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From The CriticsReviewer: Patricia Wong, MD (Stanford University Medical Center)
Description: This is an outstanding reference on all aspects of treating patients with epidermolysis bullosa (EB). The authors have produced a wonderful resource on taking care of EB patients emotionally and where to find support groups, while painstakingly covering all the complications these patients face. The phrase, "the heartbreak of psoriasis," was obviously coined by someone ignorant of the pain and suffering EB patients deal with every day. Chapters on etiology and immunology of the disease are excellent. The genetics of EB could have been explained in a simpler manner; there could have been a more elementary presentation of mosaicism and revertent mutations.
Purpose: The purpose is to teach dermatologists how to care for EB patients and provide current information on the disease process.
Audience: The audience is dermatologists.
Features: There are many color photographs showing the syndactylies, scarring, cancers, etc., that EB patients experience. There are also photos of smiling EB patients living their lives, doing activities that they enjoy. Reading this book, I was very moved by the hardships these patients endure. We dermatologists can make a significant difference in these patients' lives and this book provides the information and tools that we need to make this happen. If you don't feel changed after reading what the authors share with you, I would suggest you need to examine why you are a dermatologist.
Assessment: This superb reference on EB has no competitor. I learned more from this book than I did doing my residency at Stanford University, which at the time had a clinic devoted to epidermolysis bullosa. I highly recommend this to anyone who is treating these patients, and to all dermatologists who need to be aware of these special patients.