Living with Spina Bifida: A Guide for Families and Professionals

Overview

It is the most common complex birth defect. Spina bifida affects approximately one out of every 1,000 children born in the United States. In this comprehensive guide, Dr. Adrian Sandler offers a wealth of useful information on the medical, developmental, and psychological aspects of this condition.

Accurate, accessible, and up-to-date, Living with Spina Bifida is written especially for families and professionals who care for children, adolescents, and adults with spina bifida. ...

See more details below
Paperback (2)
$18.24
BN.com price
(Save 24%)$24.00 List Price

Pick Up In Store

Reserve and pick up in 60 minutes at your local store

Other sellers (Paperback)
  • All (13) from $2.67   
  • New (4) from $14.29   
  • Used (9) from $2.67   
Living with Spina Bifida: A Guide for Families and Professionals

Available on NOOK devices and apps  
  • NOOK Devices
  • Samsung Galaxy Tab 4 NOOK
  • NOOK HD/HD+ Tablet
  • NOOK
  • NOOK Color
  • NOOK Tablet
  • Tablet/Phone
  • NOOK for Windows 8 Tablet
  • NOOK for iOS
  • NOOK for Android
  • NOOK Kids for iPad
  • PC/Mac
  • NOOK for Windows 8
  • NOOK for PC
  • NOOK for Mac
  • NOOK for Web

Want a NOOK? Explore Now

NOOK Book (eBook - Second Edition)
$13.49
BN.com price
(Save 43%)$23.99 List Price

Overview

It is the most common complex birth defect. Spina bifida affects approximately one out of every 1,000 children born in the United States. In this comprehensive guide, Dr. Adrian Sandler offers a wealth of useful information on the medical, developmental, and psychological aspects of this condition.

Accurate, accessible, and up-to-date, Living with Spina Bifida is written especially for families and professionals who care for children, adolescents, and adults with spina bifida. This edition contains a new preface by the author, addressing recent developments in research and treatment, as well as an updated list of spina bifida associations.

The book contains black-and-white illustrations and two-color illustrations.

