A tribute to my daughter while on a journey growing and changing together)

From the beginning, Holly had to "fight" to live. I feared my daughter would not survive because she not only was born with Down syndrome, she was born with heart disease. My tiny baby suffered with heart failure often and
Kaiser Hospital became our second home until she had open

Overview

Holly

(A tribute to my daughter while on a journey growing and changing together)

From the beginning, Holly had to "fight" to live. I feared my daughter would not survive because she not only was born with Down syndrome, she was born with heart disease. My tiny baby suffered with heart failure often and
Kaiser Hospital became our second home until she had open heart surgery. I
cried every day and yearned to stop hurting. Feelings of depression and helplessness consumed me. I needed to reclaim control.

Holly's and my book is about discovery--by watching Holly overcome her struggles, and she had many, she made me feel I could overcome my sense of loss and sea of sadness. I needed a plan and a reason to celebrate happy moments to share with others. Change began to happen when I followed my compulsion to get out of my house and just walk. My mind became calmer and still from over- thinking what the future holds. My walking took me away from the pulsating fears that crept into me when I was holding my baby girl.
Being alone and taking time to walk brought a piece of contentment, time to think and time to develop faith in myself.

HOLLY takes the reader on a journey into the challenges a mother faces with the birth of a child with Down syndrome. The book begins with the question,
"Do we want to have children?", and takes the reader to the following areas of Holly's and my life: getting pregnant, giving birth, driving to Sonoma State
Hospital, bonding in strong love, going to cooperative nursery school, public and special education, attending sex education classes, leaving home, living in a group home, living independently, working five days a week, finding the love of one's life and getting 'married'.

Throughout this journey, mother and daughter "raise" each other's personal pursuits beyond their expectations.

Product Details

ISBN-13:
9781457507236
Publisher:
Dog Ear Publishing
Publication date:
10/19/2011
Pages:
116
Product dimensions:
6.14(w) x 9.21(h) x 0.24(d)

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Holly 5 out of 5 based on 0 ratings. 2 reviews.
georgemclaird More than 1 year ago
A book review by George L. McLaird If you are looking for inspiration for your own benefit by reading a real life story pick up a copy of, Holly by Dixie James & Holly James Shapiro. On November 29, 1972 Dixie James gave birth to a girl born with Down syndrome and a heart disease; her name is Holly. This book is their story. It is the epitome of the old saying, ¿If life gives you lemons, make lemonade.¿ It is the embodiment of, ¿When a cold wind blows in your face, pull your stocking cap down and charge on.¿ It is a no-holds-barred look at life in the raw. Moments following Holly¿s birth, Dixie writes about the hospital staff, ¿They silently wheeled me into the recovery room. ¿Your baby is Mongoloid.¿ ¿Mongoloid! In my mind that word only connected with something ugly and unwanted. Everyone¿s solemn reaction to me successfully delivering my child made sense now. The most amazing experience of my life silenced the room and dropped the mood. Now I understood. ¿It felt like there has been a death. Our complicated baby they called Mongoloid also suffered from a heart defect: a cardiologist came over to my bedside and explained to us the name of our baby¿s heart disease ¿ endocardial cushion defect. ¿The cardiologist routinely commented, ¿Her chances of surviving are not good. We don¿t know how long she will live. It would be hard to bring her home. I don¿t know if I could do it; she could be a vegetable.¿ ¿I gasped and thought to myself, ¿If this highly educated cardiologist says he feels doubtful that he could do it, how in the world can I? I don¿t know anything. I¿m just me.¿ When she told her mother, she writes, ¿My mother replied without a second thought, ¿Dixie you have to give her up. She will be nothing but trouble for you.¿ I realized she was talking to me out of her own fear and love for me. Being a mother now, too, I understood her motives more than ever.¿ This amazing book chronicles the Agony and Ecstasy her daughter¿s Down syndrome and heart disease has brought to them. To describe how she felt many times she uses the words and phrases such as, ¿feeling guilty, frustrated, I hated myself.¿ Dixie's husband, James writes a 3-page chapter. He makes that explains the following statements which in reality are nuggets of pure wisdom. ¿ Sometimes the worst things that happened at the time turned out to be fine in the long run. ¿ If you can hang in there medical science may come up with this theoretical problem. ¿ Everyone deserves the opportunity to be in a loving relationship ¿ Never underestimate the potential of others ¿ It is not what happens to but how you handle what happens matters. Ultimately, this is a book of inspiration: ¿ Every reader will have a chance to look at their own life, both accomplishments and failures, and be inspired to take the high road of perseverance. ¿ Friends and families with special needs children will find comfort because someone else has explicitly penned what they have been and are going through. ¿ Those with little or no contact with special needs children will find new insight into the close and personal struggles, elations and hard work of raising special needs off spring. Even if you are a hardened criminal, as you read this book you¿d do well to have a box of tissues by your side.
Anonymous More than 1 year ago
Sean?