ibd Self-Management: The AGA Guide to Crohn's Disease and Ulcerative Colitis


Inflammatory bowel disease-Crohn's disease and ulcerative colitis-strikes young people between the ages of 15 and 30 most often, but it can appear at any age. If you are among the 100,000 diagnosed with IBD each year, you need to know what Dr. Sunanda Kane knows about your challenges and what to do next. She will empower you at a time when it's easy for you, or your child, to feel powerless against IBD.

Through the personal stories of patients, you will learn how to prepare for ...

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Inflammatory bowel disease-Crohn's disease and ulcerative colitis-strikes young people between the ages of 15 and 30 most often, but it can appear at any age. If you are among the 100,000 diagnosed with IBD each year, you need to know what Dr. Sunanda Kane knows about your challenges and what to do next. She will empower you at a time when it's easy for you, or your child, to feel powerless against IBD.

Through the personal stories of patients, you will learn how to prepare for emergencies, flares, treatment failures, surgeries, and all the "what ifs." Dr. Kane's patients have taught her that one size doesn't fit all when it comes to IBD treatment. She delivers straight talk that dispels myths on medications and nontraditional treatments, "healthy gut" diets and diets for flares, and cancer prevention. She'll help you understand what your doctor is telling you about tests and surgery so you can pinpoint your options.

Dealing with overwhelming pain and GI symptoms? Stuck on steroids? Wondering the best way to tell your boss or child's school and get the accommodations you need? Worried about fertility or which IBD drugs are safe while breastfeeding? Thinking about trying a "miracle cure" you found on the Internet? Get the reliable, researched-based facts so you can self-manage your Crohn's disease or ulcerative colitis-for life!

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Editorial Reviews

Library Journal
Inflammatory bowel disease (IBD) is a serious, chronic condition that affects more than one million Americans. Kane, an international researcher at the Mayo Clinic with a strong affiliation with the Crohn's and Colitis Foundation of America, describes the known and hypothesized causes of IBD and emphasizes the need for an informed collaboration with one's physician to continue therapy and minimize flares. The symptoms of each type of IBD are delineated, and the need for self-management and awareness of one's own condition is heavily stressed. Kane addresses treatments, including medications, pain management, surgery, and complications, and devotes a comprehensive discussion to the role of diet and nutrition in controlling weight and managing flares and symptoms. She also covers maintaining quality of life, from stress management and work issues to physical activity, fatigue, and travel as well as the special concerns of sexuality, pregnancy, and children. VERDICT While not a particularly easy read, this contains vital, current information necessary to managing the disease and working with one's health-care team. Highly recommended.—Janet M. Schneider, James A. Haley Veterans' Hosp., Tampa
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Product Details

  • ISBN-13: 9781603560054
  • Publisher: AGA Institute Press
  • Publication date: 3/28/2010
  • Pages: 262
  • Sales rank: 968,181
  • Product dimensions: 6.00 (w) x 8.90 (h) x 0.70 (d)

Meet the Author

Dr. Kane is an internationally renowned authority on treatment of inflammatory bowel disease. Author of peer-reviewed original research articles, book chapters, reviews, and editorials. She also co-edited a handbook on IBD for GI fellows and clinicians. Dr. Kane conducts research and sees patients at the Mayo Clinic in Rochester.
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Table of Contents

