Living Beyond Multiple Sclerosis: A Women's Guide


This second installment from the online group dedicated to supporting each other in the fight against "the MonSter" includes firsthand insights.

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Living Beyond Multiple Sclerosis: A Women's Guide

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This second installment from the online group dedicated to supporting each other in the fight against "the MonSter" includes firsthand insights.

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Editorial Reviews

Library Journal
A follow-up to Women Living with Multiple Sclerosis (LJ 4/1/99), this edited collection of e-mail "conversations" provides anecdotal and personal information contributed by women with multiple sclerosis. The "MS Sisters" discuss how they deal with their disability and their reactions to a variety of situations and challenges. One woman writes, "Never give up. Having MS isn't any fun, that's for sure. But it's not terminal and not always horrible. Keep a positive attitude." Another says about her diagnosis: "In many respects it was a relief to know that there was a physical cause and that I wasn't just `cracking up.' " Although this book is not designed to provide medical information, the insights provided can be a source of affirmation and consolation to other readers with MS. Recommended for all general health collections, caregivers, and physicians of MS patients.--Mary J. Nickum, Lakewood, CO Copyright 2001 Cahners Business Information.
From The Critics
Living Beyond Multiple Sclerosis is a collection of personal stories drawn from an on-line support group of women suffering from Multiple Sclerosis. This compendium of updated information on the sometimes elusive MS diagnosis; sustaining positive doctor/patient relationships; the newest MS treatments; maximizing treatment benefits; Social Security Disability and other insurance benefit applications, as well as household accessibility and tips for choosing and correctly using assistive devices presents Living Beyond Multiple Sclerosis as an invaluable informational resource that is informative, and occasionally inspiring. Judith Nichols and her online community of women have rendered a truly invaluable service, the results of which are highly recommended for personal, professional, medical center, and community library health reference collections and reading lists. REVIEW%> THE BLACK STUDIES SHELF
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Product Details

  • ISBN-13: 9780897932936
  • Publisher: Turner Publishing Company
  • Publication date: 10/28/2000
  • Edition description: Subsequent
  • Pages: 256
  • Sales rank: 735,294
  • Product dimensions: 5.47 (w) x 8.44 (h) x 0.72 (d)

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Sort by: Showing all of 8 Customer Reviews
  • Anonymous

    Posted October 23, 2003

    Not as good as the first one!

    Nichols has edited her characters to where they are no longer the distinct individuals that they were in the first book. They are bland, one-size-fits-all catroonish stereotypes, instead of the living, breathing, laughing, crying individual women that they were in the previous book.

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  • Anonymous

    Posted November 30, 2000

    The BEST MS book ever!!!

    Judith Lynn Nichols has done it again!!!! In my opinion the book 'Woman Living Beyond Multiple Sclerosis' written by Judith Lynn Nichols is the BEST book ever written about MS next to 'Woman Living With Multiple Sclerosis'. by the same author! Judith Lynn Nichols has really outdone herself with this book!It is a fast and easy reader! It covers ALL the symptoms of MS and anything you need to know about dealing with them. Reading this book has made me laugh and cry!I can see myself in almost everything that is written here! If I ever had a question on how to do anything or what can happen with MS it's sure in this book! You can learn so much with this book! Most books about MS DON'T go into detail on certain things like this book does! I would recommend this book to anyone that has MS and concerns about what can happen with this disease! IT WAS THE BEST!!! Thanks Judy!

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  • Anonymous

    Posted November 19, 2000

    LIVING beyond MS

    This book offers enlightening glimpses into the lives of busy, creative, loving and very funny women. I wish I'd had this book and the first book written by Judith Nichols, Women Living with Multiple Sclerosis, when I was diagnosed four years ago. The informative books I read then left me dreading the day I would become a burden to my family. The Flutterbuds' focus on life and living, revenge and retalliation, humor and tears should show even the most frightened reader that an MS diagnosis does not come with a license to stop living. Thank You, JudyLynn and all your fluttersisters!

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  • Anonymous

    Posted November 24, 2000

    Insightful and Real!

    This book is outstanding with it's down to earth suggestions, revelations, and advice. It is by far the best book I have read on how to live with Multiple Sclerosis. It gives you realistic insight into life with a chronic illness. After I was diagnosed with MS, I realized that I was not going to 'get over' what I had. True, I could hope for a cure, but until then I had to learn how to live with it. This book showed me ways to live beyond and with the day to day encounters. I am so grateful that this book has been written. It has greatly enriched my life.

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  • Anonymous

    Posted October 28, 2000


    I was very fortunate to have read this book, prior to it's official release. I have read it three times already. It is the best book I have read on the subject of how to live life to it's fullest. I found myself laughing and crying throughout the entire book. It has helped me cope with having a disease that confronts me daily. It has helped me to help others understand. This book has made my life so much better! Hopefully, everyone that reads it will come away with the same sense of support that I came away with. Read it!

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  • Anonymous

    Posted October 25, 2000

    Living BEYOND is what matters

    The title says it all... Living BEYOND Multiple Sclerosis. Not living THROUGH or suffering WITH, or (worst of all) ignoring MS, but instead living life beyond the hurdles that the MonSter can put in the way. Seeing a group of women, particularly a group as diverse geographically, economically and in background/lifestyle, come together to bring hope, joy, laughter and support to each other teaches a valuable lesson to everyone, whether they have a chronic illness or not. The women in this book, and it's predecessor, show that the support of others can make any challenge manageable, even imbibe a sense of humor into what could be a truly sad situation. The support systems available for people with MS are limited, many of us prefer not to depend on organizations with specific intentions for all the information and encouragement we crave. This book allows us to say 'Yes, I have MS, but I am living beyond it, I am a woman, a mother, a wife, a daughter, a friend' Nothing on Earth can replace family and friends for the best kind of support, and it's heartwarming to see that these women have found so many far-flung members to add to their families! I applaud Judith Nichols and the 'Flutterbuds' for their honesty, their introspection, their humor... and thank them from the bottom of my heart for sharing it all with us! Keep up the good work, Sisters!

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  • Anonymous

    Posted October 27, 2000

    Witty, Wise, & Heartwarming!

    Privileged to read an advance copy, I found it even better than the first Flutterbud book! The lively exchanges between close friends makes it a 'fast read' which refuses to get bogged down or boring, and touches upon a variety of topics. This is not a textbook, yet it is informative. It is not preachy, yet it comforts and inspires. It does not represent any single philosophy, attitude, or experience, but is a beautifully compiled series of brutally honest emails that will make you chuckle, gasp,cry, think, and realize that you've glimpsed the hearts of a bunch of ordinary yet extraordinary women. If you have MS, know someone with MS, work with MS patients, or just wonder how others deal with chronic illness, grab this book.

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  • Anonymous

    Posted October 5, 2000

    Not the MS book for every woman

    Judith Lynn Nichols has a very particular approach to MS, and it's not for everyone -- I would particularly caution the newly diagnosed against reading this book. Women who have chosen to let MS dominate their lives -- or those women who who have had no choice but to let MS dominate their lives -- may find some comfort and companionship here, but for the rest of us, it's a depressing look into a discouraging mindset. Nichols and her friends refer to MS as the MonSter -- frankly, that gives the disease a lot more power than I'm inclined to give it in my life. MS is a disease -- not a lifestyle, and certainly not the end of your life. The best thing for most women, I think, is to toss this book out the window, get what help you need from the MS Society or your healthcare provider, and get on with living your life. MonSters are for nightmares -- which is something MS doesn't have to be. So much of how well we can cope with what happens to us depends on our mindset -- fighing MonSters expends too much negative energy

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