Hospice Care for Patients with Advanced Progressive Dementia

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Overview

This volume demonstrates how hospice care leads to improved quality of life for patients with terminal dementia and their families. Much of the information is based on the successful 10-year experience of the E.N. Rogers Memorial Hospital, where the first palliative care program for the management of patients with advanced dementia was developed.

The book discusses Alzheimer's and other progressive dementias and reviews the clinical problems encountered, including infections, eating difficulties, and behavioral problems. It further addresses how to implement hospice care programs for these patients and the ethical aspects involved.

This volume will be of compelling importance to nurses, physicians, and social workers involved in hospice or home care of patients at the last stages of dementia.

The book contains black-and-white illustrations.

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Editorial Reviews

Lisa Stepp
This book focuses on the care of patients with severe and terminal dementia. The information is based on extensive experience of clinicians from a dementia special care unit. The goal is to promote the inclusion of patients with dementia in hospice and palliative care. Oftentimes, one's own needs of acceptance and reward make the care of the patient with dementia extremely challenging. The objectives are worthy, and this important issue needs to be addressed. Through a better understanding of dementia and the appropriate care of patients with dementia, the patient, family, and caregiver experience a much higher quality of life. The editors and contributors, through their experience and practical guides, meet these objectives. It is written for healthcare professionals involved in hospice care and the care of individuals with dementia. The contributors deliver this information in a credible, authoritative manner based on years of experience. The book is divided into three sections. The first section discusses Alzheimer's disease and other progressive dementias. Section two addresses the care of patients with dementia and ethical concerns. Section three addresses the implementation of hospice care for dementia patients. The information in each section is presented in a concise, easy-to-read format. The headings within the chapters allow access to specific information. Graphs and tables are easy to read and explained in detail. This is an excellent resource and guide for any hospice clinician. The information is current, timely, and easy to incorporate into practice. In some in instances, references to other materials are provided if the reader needs more information in acertain area. Overall, this book is easy to read, concise, and functional.
Doody Publishing
. . . an excellent resource and guide for any hospice clinician. The information is current, timely, and easy to incorporate into practice.
Doody's Review Service
Reviewer: Lisa Stepp, PhD, RN, APN, AOCN, CRNH (Private Practice)
Description: This book focuses on the care of patients with severe and terminal dementia. The information is based on extensive experience of clinicians from a dementia special care unit.
Purpose: The goal is to promote the inclusion of patients with dementia in hospice and palliative care. Oftentimes, one's own needs of acceptance and reward make the care of the patient with dementia extremely challenging. The objectives are worthy, and this important issue needs to be addressed. Through a better understanding of dementia and the appropriate care of patients with dementia, the patient, family, and caregiver experience a much higher quality of life. The editors and contributors, through their experience and practical guides, meet these objectives.
Audience: It is written for healthcare professionals involved in hospice care and the care of individuals with dementia. The contributors deliver this information in a credible, authoritative manner based on years of experience.
Features: The book is divided into three sections. The first section discusses Alzheimer's disease and other progressive dementias. Section two addresses the care of patients with dementia and ethical concerns. Section three addresses the implementation of hospice care for dementia patients. The information in each section is presented in a concise, easy-to-read format. The headings within the chapters allow access to specific information. Graphs and tables are easy to read and explained in detail.
Assessment: This is an excellent resource and guide for any hospice clinician. The information is current, timely, and easy to incorporate into practice. In some in instances, references to other materials are provided if the reader needs more information in a certain area. Overall, this book is easy to read, concise, and functional.

4 Stars! from Doody
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Product Details

  • ISBN-13: 9780826111609
  • Publisher: Springer Publishing Company, Incorporated
  • Publication date: 1/1/2004
  • Series: Springer Series on Ethics, Law and Aging
  • Edition description: New Edition
  • Pages: 316
  • Product dimensions: 5.90 (w) x 8.80 (h) x 0.80 (d)

Meet the Author

Vladislav Volicer, MD, PhD, is currently Courtesy Full Professor, School of Aging Studies, College of Arts and Sciences, University of South Florida. He is also External Professor, 3rd Medical Faculty, Charles University, Prague, Czech Republic

Ann C. Hurley, RN, DNSc. FAAN, CNA, is Associate Director of Education and Program Evaluation for the GRECC at the Edith Nourse Rogers Veterans Administration Hospital. She also serves as Adjunct Professor of Nursing at Northeastern University, as a research associate at the Boston University School of Public Health, and as Education Core Leader at the Boston University Alzheimer Disease Center. Dr. Hurley also is a Colonel in the United States Army Reserve.

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Table of Contents

  1. Contributors

    Introduction

    Part I: Clinical Issues

  2. Alzheimer's Disease and Other Progressive Dementias, Autumn Klein and Neil Kowall
  3. Infections in Advanced Dementia, Ladislav Volicer, Gary H. Brandeis, and Ann C. Hurley
  4. Overcoming Eating Difficulties in the Severely Demented, Giovanni B. Frissoni, Simone Franzoni, Giuseppe Bellelli, Judith Morris, and Victoria Warden
  5. Behavioral Symptoms of Dementia, Ladislav Volicer, Ann C. Hurley, and Ellen Mahoney
  6. Quality of Life in Late-Stage Dementia, Sandy C. Burgener
  7. Part II: Ethical Issues

  8. The Moral Basis for Limiting Treatment: Hospice Care and Advanced Progressive Dementia, Stephen G. Post and Peter J. Whitehouse
  9. Palliative Care for Alzheimer Patients: Implications for Institutions, Caregivers, and Families, Mildred Z. Solomon and Bruce Jennings
  10. Nursing Staff As Moral Agents, Ann C. Hurley, Sally A. MacDonald, Sara T. Fry, and Veronika F. Rempusheski
  11. Advanced Proxy Planning, Margaret Ann Mahoney, Ann C. Hurley, and Ladislav Volicer
  12. Complexities of the Grieving Process in Spouses of Patients with Alzheimer's Disease, Yvette L. Rheaume and June Brown
  13. Part III: Implimentation

  14. Acceptance of Hospice Care for Dementia Patients by Health Care Professionals and Family Members, Daniel J. Luchins, Patricia Hanrahan, and Kim Litzenberg
  15. Barriers to Providing Hospice Care for People with Dementia, Joyce Simard and Ladislav Volicer
  16. Providing Palliative Care for the Terminal Alzheimer's Patient, Sally J. Smith
  17. The Experience of Jacob Perlow Hospice: Hospice Care of Patients with Alzheimer's Disease, Paul R. Brenner
  18. Effects of Hospice Interventions on Nursing Home Residents with Later Stages of Dementia, Christine R. Kovach
  19. Index

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