Foreword xiii

Preface xv

Acknowledgements xvii

1 Why IBD? Why Me? 1

Gastrointestinal Anatomy 2

What Is Inflammations? 5

Inflammatory Bowel Disease Defined 5

Were you Misdiagnosed? 6

The Clues about Cause 8

Genetics 9

Immunune System 10

Environment 12

Dealing with your Feelings 13

The Predictable Steps 13

Telling Others 15

Eating Disorders 17

Medical Definitions Used in Ulcerative Colitis and Crohn's Disease 18

2 Understanding the Diagnosis of Ulcerative Colitis 19

Symptoms of Ulcerative Colitis 21

Diagnosis of Ulcerative Colitis 23

Management of Ulcerative Colitis 28

Flares 29

3 Understanding the Diagnosis of Crohn's Disease 31

Types of Crohn's Disease 34

Symptoms of Crohn's Disease 35

Diagnosis of Crohn's Disease 36

Management of Crohn's Disease 40

4 The Other Types of IBD 43

Indeterminate Colitis 43

Microscopic or Lymphocytic Colitis 45

Collagenous Colitis 46

5 Self-Management: It's Your IBD 47

The Immediate Plan 48

The Short-Term Plan 50

Information Overload 51

Your Self-Awareness Tool 52

The Long-Term Plan 54

Your Health Care Team 54

Your Primary Care Physician 55

Your Gastroenterologist 56

Do You Need a GI Specialty Center? 57

The Surgeon 58

The Hospitalist 58

How to Get the Most from Your Health Care Visits 59

6 Medications for IBD 61

Medications for IBD Inflammation 63

Aminosalicylates 63

Antibiotics 65

Steroids 66

Immunomodulators 69

Biologics 72

Thalidomide 78

Medications and Older Folks 78

Medications for Specific IBD Symptoms 86

Antidiarrheals 86

Pain Medications 88

Future Treatments 89

Agents for Ulcerative Colitis 89

Agents for Crohn's Disease 90

Clinical Trials 91

Staying on Your Medication 92

Unconventional Therapies and Alternative Approaches 94

My Thoughts on Certain CAM Therapies 96

Probiotics 98

7 IBD Affects More than Your Gut 103

Eyes 103

Liver 104

Kidneys 106

Bones 107

Joints 110

Hair, Teeth, and Nails 111

Skin 111

8 The IBD-Cancer Connection 113

The Risk of Colorectal Cancer 114

Preventing CRC 114

Dealing with Dysplasia 115

Using Medications to Prevent CRC 117

Other Types of Cancer 118

Lymphoma 118

Cholangiocarcinoma 120

Rare Tumors 120

9 When You Need Surgery for IBD 123

Common Types of Surgery 124

Medical Definitions Used in IBD Surgery 126

Surgery for Ulcerative Colitis 127

Colon Removal 128

Issues with Pouches 130

Surgery for Crohn's Disease 132

Resection 133

Fixing Perforation or Abscess 133

Repairing Anal Fistulas 134

Hemorrhoids: Consider Surgery Last 135

Postoperative Complications 135

Ileus 136

Thrombosis or Blood Clots 136

Bowel Obstruction from Adhesions 137

Other Surgical Complications 137

Long-Term Complications of Small Intestine Surgery 138

Stoma 139

Other Surgeries 142

10 The Food Fight: What Can I Eat? Susan Hopson 143

Your Nutritional Challenge 144

Nutrition 101: What Every Body Needs 145

Carbohydrates 145

Proteins 146

Fat 146

Vitamins 147

Minerals 148

Your Individual Nutrition Needs 148

IBD-Required Modifications 149

Fiber and Residue 150

Solubility and Insolubility 152

Fiber Guidelines 153

Adding Fiber In 153

Lactose Intolerance 154

Calcium: A Special Problem 157

Trigger Foods 159

Reactions to Wheat Gluten and Other Foods 160

Your Need for Glutamine 161

Malnutrition in IBD 162

When You Can't Eat Food 164

Diets Specifically for IBD 165

During a Flare or When You Are Feeling Bad 167

When You Start to Feel Better 169

Getting Back to Normal 172

When You Have Recovered from a Flare: Maintenance 173

General Guidelines for Healthy Eating with IBD 174

11 Taking Charge of Your Lifestyle 177

Pain 177

Stress 179

Sleep and Fatigue 180

Smoking 181

Physical Activity 182

Travel 183

Working 184

Useful Web Sites 186

12 Growing Up with IBD 189

What Caused Your Child's IBD 191

Growth and Development 192

How IBD Is Different for Children and Teens 192

Treating IBD in Children and Teens 194

Monitoring IBD in Children and Teens 196

The Importance of Staying on the Medications 197

Fitting in with IBD 198

Practical Advice about Common Parental Issues Marci Reiss 200

Who Gets to Know? 200

Ask Them How They Are Feeling-Once a Day! 201

Medication Compliance 201

Guiding Children along Their Journey to Independence 202

IBD at School 203

Swallowing Pills: Practical Ways to Make It Easier 204

13 Sex, Fertility, and Pregnancy 207

Women 208

Men 209

The Menstrual Cycle 210

Menopause 211

Pap Smears 212

Contraception 212

Fertility 214

Pregnancy 215

Plan Your Pregnancy 216

How Pregnancy Affects IBD 216

How IBD Affects Pregnancy 217

FAQs 218

References 223

Index 257

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Sort by: Showing 1 Customer Reviews
  • Anonymous

    Posted September 2, 2012

    I really enjoyed this book to help explain the disease to me. I

    I really enjoyed this book to help explain the disease to me. I also follow Dr. Kane's diet recommendations when I am not feeling well, and I think it helps.

    Was this review helpful? Yes  No   Report this review
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