Read More Show Less

Editorial Reviews

Doody's Review Service
Reviewer: Charles Kantrow, MD (Ochsner Clinic Foundation)
Description: This book describes in detail the cause and effects of spina bifida with detailed descriptions of all involved systems and associated problems. It is written for both the parents of children with spina bifida as well as those providing medical care to them. This updated edition with a new preface replaces the 1997 edition.
Purpose: The purpose is to provide an insightful view into the life of spina bifida patients and their families. This is an important subject as these children often have subspecialty care but not always primary care. Issues surrounding this condition should be understood by all involved in care of these patients. This book fills that void.
Audience: The book was written for families of patients as well as medical and other professional personnel involved in their care. It is useful both for generalists as well as specialty physicians who care for the child. The author is very credible in this area.
Features: Specific issues of the cause of spina bifida, treatment and prevention are covered. The book provides a description of issues, both medical and psychosocial, that are significant to these patients at various stages of their life from infancy to adult. This book does an excellent job of providing both information as well as perspective from both the practitioner's and patient's points of view. It is very helpful having information clearly marked for patients and for medical professionals.
Assessment: This is an excellent, readable book that provides an abundance of useful and easily understandable information about this complex issue. I will recommend it highly to my patients and residents in trying to understand spina bifida.
From The Critics
Reviewer: Charles Kantrow, MD(Ochsner Clinic Foundation)
Description: "This book describes in detail the cause and effects of spina bifida with detailed descriptions of all involved systems and associated problems. It is written for both the parents of children with spina bifida as well as those providing medical care to them. This updated edition with a new preface replaces the 1997 edition.
Purpose: The purpose is to provide an insightful view into the life of spina bifida patients and their families. This is an important subject as these children often have subspecialty care but not always primary care. Issues surrounding this condition should be understood by all involved in care of these patients. This book fills that void.
Audience: The book was written for families of patients as well as medical and other professional personnel involved in their care. It is useful both for generalists as well as specialty physicians who care for the child. The author is very credible in this area.
Features: Specific issues of the cause of spina bifida, treatment and prevention are covered. The book provides a description of issues, both medical and psychosocial, that are significant to these patients at various stages of their life from infancy to adult. This book does an excellent job of providing both information as well as perspective from both the practitioner's and patient's points of view. It is very helpful having information clearly marked for patients and for medical professionals.
Assessment: This is an excellent, readable book that provides an abundance of useful and easily understandable information about this complex issue. I will recommend it highly to my patients and residents in trying to understand spina bifida.
From The Critics
Reviewer: Charles Kantrow, MD(Ochsner Clinic Foundation)
Description: "This book describes in detail the cause and effects of spina bifida with detailed descriptions of all involved systems and associated problems. It is written for both the parents of children with spina bifida as well as those providing medical care to them. This updated edition with a new preface replaces the 1997 edition. "
Purpose: The purpose is to provide an insightful view into the life of spina bifida patients and their families. This is an important subject as these children often have subspecialty care but not always primary care. Issues surrounding this condition should be understood by all involved in care of these patients. This book fills that void.
Audience: The book was written for families of patients as well as medical and other professional personnel involved in their care. It is useful both for generalists as well as specialty physicians who care for the child. The author is very credible in this area.
Features: Specific issues of the cause of spina bifida, treatment and prevention are covered. The book provides a description of issues, both medical and psychosocial, that are significant to these patients at various stages of their life from infancy to adult. This book does an excellent job of providing both information as well as perspective from both the practitioner's and patient's points of view. It is very helpful having information clearly marked for patients and for medical professionals.
Assessment: This is an excellent, readable book that provides an abundance of useful and easily understandable information about this complex issue. I will recommend it highly to my patients and residents in trying to understand spina bifida.
From The Critics
[As] the parent of a child with spina bifida, I've never found a book that so completely addresses the multiple facets of his disability. Dr. Sandler's work is a refreshingly direct and highly readable, detailed look at a complete life-long condition.(Judy Woodruff, CNN)

This updated edition of useful information on the medical, developmental, and psychological aspects of spina bifida contains a new preface by the author, addressing recent developments in spina bifida research and treatment, as well as an updated list of spina bifida associations.

An authoritative summary of the current issues facing both patients and their families.(W. Jerry Oakes, M.D., Children's Hospital of Alabama)

Library Journal
Spina bifida ("divided spine") is a common if complex birth defect occurring during embryonic development and resulting in moderate to profound disabilities. Pediatrician Sandler has written a valuable handbook that addresses patients' biopsychosocial and developmental needs from birth through adolescence and into adulthood. Sandler's holistic approach encourages families to focus more on the child and less on the disability while providing abundant information about this condition. Parents of children with spina bifida add their personal insights in several chapters. Included are a glossary, a list of spina bifida associations, and suggested readings. Reassuring but realistic, this uniquely multidisciplinary guide is for parents, pediatricians, neurosurgeons, orthopedists, rehabilitation and physical therapists, teachers, and others involved in the care of children and adults with spina bifida. Highly recommended.Anne C. Tomlin, Auburn Memorial Hosp. Lib., N.Y.

3 Stars from Doody
Read More Show Less

Product Details

  • ISBN-13: 9780807855478
  • Publisher: The University of North Carolina Press
  • Publication date: 3/15/2004
  • Edition description: 2
  • Edition number: 2
  • Pages: 296
  • Sales rank: 705,856
  • Product dimensions: 6.10 (w) x 9.10 (h) x 0.80 (d)

Meet the Author

Adrian Sandler, M.D., is medical director of the Olson Huff Center at Mission Children's Hospital in Asheville, North Carolina.

Adrian Sandler, M.D., is medical director of the Olson Huff Center at Mission Children's Hospital in Asheville, North Carolina.

Read More Show Less

Table of Contents

Preface
Acknowledgments
Glossary
Ch. 1 A Holistic Overview of Spina Bifida 1
Ch. 2 Neural Tube Defects 11
Ch. 3 Epidemiology of Spina Bifida 27
Ch. 4 Pregnancy and Childbirth 41
Ch. 5 The Newborn Baby 51
Ch. 6 Infants and Toddlers 77
Ch. 7 Preschoolers 117
Ch. 8 The School-Age Child 145
Ch. 9 The Adolescent and Young Adult 187
Ch. 10 Focus on the Family 209
Ch. 11 Focus on Education and Work 223
App Directory of Spina Bifida Associations 243
References and Suggestions for Further Reading 253
Index 261
Read More Show Less

Customer Reviews

Be the first to write a review
( 0 )
Rating Distribution

5 Star

(0)

4 Star

(0)

3 Star

(0)

2 Star

(0)

1 Star

(0)

Your Rating:

Your Name: Create a Pen Name or

Barnes & Noble.com Review Rules

Our reader reviews allow you to share your comments on titles you liked, or didn't, with others. By submitting an online review, you are representing to Barnes & Noble.com that all information contained in your review is original and accurate in all respects, and that the submission of such content by you and the posting of such content by Barnes & Noble.com does not and will not violate the rights of any third party. Please follow the rules below to help ensure that your review can be posted.

Reviews by Our Customers Under the Age of 13

We highly value and respect everyone's opinion concerning the titles we offer. However, we cannot allow persons under the age of 13 to have accounts at BN.com or to post customer reviews. Please see our Terms of Use for more details.

What to exclude from your review:

Please do not write about reviews, commentary, or information posted on the product page. If you see any errors in the information on the product page, please send us an email.

Reviews should not contain any of the following:

  • - HTML tags, profanity, obscenities, vulgarities, or comments that defame anyone
  • - Time-sensitive information such as tour dates, signings, lectures, etc.
  • - Single-word reviews. Other people will read your review to discover why you liked or didn't like the title. Be descriptive.
  • - Comments focusing on the author or that may ruin the ending for others
  • - Phone numbers, addresses, URLs
  • - Pricing and availability information or alternative ordering information
  • - Advertisements or commercial solicitation

Reminder:

  • - By submitting a review, you grant to Barnes & Noble.com and its sublicensees the royalty-free, perpetual, irrevocable right and license to use the review in accordance with the Barnes & Noble.com Terms of Use.
  • - Barnes & Noble.com reserves the right not to post any review -- particularly those that do not follow the terms and conditions of these Rules. Barnes & Noble.com also reserves the right to remove any review at any time without notice.
  • - See Terms of Use for other conditions and disclaimers.
Search for Products You'd Like to Recommend

Recommend other products that relate to your review. Just search for them below and share!

Create a Pen Name

Your Pen Name is your unique identity on BN.com. It will appear on the reviews you write and other website activities. Your Pen Name cannot be edited, changed or deleted once submitted.

 
Your Pen Name can be any combination of alphanumeric characters (plus - and _), and must be at least two characters long.

Continue Anonymously
Sort by: Showing all of 3 Customer Reviews
  • Anonymous

    Posted February 19, 2013

    Ice

    Yup.

    0 out of 1 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted March 2, 2013

    B

    0 out of 1 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
  • Anonymous

    Posted February 24, 2013

    FUUUUUUUUUUUUUUUUUUUU

    Damn damn damn damn goto damn damn pizza damn damn damn damn res damnn damn damn one damn damn

    0 out of 1 people found this review helpful.

    Was this review helpful? Yes  No   Report this review
Sort by: Showing all of 3 Customer Reviews

If you find inappropriate content, please report it to Barnes & Noble
Why is this product inappropriate?
Comments (optional)